Not My Brother’s Keeper

I cannot bear the responsibility
for my brother’s pain, separated
as he was from my mother, raised
in his own kind of hell, estranged;

could not save him from himself
even if I tied him to me, carried
him by my side, bore his shame,
supported him by finding work.

I would just be trying to resurrect
old dreams, choosing to follow
already trodden paths, repeating
patterns of partnering with failure;

stir up memories of abuse, relive
the discomfort, castigate myself
anew for not asserting propriety,
contemplate revisiting the old.

No, I am not my brother’s keeper;
cannot right what has been lost;
only in looking forward can we
hope to bridge our familial ties.

(Image:  quotesgram.com)

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Absence

Slippers, perched at night stand,
twitching impatiently,
mark the absence of feet,
cannot appreciate the meaning
of unruffled bed covers.

Abandoned, a coffee mug
bemoans its curdling contents,
complains of thick brown lines
contaminating its porcelain shine,
has not noted absence of hands.

Chair, pushed back from desk,
in partial rotation, sits awkwardly,
commanding attention, disturbed
by its misalignment, has not thought
to ponder absence of body.

House, uncomfortable with silence
creaks unnaturally, loudly voicing
objections to the absence of footfalls,
automated machinery and incessant
rings, beeps, and chimes of technology.

I try to reassure them that the absence
is only temporary, that the man whose
presence so strikingly fills this space
will return,  hope they cannot read
the apprehension in my tremulous heart.

Is Daddy Dead?

Tucks her granddaughter in,
gazes into wide blue eyes,
flashes back to another girl –
now grown – apple cheeks,
and an unruly thicket of hair.

Nostalgia is shattered as
the child smiles back, lips
betraying a trace of another –
once father – whose absence
clouds the old woman’s heart.

She holds the child closer,
reassuring her undying love,
cannot not shake the echo
of words spoken only that day:
Kayla’s daddy always picks her up.

Told the teacher her dad is dead;
a reasonable conclusion for a
young mind unable to articulate
the questions in her heart: why
his name is only ever whispered.

Tries to draw his picture, talks
of missing his cuddles, surely,
cannot remember a man who
left before she was two – the
grandmother prays silently.

What will they say when she asks?
Niceties about how he wasn’t ready?
Leave her to believe she is somehow
lacking, unlovable, when in truth
it is he who is incapable of loving.

Chases women like cotton candy,
three or four a day, cannot help
himself, an internet-driven obsession,
uses his daughter’s picture as bait –
perhaps she is right, her father is dead.

 

 

She is Ready, God

Ushering the last of the condolences out,
she turns and slowly shuffles her way back
down the grayed barren, institutional halls –
a shock of white hair bent over metal legs.

She pauses at the doorway – hesitates, feels
weight descending – the finality of her loss –
recalling the years of companionship, how
they were the Ma and Pa for staff and alike.

Wondering who she is now, willing herself
to pass, once occupied, now stripped bed,
the abruptness of silence accosting frailty –
at 88 she’s survived three husbands. Alone.

Laboriously, disrobing, hangs her mourning
dress, unrolls stockings past swollen calves,
winces at the pain of bloated feet, stiffens –
wills past the stark emptiness once more.

Routine carries her through nightly rituals,
and numbed with weariness, she slumps –
a bed-for-one poor remedy for what ails –
she turns to the wall – shunning harshness.

Tomorrow, reassurances and guilt-ridden
faces will hover over the arrival of another,
erasing memories, eradicating familiarity –
Too soon! she cries to unheeding darkness.

Take me too, she pleas to her unseen God.
I’ve had enough! But like the dawn she’ll rise,
comply with changes, adapt to new tides –
find her compassion, forgo self-indulgence.

She is awe-inspiring, this mother of mine,
a tireless sentinel of peace, selfless crusader
for love – acceptance her chosen weapon –
having navigated unimaginable adversities.

The buoyancy of her steps, now subdued,
the flames that framed her face – symbiotic
with passion – now extinguished, age spots
disguising freckles – yet her smile remains.

Do not mourn my passing, she instructs,
know that I have lived fully.  I do, I respond,
wishing her an effortless transition, silently
commanding courage, offering up a prayer:

May the angels that receive her wear red shoes,
and may they whisk her away in the flourish of
a big band chorus, inviting her to join the dance –
sprinkling the essence of her beauty as they go.

May she behold – clarity of ecstatic revelation –
the light that she has spread in this lifetime,
witnessing the masterpiece of her existence,
understanding for eternity, that she is love.

 

 

Losing My Sister’s Daughter

I was nineteen, and just newly married, when my sister
was diagnosed with cancer – and given one month to live.
She had a daughter, then eleven, that she’d dragged around
from man to man, sleeping on couches, never knowing where
tomorrow’s meal would come from or if they’d be on the run.

Take care of her, my sister asked, I know I can count on you.
I’ll take care of her, I promised, but then my sister survived,
fought the cancer, defied the ravaging effects of chemotherapy
and found more men to carry her through, became mistress,
housewife, and continued her legacy of heart-break drama.

I brought her daughter into my home, loved her, as best I could –
a long way from being a mother myself – ineffectually addressing
the needs of a child born into misfortune, destined for worse.
She rebelled, pulled away from the inadequacy of the adults
around her, and sought chemicals as her parent of choice.

