Category: life

Vegas Vampire

Envision Vegas – the first time –
adrenaline pumping, palms itchy,
wide-eyed incredulity, and …

the most unreliable, stuck-in-the-mud
relative in tow, and no reservations made;
and while one wants to dive in the other

would rather be home knitting and
listening to bird calls than  traipsing
through costumed Elvis’ – glitzy hotels

are too taxing, so a more reasonable
accommodation must be sought out.
Add to that being stalked by a vampire

whose leering eyes suggest somebody’s
going to lose vital energy, likely soon,
and even though the 24 hour crowds

and lights, and bells, and musical strains
beckon, this party ends up off-the-beaten
track, in a non-neon efficiency – practicality

business number one, and Dracula has
checked into the same room – a guaranteed
killjoy… this is disability on New Year’s Eve.

(Image: www.horrorhostgraveyard.com)

A Sister’s Sin

Patience does not apply
in a family lacking ease,
nor is loyalty gifted…

my sister – a fiery red
corvette fuelled by hate
would slaughter kin

lived for the fight,
gleaned energy from
sinful behaviours

despite hard-work,
tasted power in attracting
meat – a fleshy cow –

processed sweethearts
with abandonment,
hardly caring, despised

public scrutiny – her world
a miniscule burlesque show
fluttering raw flesh inviting

scavengers – appeased out of
necessity – she shopped crowds,
possessed a light that shouted:

“Open for business” – dared
not endure loneliness, desperate
to annihilate the past –

her heart, a massive-winged
avenger, pummelled by
the memories of a brother

her twin – torn from her
by a deserting father – left
dying like an unwanted pest

an agonizing plummet
into an unendurable darkness
from which she sought any

infiltration, yearning to
pierce, to relieve, the musty
hold of her ground-up reality:

no virtue in patience,
no prize in loyalty
each woman for herself

(Image: insanityismyreality.deviantart.com)

Roommates

I’m living with a sometimes generous,
usually big-hearted, overly needy woman,
whose wants supercede consideration for others –
a princess who has it all, and still can’t get over
her father’s abandonment.

We’re living in an opulent home
with every possible luxury and it’s
always a mess – always disorganized –
because she expects everyone else to do
everything for her, and my compulsion to
fix kicks in and I want to straighten out this
space, but she’s flirting with new opportunities
as if they were younger men, desiring her money.

I try to work around her, pick up the pieces
of those angered by her self-indulgence, not
wanting to burden her with any of the responsibility –
it was a pre-stated condition of our co-habitation –
sifting through her clutter trying to discern value
from trash – everything loses its glitter in excess –

compulsion drives me deeper into the situation;
instead of admitting it’s not working out, I push
harder – like a stubborn teenager, unaware of the
consequences of my actions, entitled, going nowhere.

Unable to admit that I have no power, just have to
put up with it – it’s almost tearing us apart – why
have I taken on so much responsibility, assigned
myself to clean up all the messes, and at what point
do I cut my losses, walk away…and, can I even walk
away when I’m only living with myself?

(Image: isharequotes.blogspot.com)

Zoo Life

How else would you define us but a zoo:
this ragged attempt to appear socially fit?

I drag my children with me, expectations
formed from still life exhibits, picture –

perfect cameos of happy lives, poised
as any good television family might…

Who hasn’t had a rough ride, disembarked
and vowed never to repeat sins?  Hold on

to what you have kids, I warn; be wary of
life:  it’s what I’ve learned – tried to change

the tableau, inject creativity into freeze
frames; snared in webs of my weaving,

like the black widow entrapping my prey,
instinct releasing venom, plots spiralling

out of control; am prepared to wipe clean
the past, but stumble, lose grip, shamed

beg my daughters to look away, too late,
tension mounts, threaten to consume us

our dreams, the source of our imaginations
and I listen to the screams, helpless, until

one child takes up the cry, offers herself,
as I would have once, forces me to sit by,

worry my only companion, while she sinks
deeper into the hell of this artificially caged

confine; our connection lost – unprepared
am I, with all the wrong resources, clinging

to damnable passivity, alone, wretched,
guilt-ridden, afraid for generations unborn –

and as I turn away, in despair, I catch sight
of her, my child, revelling in her story, vital –

no crisis – just a brilliant young woman,
unbound by the restraints of this zoo.

