disability · health · ME/ CFS · mental-health · poetry · writing

Isolation’s Hold

Disability covets isolation –
this stripped-back, box-like state.

Rustic serenity, with room
to breathe would be preferable

but old memories creep in, and
lack of self-worth leaves the door open

phantoms of former torments
unwanted visitors, shadowy

invaders target loneliness,
misconstrue lack of health

for neediness, prey on weak –
hearted, presume incapability.

I am unwell, not unwanted, effort
to protest ignored, I grow wary of

fellow travellers, am vandalized by
nightly attacks, attempt to reach out

aim for strength, logic, clarity,
dial-up past abuse instead, cannot

fathom the purpose of unsolicited
persecution, grasping at isolation.

(Isolation’s Hold was first written in June of 2017.  I am resubmitting it here for Reena’s Exploration challenge: isolation.  Seems to me is also reflective of the times.  Image from personal collection.)

culture · disability · health · ME/ CFS · poetry · writing

Insecurity Resolved

Unnerved by invitations –
isolation equates with security –
fear the onslaught of questions,
the unleashing of a torrent –
emotions flooding, crashing
through this gated illusion –
best to withdraw.

Withdraw my best
when gated by illusion
crashing, emotions flood –
need to tame this torrent
question the onslaught, brave
insecurity, negate isolation
embrace the invitations.

(Tuesdays, I borrow from my Twitter poems. Follow me @Vjknutson.  The first stanza is the original poem.  I left it here,  then unsatisfied, decided to turn it upside down and create a new outcome. .  Image from personal collection.)

change · disability · ME/ CFS · poetry

Watery Stagnation

Knee-deep wading
in electric yellow waters
of mud-laden stream

the coveted prize –
a mutated version –
Christ’s fish hovers

arms reach away –
have touched it –
recoiled out of fear.

Status is stagnation –
movement stymied
current lacking

Only the constant
thrum of winged
pests belligerence

punctures stillness,
irritates – its hard
shelled turquoise

body reminiscent
of Halcyon days,
Caribbean sunsets.

What evil virus has
cemented me here,
strangled nomadic

dreams, mired me
in polluted waters
imbued with cruel

uncertainty, faith-
less, immobilized
by incomprehensible?

(Watery Stagnation first appeared in August, 2016, and is edited here.

aging · art · change · creativity · disability · health · Humour · poetry · writing

The Queen Is Missing

She’s not in the kitchen
presiding over preparations,
thriving amidst the chatter,
tutting away thieving fingers.

She’s not in the classroom,
mastering subjects,
upholding order,
ruling with charitable hand.

Nor is she at social affairs,
head bent in rapt attention,
smiling cordially,
gracious with compassion.

The Queen is missing –
the poise and composure
that marked her carriage
has vanished without a trace.

Don’t ask the old woman
tottering down the lane,
stooped and stumbling –
she’s not all there.

Her mind’s a trickster,
her ego a petulant child,
unwilling to concede wrong –
she’s merely the court jester.

(The Queen is Missing first appeared August of 2015.)

 

aging · disability · ME/ CFS · poetry · writing

All But Comatose

If death is sleep
then surely I am close –
body leaden
refuses to budge,
brain a slow crawl

I would feel something –
remorse, fear, confusion –
but the weight of slumber
has numbed senses,
reaction sludge

only a drum, drum
of heart harkens
life’s continued spark –
What thread of will
keeps me hanging on,
surely sleep preferable?

(Myalgic Encephalomyelitis is characterized by exhaustion after exertion.  The fatigue is systemic. )

adversity · aging · change · health · ME/ CFS · poetry · writing

Even Trees Fall

Majesty is a tree
quiet strength
and vulnerability

no more sheltered
from acts of nature
than I – none

impenetrable,
although youth
believes it –

days when strength
equates with rigidity,
resistant arrogance

A right fighter, was I,
iron will, in control –
never measuring up

such foolish nonsense –
destructive, no doubt,
took illness to educate

recognize courage in
withdrawal, merits
of inviting understanding

physical limitations
birth potential –
gracious acceptance

surrender of struggle
open, vulnerable,
rooted, like a tree.