Category: ME/ CFS

Rapture

It’s odd, this gift of solitude.  Perched beside the canal that runs behind our site, I affirm my connection to the earth, give thanks for this place and moment, and acknowledge that I am a part of all that surrounds me.   The late afternoon sun casts a glow on the foliage across the way lighting up the mirror-still water with vibrant reflections.

Two winters ago, I was fighting to breathe as temperatures dropped below zero. Trapped inside my home by impassible walkways, I was desperately trying to stave off depression.  It’s hard to be hopeful when isolation is imposed.

“There are no absolutes in life,” a professor once told me, and I think of that now – how just when we think our sentence has been handed down and sealed, an opening appears.  I have been most fortunate.  I savour each moment this current state of solitude offers.

Heron’s watchful stride
invites reflection, respect –
winter’s solitude.

(Kim is hosting in the dVerse pub tonight with solitude being the prompt for our haibun.)

Maybe

Maybe I just needed a new perspective –
like the famed Hanged Man of tarot –
committed to some deep, internal need,
willed a horizontal shift, landed with intent.

Maybe it is not my legs that are disabled,
but a soul longing to escape the continual
discord of perpetual motion, a never-ending
to-do list of the success driven persona.

Maybe there is a greater purpose for being
that is not encompassed by outer drive –
a mysterious meaning that is revealed only
in the quiet stillness in which I now dwell.

Maybe I have been called to a personal
pilgrimage – a Camino of sorts, a crusade
of spirit designed to cleanse and enlighten –
the journey is certainly arduous enough.

Maybe it is through acceptance, finally
having released  a need to control, move,
achieve, accomplish that I am able to
embrace the true lessons of suffering.

Maybe this cocooning is an act of Grace
demanding surrender before the actual
transformation occurs, and I will emerge
legless or not, winged and ready to soar.

Maybe, just maybe, this stripped down,
barren existence is not a penance for
shameful living, but a desert crossing,
offering re-alignment, hard-fought peace.

(Maybe first appeared here in February of 2017, three years into my journey with Myalgic Encephalomyelitis.  I am posting it today as it fits with this week’s theme: upside-down.  Image is the mirror reflection of trees across the canal – from personal collection)

Foundational Flaws

Proficient at constructing frames,
I plaster over old mistakes,
convinced that survival equates
with marble – am I not a living
example of metamorphosis?

Yet, my doorways lack locks
and there are intruders in
the basement – confidence
dissipates as rage heightens –
optimism evanescent.

(Penned for the prompts of Ragtag Community – marble; Fandango – plaster; and Manic Mondays Three Way Prompt – evanescent.)

Ride Along With Me 2

Passenger, I am –
delegated to back seat –
input seldom asked for,
even less appreciated.

I ride along.

Passenger, I am –
at best can only speculate
about direction – limited
sight lines here in the back.

I am not driving.

Had a driver once,
motivated and self-assured –
could sit back and relax –
until his mistress climbed in.

Who invited her?

Driver #2 is handsome,
but lacks directions, so
no one is paying attention.

Others ride along too.

There’s a high school dropout,
who likes to pick his parents pockets,
and get boozed up on Friday nights.

How did he get here?

Ride along, if you wish, but be warned –
this vehicle is outdated, and likely unsafe –
we’ll just have to squish together.

They don’t make ‘em like this anymore.

Oh yeah, my crazy sister is aboard too,
Or maybe it is me, ‘cause I swear
I saw the ghost of another –
bent on haunting me along the way.

Probably a good thing I’m not driving.

Night is falling, and we stop for gas,
and the neon lights remind me –
if I’ m going to make a break,
it’d best be now.

Or, I could find a new driver.

What I put God at the wheel?
What if I said: God, give me direction?
Would I have to sit up straighter and pay attention?
Would the adulteress and the sloth have to leave?

Would my vehicle become a golden chariot,
powered by horses with wings of white?
And would we fly above the obstacles,
straight to the Promised Land?

Fantasy, unfortunately –
for now, I’ll remain back here,
until life restores vitality,
and my head is clear again.

Then I’ll park this old vehicle.

And get a new model with GPS.

(I’m revisiting old posts, editing, and re-introducing some of them.  Ride Along With Me  was written in November of 2014, six months after being bedridden with ME.  It was inspired by a dream, and understandably, represents a woman who has lost everything, trying to make sense of life.  I thought it is actually quite fun, and may have a wider application, so I resubmit it here.)

 

 

The Same, But Broken

Fragility blindsides –
I am woman.
Strong.

Courageous, some say –
a sentiment beyond my reach
having not chosen this state.

Fragility is pervasive –
body reduced to miniscule fibers,
stretched, torn, bordering
on broken.

Overwhelmed, mind obsesses –
will neither organize
nor let go…

If only I could let go…

I am weeping
and not

Weeping from frustration –
immediate impossibility –

Unwilling to weep for totality of loss –
it is beyond me.

Illness is regarded
with disgust,
indifference,
repulsion

There is no equality for the disabled

And, yet…

Rawness –
stripped of busy-ness –
renders me as any other

A soul yearning for a meaningful existence.

Maybe illness is the great equalizer.

(The Same, But Broken was first written in December of 2014, when I suffered from severe Myalgic Encephalomyelitis.  It is revised here.)

Desert

Take me to the desert
with mountains at our side,
walk with me in shadows,
let nature be our guide

We’ll stroll amongst the cacti,
pay homage to the quails;
take me to the desert
help me gather tales

The seasons are passing,
we’re running out of time;
take me to the desert
to heal this heart of mine.

***

By the time you read this, Ric and I will be on the road, headed south.  Texas and Arizona proved to be places of healing for me last year, and I hope that this journey will continue that process.

 

Heavenly Day

Sun slices through slumber –
Day, wrapped in cerulean, beckons.

Not an early riser, I balk, until
sensibility intrudes, argues
autumn’s passing –

I concede, break out,
push limitations –
a sexagenarian rebel.

Later, I crash,
golden lustre
enveloping me –
halo-like.

(Kim is hosting at dVerse pub tonight and challenging us to write a quadrille – poem in 44 words – using the word early.  I am also linking up with Ragtag Community for their prompt:  lustre.  More photos and information about this outing are posted here.)

 

Dis-abled Self

A wounded creature, I circle the pack;
A laggard seeking inroads, missing cues;
A social wanna be without the smack –
This fogged state a waning of my hues.

My path a heartless road through blinding snow,
And I without a map or coat, alone –
To ask for help, a degradation – No!
Tis arrogance and stubbornness I own.

I’ll bide my time on sidelines crying ill,
Bemoan this wretched fate and limp along;
Til self-indulgence wears thin, then I will
By humble act, declare I do belong.

And in the end no consequence is worse:
Than mulish woman bearing no self-worth.

(This modest attempt at iambic pentameter is brought to you by the promptings of Frank at dVerse.  Hope it wasn’t too painful.)

Genetics

I search for father
in this pain, recall
limbs wrapped,
liniment-lathered,
how he cried out
relief beyond reach

judged his suffering
as emotional –
a karmic penalty
for a life of tyranny –
compassion lapsed.

Now, I fight with legs
that will not settle,
arms that ache to bone,
moments inconsolable
spiralling into moodiness

seems I misunderstood –
overlooked the possibility
of genetics – pain compounded
by the guilt of impotence

curse my failure
to express sympathy,
offer comfort – the habit
of retracting into defensiveness
enacted till his death –

softness not a component
of the barriers that stood
between us…