Pity Party Over Here

Methodical might be successful –
ask for assistance; help granted
pass over fixation;  will not stir
this appalling head to toe disease.

Dependability would be welcome –
I beg for it – but this rodent-like
Illness will not acquiesce, runs
amuck, operates at will – not mine.

I can allude to my needs all I want,
reach out for loving, but perspective
is lacking when I am vertically unable
to manipulate, shaken, appear the joker.

Illness is a trickster – labels me freak,
this vessel’s malfunctioning limits
the broader vision – I shudder to think
this is what life has amounted to.

Language Is Not The Barrier

Bought tickets once for Spain,
planned to escape the fading
autumn golds to find brilliance
of Spanish hillsides, vibrancy
of villages, radiance of smiles.

Succumbed, instead, to illness
a fate whose grip defied urges
to flee, thrust us headlong into
the ravages of a blustery winter
remorseless in its stormy rage.

Only dream now of exotic locals,
of sun-baked vistas and cobbled
streets, of busy marketplaces and
houses tucked behind hidden doors
where mothers gather their broods

Motherhood, I imagine, universally
driven to offer comfort, provide
security, no matter the resources –
a call to protect the inner richness
of the family – places that draw me.

Envision plates of home cooked
delicacies, offerings delightful to
the eyes, aromatic, appetizing, and
likely beyond my ability to digest –
this disease imposing sensitivity.

Travelling is a catalyst for change:
exploring cultures, encountering
residents, inspires reflection, the
magic of communicating without
words – languages no barricade

I am marred now, an ungracious
guest – such is the sentence of
this disability – unable to bear the
disappointment on the faces of
those who would extend welcome.

(Image: www.expanish.com)

Prayer for Purpose

If transformation is my path,
then let me be in charge –
reverse this introspective
lull, cease this bystander’s
status, build new awareness,
embrace the fullness of spirit.

Give me legs that I may walk
amongst the gathering voices
brush shoulders with anti-hate
protestors, find my wings, wear
the cause to end racism, sexism,
fear as any spiritual crusader does.

There is need in the world –
extends beyond individual
agendas, compels us to play
a part, cut apathy in favour of
donning a coat of conviction,
deny ties of personal comfort

How can I help; drink from the
well of human connectedness
to quench this deep-seated
disparity; am confined to a
legacy of words, legs inert,
burdened with soul’s passion.

(Image: www.indianweekender.co.nz)

This Big Old House

Bought myself a big, old house
with a myriad of rooms; needed
it to accommodate all those I
wanted to please – it’s what I do.

Learned it living in a house full
of children – adults that were
children – do it to compensate
for never having been a child.

Raised my own family, bent
on making sure they had
their space, their autonomy,
they’re gone now, still can’t

quit – spend my days cleaning
up in the aftermath: so much
dirt to launder; need it to be
pristine so they’ll come back.

Bought this old house partially
furnished – remnants of lives
before me – the crumbs of past
denial hardened now, panicked

to imagine what petulance has
been drawn to their neglect,
becoming obsessed about the
infestation, erasing the past

confine myself to the main floor,
ignore the filth on walls – crayon
figures pleading for help – until
daylight reveals truth, and leaves

me no options but to toil harder –
cannot let these patterns repeat,
need to save the innocents –
this work is never done – refuse

to see that I am not responsible
for it all – project rage onto my
spouse (latest in a string of
targets) for the sin of taking

pleasure, when I cannot relax,
(everyone knows how to unwind
but me, Super Woman) feel the
compulsion to flee, but disability

allots me no recourse – thank
goodness for this big old house –
places to hide, be forgotten –
if it wasn’t for the old crone

who haunts my dreams, drags
me out of my spinning misery
forces me to extend myself,
meets me at the edge of calm

where tranquil waters soothe
my inner churning, and where
kindred spirits come to play,
and connections are real, and