(Image: obutecodanet.ig.com.br)

In Desperation

We are seekers,
wholeness our quest –
turning to experts for answers,
praying for a cure

fearful of the unknown;
prefer following over charting
a new course – passengers
positioning ourselves for salvation

grasping at clues, losing
ground, plummeting –
bottom, they say, is where
the healing begins.

We hitch ourselves to hope –
know struggle as a constant –
onboard, compliant, worship
professional advice, motivated;

caregivers are our pastures,
we overlook inconsistencies –
dare not doubt – climb
over obstacles, persevere

through red tape, and
when disease persists and
compassions run dry,
we resign ourselves

to a new course,
will embrace any madness
believe that a new set of eyes
just might turn our lives around.

(Image: betablog.org)

Appearances

Testing social waters –
that cherished state of interaction –
prone to revealing too much, learning

have been homebound, studying life
without a facilitator, now attempting to
penetrate invisibility – see me now?

gathering the salvageable bits –
minimal fragments of a once whole woman –
reaching out, reconnecting – mixed receptions

admittedly much has passed me by –
no amount of homework can undo the stain
of my cluelessness, I am slow, needing a driver

as achievement focused as ever –
would go back to work – my heart space –
bursting with eloquence, unleashing enlightenment

on adolescent ears:  tales of survival,
recovery from the depths of loss, except it seems
I am still growing, the few tidbits I’ve gleaned unusable

must be selective about my memories –
am met with disregard, my story, like a gunshot,
causes others to duck, not listen, lack of scarring

a disappointment for those expecting grand
acts of heroism; scars command respect – visual
metaphors telling a linear story – my journey, marked

neither by timelines nor terminal projections –
origins of disease unknown – defies medical
knowledge, research lacking – I am estranged

who dares to question beyond the trembling
exterior, behold the opportunity that has blessed me,
witness the gift of joy that comes with re-evaluation

when character overcomes strife,
and simplicity replaces frenetic ambition –
the outcomes of enrolment in this life class.

(Image: www.huffingtonpost.com)

Glass Caskets

What mysteries lie in ancestral roots,
what clues to illuminate the dysfunction
that permeated our familial ties, cursed
us with a pervasive sense of perversity?

We are a portrait of deviancy: still life
torsos, dismembered from birth, non-
conforming hormonal structures denied
reception in the aftermath of Victorianism.

An aunt, who despite her outer female
attributes earned the nickname Billy
tried her best to acclimatize to girlie legs,
distracted herself with industry, could not

bear the swirl of dresses, nor the reek
of men’s cologne, banished herself to
far off lands; followed a brother – also
optically illusive – knew himself as Liz,

adapted arms and legs of steel to bury
his essence, donned military rags, and
macho outbursts; failed to elude his
inner truth. Raised by this disembodied

woman, whose embittered cries echoed
through our hollow chambers, shattered
any attempts at compassion; we were
observers at a funeral, where the casket,

made of glass, held a lonely figure – head
and shoulders solely visible – all but dead,
suspended, like a science experiment gone
terribly wrong, abandoned, in a gel-like bath –

embalmed dysmorphia on private display.
Lacked the resources to understand the
complexity of their sufferings, too entwined
to be rational – ignorance blinded by shame.

Only now, in the light of current revelations,
is the depth of our misguided conclusions
made tragic – wish I could reach back through
time, adjust the settings to acceptance, but

lack the currency, have no resources, other
than these words, to communicate the sheer
brutality of discrimination – have witnessed
the bloodied carnage of authenticity oppressed.

(Image: Pinterest)

 

 

Internal Struggle

Onramp for freedom is just ahead
but all considered, I will not push
forward, am fragile, misinterpret
signs.  Add to it isolation – who
can blame me….

