Woulda, Shoulda, Coulda

I’d go back to school, continue post graduate work, rally the troops to get me there, scrounge
the fees, find someone to carry the books (I no longer have the strength) – undoubtedly miss a few sessions, get behind, feel frustration building, consult with the energetic youthful instructor, become brain locked when I cannot interpret the email address she writes down for me, confront the fact that transcribing the required reading assignment in nearly impossible (which means the work will likely never get completed in the allotted time period), and drop out.

I’d look after your young children, give you a break, but my hand is not steady and if I drop a cup it will break and what if it shatters where the children are playing – barefooted because I couldn’t rally the wherewithal to get them dressed without that much needed tea – and now the shards are a real threat, and the children are laughing and bouncing around, not heeding my warnings, thinking it’s all a joke, and I have lost control, needing to clean it up and manage the children, which I cannot do because multi-tasking is no longer within my realm of possibilities.

I’d visit my sister, the schizophrenic, who lives in a group home, and try to be supportive, but my mind is still reeling over the children, and other accumulating failures, and I know I’ve let everyone down, and quite frankly, her current state of neurosis seems so much less troublesome than mine, and I have nothing to say that would aide her other than I know what it feels like to be fucked up and exist outside the ‘norm’, and right now I just want to crawl back into my cell of isolation and breathe again – so have a good life.

I’d get a scooter, try to go for a ride on my own – be independent – but I’d likely choose the back roads to avoid the traffic and, not having accounted for inclement weather, would find the pace too fast and be forced into some small town where (with my luck) they’d be having their Christmas parade and I would be caught between crowds lining the street and marching bands and in a moment of panic would duck into the nearest opening – a family restaurant from which people are constantly coming and going  and where I’d realize that I just need to get home – and try to exit  just as someone (equally as pressed) is trying to enter, and having lost all vestiges of my normally polite self, I would refuse to back up, choosing instead to rage at the poor unsuspecting woman, who only needed a quick place to pee.

So, when you next ask me what I do with myself all day – and aren’t I bored – be assured that I am not lacking in suitable stimulation, do not need to take on added responsibility to give myself a sense of purpose, am incapable of volunteering with any degree of compassion, and have accepted my current state of dependency as the most appropriate given coping capabilities. I am, at present, unable to navigate life with any degree of normalcy, am content to struggle with my own limitations, putter at a speed below tortoise, bear the silence of solitude, and stay home.  I am not broken, in need of rescue, or lost.  I simply am.

Reform Called For

Placed without consultation
in an undesirable position –
certainly didn’t ask for this –
I am decidedly displeased.

Princess tendencies expected
pampered outcomes – exalted
deployment – hypochondriacal
drama despises responsibility.

Lack of working boundaries
merits complaints, too many
unknowns counterproductive,
yet I will forge ahead, accept.

Cross-purposes: reckless regard
for what’s important, and a need
to make things right (regardless
of cost) drive me to distraction.

Craving simplicity, am motivated
to create a suitable environment,
encounter more obstacles, feel
sabotaged from all angles, despair

lash out – not maliciously – only
begging for accountability, willing
understanding of consequences –
without collaboration futility arises.

Clear guidelines are needed here,
unrealistic expectations not helping,
need predictability, healthy protocols,
reinforcements to calm the chaos.

Foundational barriers breaking down,
the royal tower is crumbling – radical
change in the offing – reset, commit,
we can do this with duel dual effort!

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Turning Point

Played host to insecurity,
catered to bullying,
undermined by warped
agendas – slayed by
provincial minds –
retreated, convalesced,
sanitized lost vitality,
believed in phantoms,
haunted by compulsions,
attempted rescues,
counseled to let go.

Shell-shocked
in the aftermath,
incoherent,
judging self,
incomprehensible.

Where do I go from here?

Ignore criticism,
disarm cruelty,
sanctify privacy,
detach, discern,
redefine boundaries,
embrace enlightened,
caring, receptive  –
choose life.

 

Run!

Spent most life running –
obligations stepping stones
spanning the endless abyss –
desperately seeking bridges.

Inescapable is darkness –
pathways crumble, falter,
delusions disintegrate –
I have fallen, am falling

Alone. Starkness blinding,
rawness of soul exposed,
like an inverted negative,
surreal, unexpected truth.

Unanswerable questions arise,
I breathe, am not received,
no reflection to validate me,
matter suspended without

purpose, so fleeting, fickle
I am shadow, shelved,
inconsequential, nothing
silence painfully throbbing

riddled by abandonment –
victim or perpetrator – God’s
design or fantasy’s failings:
either way, I am cast aside

endlessly floating, undefined
losing grasp, untethered,
hopelessly longing for legs
that I might run again.

Hide(me)away

I covet a place hidden
from view, tucked in
between the Highway
Of Life’s Disappointments
and the Edge of the World.

Access cloaked by years
of unkempt bramble, forks
left, just before the abrupt
right turn onto the Freeway
Of Destiny’s Next Calling.

A hermit’s cottage, quaint,
shrouded in the Forest of
Puppeteers, where one can
live a simple pantomime –
pretend strings don’t exist.

Perpetually perched between
bustle and abyss – a child’s game
of I can’t see you, you must not
be able to see me – I’d sleep,
a blissful state of detachment.

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Moments of Glory

Went for a walk today –
pushed my chariot out the door,
faltered after it and set out –
a beautiful, sun-blessed day!

