Category: ME/ CFS

Who Speaks For The Silent?

Your voice, he said, it sounds…different…

Project your voice
I learned in theatre,
speak to the back
keep it strong
don’t falter

I had to replay your message several times….

Hold that note
dig deep –
from the diaphragm
sing from your belly

Must be something wrong with the machine…

Demonstrate conviction
let your tone convey passion
stand tall, be confident
motivate your audience
Dad, the orator, told me

I couldn’t make out your words….

Performance demands voice
activism relies on voice
change requires voice

You sound so…weak…
not yourself at all

I am losing my voice
but not my words;
I have much to say
who will say it for me?

(Who Will Speak for the Silent first appeared here in October, 2015. My voice was the first thing to go at the onset of ME. It would be years before I could speak and sustain a conversation again. In revisiting this poem, it occurs that it is still relevant for all those who do not have a voice, who cannot speak for themselves, so I resubmit here on behalf of Woman’s History Month and am linking up with my weekly challenge, dig. Image my own)

Dear Legs

I’ve been remiss
in expressing appreciation
all the years you’ve carried me –
stride confident, pace swift,
head turning grace –

We wobble now, you and I,
strength questionable
stilted soldiers forging against
a tide of contrary currents

Remember endless laps in the pool
prepping for provincial meets,
then dancing till the wee hours
getting down with disco?

We were champions, you and I
beauties taking on the world
leap-frogging in a race against
a undefinable foe, determined
that destiny held no limitation

I may not have expressed it
but each step is precious to me
and every time you hold me
upright, my gratitude’s sincere

There’s life yet to discover
and dreams still burn
Can you hear the drumming
will you join me in the dance?

(Dear Legs first appeared here in October 2017. I submit this edited version for Eugi’s Weekly prompt: champion. Image my own.)


Snakes at My Door

A preacher dominates
six o’clock news
megaphone voice
commanding protest
mask-less hordes roar

A young repairman
offs his mask with distaste
claims it’s all a hoax,
the cure is withheld
a ploy to control –
read it on the internet.

A friend whose wisdom
and words have inspired
confesses she’ll not accept
vaccination, as her life
is in God’s hands.

And from behind a curtain
of despair, I observe
as words, like snakes
gather on my front step
nest in a writhing menace

The virus’ venom
a poison I’m not sure
I can defeat

And what am I to do
when abstinence from public life
makes me conveniently invisible

and fear that if I speak up
will reveal a truth I cannot bear
that the devout, the young, the compassionate
care not a wink for the likes of me.

Solitude (3)

Solitude.
I dream of
panoramic
silence –
breathtaking
boundless
sanctity.

Solitude.
Wrapped in separateness
cardboard walls fallen
curling corners of instability –
no refuge in stillness.

Solitude.
Smothering starkness
madness reverberating
canyons of aloneness
overbearing.

Solitude.
Persevere
regale moments
feathered encounters
faces on screens
tenderness
in voices.

Solitude.
Grace finds me
mercy lifts soul
possibility
opens the door
panoramic.

(This is a rewrite of an older poem, last appearing here in August, 2018. I submit it for Reena’s Exploration challenge #163. Please visit her post for a most inspiring video. Art my own.)

Ride Along With Me (2)

Passenger, am I
backseat traveller
input unsolicited

I ride along.

Passenger, am I
view limited
direction speculative

I am not driving.

Driver is motivated
self-assured
I relax…until
temptation boards

Wait a minute; who invited temptation?

Driver is distracted
ego taking the wheel
Who’s paying attention?

I am not alone.

Lackadaisical dropout
sits with me – mooch
and weekend boozer

How did he get here?

Vehicle is outdated,
I warn, not a lot of room
ride at your own risk

They don’t make them like this anymore.

Crazy sister is here too
or maybe it’s me, ’cause I swear
I saw the ghost of another

It’s a good thing I’m not driving.

Darkness falling and out of gas
we stop and neon lights blare
Make a break for it!

Or… I could find a new driver.

Maybe put God at the wheel.
Would have to pay attention.
Oust the adulteress and sloth.

Be on my best behaviour.

Turn my vehicle into a golden chariot
powered by horses with wings of white
fly above all the obstacles

Headed for the Promised Land.

All fantasy, of course
I’m a backseat passenger
until vitality is restored

Then I’ll park this old model

And get a new one with GPS.

(Ride along with me first appeared her November 2014. This version is edited. Image my own.)

I Wave, Maintain Distance

Feels so clinical
this measuring
of distance

Neighbours congregate
camaraderie a pull

I hide behind glass
record temperature
blood pressure

Underlying conditions
condemn closeness

Laughter of mask-less
trickles through panes

I pray for strength
clarity of purpose
refrain from joining in.

(For Eugi’s Weekly prompt:  neighbour)