I can roam freely, unattached,
until illness brings me back –
reminds me of my limitations –
that I have been eternally lost

in a house with many rooms
aimlessly wandering in hopes
or renewal, lost for so long
that I’ve forgotten how to let

go, and only in my dreams do
I find the freedom to walk away
and reclaim the life that awaits

(Image: bigoldhouses.blogspot.com)

 

Balance

Contemplating new life –
he, gainfully employed,
promotes change eagerly –

years of isolation render me
dubious, aspirations limited
to a cup of tea, fear dining out

his palate embraced by any menu,
mine a complex set of restrictions,
condemned to serial disappointment

undaunted by my disabilities, he
ventures forth, seeks solutions
with godlike inspiration commands

possibility, accounts for idiosyncracies
pursues alternative options, is a master
of ensuring that dreams do come true.

Chasms

Old friend, I would visit you
but this compulsive state of
martyrdom delays our reunion,
then you slip my mind.

You wouldn’t recognize me –
this mask I wear, a product
of the toxicity that I play host to,
puts a lid on my kind-heartedness

I want to be helpful,
but carry a burden of failures
ghosts from childhood home
that plug my memory.

I have hurt so many,
neglected, now lost, family –
these useless ties are shadows
lurking, directing me –

I am sensitive, wanting
to exile the negativity, have been
taught to be considerate
but can’t erase the inconsistencies

Spend too much time
browsing, delivering a fragment
of the torment that lies within
am over involved with self

Really want to be my best
in search of something greater
but today the frustration
is too raw, am at a loss

Old friend, I have reverted back
to dependence, manipulating,
am mentally unstable,
cannot find closure

in all the scattered pieces
all I have to offer are bits
disappointing, really, stored
memories that menace

Believe me when I say
I am working hard, want to start
fresh, have a goal in mind,
have not forgotten you.

but am running out of
options, frustrated, can’t catch
a break, as the distance
between us widens.

(Image from: blobsnbubbles.wordpress.com)

Qualifier

Hurdles line up
before me, am I
at the starting gate?

Who will hire me?
Will I be able to learn?
Can I leave the house?

Each bar set higher,
formidable tasks
to achieve, doubting..

state of dependence,
chronic ailments,
undercut propulsion..

have cleared course
of busy, overworking
professional attire..

have the motivation
to rejoin the race,
but legs lack spring;

picture myself tripping,
tossed, sunny side up,
too outdated to win.

(Image: www.postonline.co.uk)

 

Horizontal Reflections

Breaking through loss –
alone without independence –
reach out for former lover,
wanting to renegotiate the terms
of our disruption,
am permanently horizontal, restless,
in this unexpected life.

Reckless youth
torturing me – I am vulnerability
landed, past mistakes rippling through –
need to find a private place away
from myself where reassurance is
a dinner mate, and fear
otherwise engaged.

But the past cannot be
retrieved, and there is support
in the present, if I let down
this guard, I’ll feel
the security
of love.

(Image: parisapartment.wordpress.com)

Suspended

What options for long term care?
Will life linger, abandon me, alone?

If unconditional love exists, then let
it talk to me, gesture desire, offer

support – safety only comes with sleep
despite this troubled unconsciousness;

oversensitive, naive perhaps, will make it,
if only I push outside the comfort of my bed.

suspicious of following, consuming, believe
that outsiders have forgotten me, worried –

security lies in the hands of loving, attentive
companion, otherwise; trying to trust life.

(Image: perfumeonherpassport.wordpress.com)

Portrait Of A Disability

Accessible living –
exercise of uncertainty –
parking lot nightmares,
doorway barricades,
shopping intolerable.

Separate sleeping
quarters – no access
to slumber; more mishaps
than a puppy; broken,
despicable, disconnected.

Inherently wise hover over
disclosure of disease,
claim proprietorship,
push acceptance of
causal theories.

We are innocents,
tender-hearted,
veil our hurt, refuse
to be driven down,
wholeness buried.