It was an act of independence –
defying shooting pain in shins,
a groaning hip,  an obstinately
bent spine – Carpe Diem, said I.

Two houses, three, I smiled
at passersby – “Beautiful day!”
our celebratory chorus – three,
four houses, freedom mine.

Five, six – I could see the corner
shops – half a block away – why
I bought this house – everything
close – until fated out of reach.

Then I felt it – that indescribable
shift in my spine, a warning –
shut down imminent – retreat!
Confidence melted into panic.

Now steps became a shuffle,
each foot dragged forward,
back curving in on itself, will
on full throttle – get me home.

Two houses more – you can
do it – husband stands at door
telling me to take my time –
No! No! Time is running out!

I stumble inside – find comfort
in the familiarity of my bed
think about giving into tears
then remember – the sun’s rays

generously washing over pale
housebound skin, the smell of
autumn, just before the cold –
a rare mid-November warmth

and I smile – a victorious,
proud recognition of how,
Nature offered a rare gift –
and I, for once, partook of it.

A Friend, Indeed

Friend, you guide
my brain-fogged,
somnambulist limbs –
like a mindless automaton;
I follow, barely registering
movement – grateful for
deliverance into the
fullness of day.

Once, I abhorred
your consistency,
your stifling repetition,
found your dependency
mind-numbing, soulless –
suffocated in your lack
of notoriety – called you
unremarkable.

Undaunted, you persist,
morally unbiased, life-
affirming, ignoring
lethargy’s blood-
sucking hold, lifting
me, comforting,
habitually reliable,
blessed routine.

Disability’s Rant

It’s not that I’m not open
to new perspectives –
I am aware of daylight
beyond these walls –
conscious that mine is
not the only viewpoint.

It’s just that the inflexibility
of this existence is unrelenting,
and I have come to see opposing arguments
in the bleak morbidity of aging –
am having doubts about the willingness
of skilled, principled, professionals
whose rigorous platforms require
energetic, sheltered, regard.

I am lacking confidence
in my ability to articulate –
sanitizing personal inkling,
disinfecting institutional
impotency.

What lesson have I signed up for?
How is it I’ve found myself,
mired in sterility,
shrouded in grey,
an unwitting student
in my own life?

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A Sorry State

Stubbornly, I follow
my desires and motivations
over the edge,  humbly
rediscovering
my sorry limitations.

Calling home, hoping
for a sensible response –
reliable, clear-headed –
(I should know better –
no one like that exists
where I come from).

Miss Vanity and Ms. Martyr
come to the rescue, with
Perfect baby, Spirited baby
and the Despondent One
in tow, along with
adolescent Asperger,
awkwardly incapable
of social intercourse.

Doubtful of their intentions,
certain of their impracticability
and suspicious of neglect
I pull back, angered,
threatening to exert independence;
I don’t need anybody
least of all, you people.

Miss Selfless smiles reassuringly
gesturing for my compliance –
she has everything under control
there is room for everybody –
I climb on board –
surprisingly comforted,
conceding assumptions.

I am embarrassed by my situation,
in need of repair…
Approach cautiously, I warn
it’s a steep state of decline.
My stories, exposed, overlap,
piles of debris cluttering
where hope should dwell.
This is not a place for children,
or the pure of heart.

I feel trapped, but don’t express it.
Ms Forever Up and Miss I’ll Pray For You
smile as if to say:
Don’t worry, Silly,
we’ll clean this up in no time.
And look after the babies?
And look after the babies.

Weariness begs me to surrender,
trust these dubious cons –
too overwhelmed and overcome
to care, resigned to repeat
the drama of the past –
fearing this is my lot.

Dissatisfaction niggles
Don’t give up –
there is more to aspire to
a greater dream to dream
give it time, give it time
and quit driving yourself
beyond the confines
of this current state
of dis-able-ment.

Sarcastically Speaking

Every good teacher knows that sarcasm is never a good idea when it comes to building relationships with students.  The same is no doubt true for all interpersonal connections, yet I cannot seem to avoid it at times. Take, for instance, the issue of an unkept kitchen.

Please understand that I am no longer capable of cooking and cleaning to the extent that I used to be, and therefore, rely heavily on my husband, so I have no right to complain.  That didn’t stop my frustration from pouring forth when, for the umpteenth time, I found the sink full of dirty dishes, the counters covered in crumbs and grease, and the stove top still bearing the pans from my husband’s last culinary foray.  I, who subscribes to the clean as you go theory, do not like to start my day (or any part of the day where I need to prepare food) with a dirty kitchen.  For the most part, I dig in and clean up his mess before starting anything new, in this case, to make a cup of tea.

Today, for some reason, it felt overwhelming.  Maybe it was the debris floating in the slimy, cold water in the sink, or the sticky collection of spoons and knives clotting on the counter – whatever it was, I wanted to nag.  Badly.

Nagging, however, is not my m.o.

Sarcasm is.

It suddenly hit me that my husband, the planner, the corporate problem-solver, the go-to man to get a job done (other than housework) is actually a closet scientist, and that what appears to be a disaster is actually an experimental breeding ground for his scientific study.  Arming myself with this sarcasm, I left the mess and retreated to the bedroom, waiting for him to come home.

I must have drifted off, for when I awoke it was to the sound of a loud pop and a cry of alarm.

“I just blew up an egg in the microwave!” he called from the kitchen.  “It was an experiment that went awfully wrong.”

Turns out there is truth in humour, even sarcasm.