aging · health · life · ME/ CFS · photography · poetry · writing

Numb

Pain no longer a threat
having found numbness –
semi-permanent vacation
from insistence of
chronic battles,
this unchosen life.

(Image from personal collection)

disability · health · Humour · life · ME/ CFS · poetry · writing

Chronic Companion

She sits with me at breakfast,
follows me to the park,
hovers on the drive home,
celebrates when I lie down,
snuggles in with warming pad,
and moans…

Not a companion
I would have chosen,
preferred the active,
athletic life, and yet

She complains with me
in the afternoon, invites
excuses during dinner,
grounds me in the evenings
and tosses me at bedtime

Not a companion
I would have chosen,
but at least I’ll grant her this –
she’s chronically devoted.

 

 

health · nature · poetry · travel · writing

March Madness

Winds picked up yesterday, gathering grey.  Cold seeped in through the windowsills, and we set the furnace on high.  Forecast for today is just above zero, even though we are in a tropical zone.  Oh well, I decide, a nice spicy soup will warm our innards.

Seems my body mirrors the weather: health declining, forcing me to bedrest frequently.  Have slept most the morning.  In between, I check emails, the blog, and we speculate about what will happen next with Mother Nature.  Soon, it will be time to venture home – a both welcome and sorrowful thought.

Confused winds blow cold,
winter reversing itself –
piquant soup simmers.

(It’s haibun night at the dVerse pub, hosted by Merril who challenges us to write about March Madness.  I am also linking up to Ragtag Community’s prompt: speculate and Fandango’s: health.)

disability · ME/ CFS · mental-health · poetry · writing

The Same, But Broken

Fragility blindsides –
I am woman.
Strong.

Courageous, some say –
a sentiment beyond my reach
having not chosen this state.

Fragility is pervasive –
body reduced to miniscule fibers,
stretched, torn, bordering
on broken.

Overwhelmed, mind obsesses –
will neither organize
nor let go…

If only I could let go…

I am weeping
and not

Weeping from frustration –
immediate impossibility –

Unwilling to weep for totality of loss –
it is beyond me.

Illness is regarded
with disgust,
indifference,
repulsion

There is no equality for the disabled

And, yet…

Rawness –
stripped of busy-ness –
renders me as any other

A soul yearning for a meaningful existence.

Maybe illness is the great equalizer.

(The Same, But Broken was first written in December of 2014, when I suffered from severe Myalgic Encephalomyelitis.  It is revised here.)

health · ME/ CFS · poetry · travel · writing

Desert

Take me to the desert
with mountains at our side,
walk with me in shadows,
let nature be our guide

We’ll stroll amongst the cacti,
pay homage to the quails;
take me to the desert
help me gather tales

The seasons are passing,
we’re running out of time;
take me to the desert
to heal this heart of mine.

***

By the time you read this, Ric and I will be on the road, headed south.  Texas and Arizona proved to be places of healing for me last year, and I hope that this journey will continue that process.

 

aging · change · creativity · life · poetry

Filters

Age
masks the depth
and breadth of ability –
houses more than anticipated
room for expansion, however;
current state of disrepair –
walls buckling, wiring faulty,
and security systems failing –
compromises output.

Old
holds a certain charm,
character well-earned,
but it would be useful
to install a mechanism
for locking out the past –
perhaps the future too –
eliciting and validating
the fullness of present.

health · ME/ CFS · poetry · Uncategorized

Attack

Compromised,
scaling a steep
dangerous
cliff wall

desiring relief,
a sign to indicate
a turning point
an exit

nothing worldly
can calm anxiety
uncertainty
life on hold

kindness
warms, reassures,
cannot counter
looming reality

stifled, begging
willing to deal
response absent
pleas hollow

surrendering
to fear is not an option
strength called for
and courage

love and compassion
the only sword
of significance
battling disease.

(May 12th is Myalgic Encephalomyelitis Awareness Day.  M.E. is a debilitating disease that attacks all systems in body leaving 25% of its victims permanently bed bound.  To date, due to lack of research, there is no effective treatment or cure, even though this disease effects over 1/2 million Canadians and many more worldwide.)

adversity · Family · health · life · Love · ME/ CFS · nonfiction · relationships · Uncategorized

Tribulations

A look back to two years ago. Sometimes we need the perspective of the rear-view image to put the present in better focus. How far we have come. (Photo from our earlier, healthier days.)

One Woman's Quest II

Preoccupation with my own woes blinded me to my husband’s suffering, which culminated in a heart attack on Saturday night.  We are shell-shocked.th-2

“That’s what happens to caregivers,” a callous nurse commented.  Am I supposed to feel guilty?

Unable to either drive myself, or push my own wheelchair, I am reliant on the goodwill of others to get me to the hospital, although even then, my body’s limits scream:  Halt!

I trust that my husband is in good hands, and getting the help he needs.  Meanwhile, I am home, alone, processing a gamut of emotions and what if’s.

thThis is not his first heart attack.  The first was silent, and according to the specialists, all but fatal.  It caused sufficient damage to have us all on edge.  Thank God I saw the signs and called 9-1-1 this time around.  The hospital said they will not release him until either medications…

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health · life · ME/ CFS · poetry

Investment Talk

It’s all about investment, really
life, I mean – make a deposit,
withdraw – hope that in the end
the gain is worth more than
the cost – a healthy balance.

Have been running deficits,
too focused on serving others,
practicing the art of giveaways –
incentives to capture attention
(affection too, if I’m honest.)

I’m every marketer’s dream –
impulsive, in the moment,
disbelieve that time is money –
illness having dumped time
on my lap in massive dollops

I’d say energy equates with
income, begets funds – all
redundant now, overdrawn
as I am, no safety deposit
securing balanced health.