Move! Move with the throngs!
Set your intentions, correct and
change direction – take a tangent
even – future is just around the
corner…..

Wears me out; I am shattered,
descending, would rejoin life’s
celebration, be a sister, but this
disability shows no compassion…

Couple with feminism; get ahold
of yourself, move forward – there
is no wrong time – be in support
of something; leap….

This reality is disparaging; in
the aftermath, I have no fight –
lightheadedness sabotaging –
an added foe….

Be independent.  Righteousness
makes a good point of entrance…

Inability to motivate, emancipated,
confused on my own….

abandoning is not an option;
motor!  Want to do the right thing;
come on, turn the page…

…too taxing, paralyzing to
show up, catch up with friends
clueless about ME/CFS….

…don’t you care that people
are being exploited, refuges
fleeing, can’t you feel the need…

impatience possesses; I am
beaten, am legless, spinning

keep pushing….harness strength…

..faint without a stance…

…defy fear…

… desperate…

Clearing Corners

No more out-on-the-town bustles –
the late afternoon light fading in
my corner – focus now turned to
higher issues; try to keep company

with mindfulness – a worthy educator,
facilitating release – but my inventory
is too spun. Achieving a semblance
of completion, something to reflect

my life’s toil, would be welcome, yet
I fear my story is cooked. Guidance
might suggest I’m not alone, but
without my professional footing

I’m at a loss for identity, prodding
to find answers – a woman without
substance, grasping at what is mine.
Seems silly to think that breathing

might offer consolation for this no-
return-on-investment outcome; have
hit a wall, would rage if not numb, so
many parts of self lost in passage…

Midnight approaches and I am tapped
out – a social passenger hitching a ride
on hopelessness – flat broke, empty
(tried to dial up creativity – wrong#)

Contemplate sorrow, luck, temporary
breakdown’s, orchestrated scenes,
a lifelong inability to keep quiet (sorry
kids), a callous bitch – could never get

her to work in my corner, channel that
energy into fitness or financial success –
she just likes to stir things up, doesn’t
believe in peace of mind, jolts me awake

out of my comfort zone.  Maybe I need
her now – forgo relaxation and surrender –
to shake this inactivity, give a hand up
to those repressed, forgotten selves –

get her to lift me out this self-conscious
mire – she doesn’t care about feelings –
markets herself with confidence, breathes
assertiveness, knows her own business…

can you see me sitting up a little straighter,
composing myself in the light of this new
possibility, readying myself to relaunch –
reconsidering my stance on corners?

There’s remodelling to be done here –
and orienting to the new will take a bit,
given my age, but I’m willing to concede
that there is community to serve, and

that as long as human rights are being
violated there is a place for compassion,
and no town is immune to need, so I’d
better get my bustle on and start painting.

( Image: lokeshsomu.blogspot.com )

Language Is Not The Barrier

Bought tickets once for Spain,
planned to escape the fading
autumn golds to find brilliance
of Spanish hillsides, vibrancy
of villages, radiance of smiles.

Succumbed, instead, to illness
a fate whose grip defied urges
to flee, thrust us headlong into
the ravages of a blustery winter
remorseless in its stormy rage.

Only dream now of exotic locals,
of sun-baked vistas and cobbled
streets, of busy marketplaces and
houses tucked behind hidden doors
where mothers gather their broods

Motherhood, I imagine, universally
driven to offer comfort, provide
security, no matter the resources –
a call to protect the inner richness
of the family – places that draw me.

Envision plates of home cooked
delicacies, offerings delightful to
the eyes, aromatic, appetizing, and
likely beyond my ability to digest –
this disease imposing sensitivity.

Travelling is a catalyst for change:
exploring cultures, encountering
residents, inspires reflection, the
magic of communicating without
words – languages no barricade

I am marred now, an ungracious
guest – such is the sentence of
this disability – unable to bear the
disappointment on the faces of
those who would extend welcome.

(Image: www.expanish.com)