Her father took her in, a man whose short-lived existence
in her life spanned only two years, and who had moved on,
married, secured a pension, and had a wife and more children.
She delighted in the discovery of sisters, idolized this sudden
father-figure and projected suppressed rage at the stepmom.

By fifteen, the streets became her home, and when intervention
threatened, she ran, took up residence in the big city,  where
she met a man with money, and a penchant for young woman
and cocaine, and when his seed took hold, he married her,
and she had hopes for a brighter tomorrow, made promises

neither would keep – she returned home in a blizzard,
bought a ticket with borrowed money, arrived with no shoes,
no coat, and a body full of bruises – he’d beaten her in a drug –
induced furor – she was six months pregnant.  We cried,
held her to us, and delighted in the birth of her baby girl.

My sister’s health slipped again, and I, now a mother myself,
reached out to the young woman, my niece, and her child,
but she kept me at arm’s length – You are not my mother,
she’d say, and reluctantly let me in to her run-down rented
shack littered with over-sized dogs and burnt out men.

While her mother lay dying, she found a man willing,  loving,
and she returned to school, and finished her high school
and went on to gain further job worthy skills, and we all
breathed a sigh of relief and celebrated the future and
forgot – perhaps too quickly – her ravaged past;  believed.

I’ll look after her, my final words to my sister’s final breath;
a vow I could not keep.  My niece stopped answering my calls,
and by the time her man saviour threw up his arms, declared
he was done, my own house was burning, and I had no
ladder that would save us all, and so we lost one another.

When Children’s Aid found me, I was trying to rebuild,
mothering six teenagers – three of my own, three his –
she’d told them I’d help; take in her child, now adolescent,
and give her a good home.  This great-niece arrived,
underweight, malnourished, with big doe eyes
reminiscent of her mother’s and her mother before her.

The fragility of my family structure crumbled under the weight
of yet another, frequently abandoned, now distraught child,
and while our foundation shattered, she was swept up
by the capable arms of another mother, and adopted,
and my sister’s daughter – the one I let get away –

she lives on the streets, exchanges flesh for heroine.
has been rescued twice, but always returns, her sanity
tarnished, paranoia replacing common sense, she
exists between highs, no longer reaches out – she’s
robbed us of her trust – forever we are broken.

If I could do it again, would I bind her to me,
take her in my arms and not let go, until she understood
the truth of her existence, the neglect at the arms of her
mother – never emotionally stable – and the failure
of her aunt, ignorant and judgmental, a pretender?

Could I have saved her from herself, from temptation,
educated her about poor choices when it’s all she’d
ever known – all I’ve ever known – women as victims.
Our life was a carnival ride; we the side-show freaks,
captivated by the lights, drawn in by the crowds

and the smell of cotton candy – how we longed
for the sweetness of caramel, the taste of sugar
on our tongues to erase the bitter that lingered
from all the lies, deceptions that entombed us,
smothered good intentions, buried us alive.

There is no going back, rationality tells me
and yet the past thrives within, and I, sometimes
functional, oft times paralyzed, stumble through
the guilt wrought memories, crying with impotence
for a life lost at my own hands – an oath broken.

 

Disability’s Dilemnas

Clutter defines my surroundings:
accumulation intended to simplify
only complicates, suffocates.

I am roommate, burden, dependent
confined to a singular existence
no longer lover, wife, companion.

While I lament the past –
ghosts of horrors and indecencies –
he drinks to forget lost dreams.

We have vowed to mend the cracks
carefully secured our footing
and yet our foundations rots.

Is it our over-active need to please
or the cold civility of our interactions
that causes us to withdraw?

My mind drowns me with shoulds
that my body can’t possibly fulfill,
guilt flooding my conscience.

How do we reconcile this distance
imposed by so much tragedy,
right the impotency of loss?

Life rolls on and I with it
humour and meditated calm
wrangling doubt and criticism.

He wears the projections
of my dissatisfaction: unresolved
remnants of old wounds resurfaced.

I can no longer ignore my needs
and reel at the mounting imbalance
grasping for sustenance and equilibrium.

Pulling away, I stubbornly proclaim
self-reliance, hindering progress
endangering self for dubious promises.

These life-altered eyes perceiving
only disappointing, unpalatable options
grasp for an end to this perpetual ache.

I am lost, disoriented, tired
communication clouded by fear
I hardly understand myself.

There is no solid footing on
a voyage as rocky as ours,
no answers to allay uncertainty.

Now is not a time for walls,
tenderness alone will guard our hearts
and patience lighten the way.

A Child’s Grief

I didn’t cry when you died in that fire,
you and your sisters and brother.
I didn’t cry when we saw the images on the news –
the charred remains of your house,
four stretchers with black tarps being carried from the scene.
I didn’t cry when we all crowded around the coffin –
one built for four – your bodies reduced to nothing –
family members wailing in disbelief.
I didn’t cry, because I couldn’t.

Your bright eyes haunted me –
that impish smile of yours
cutting through my soul
taunting me, as you always did –
your quick tongue and high energy
dancing around me, making my head spin –
raising my ire until I could take no more.I wish you were dead, Billy!
I’d said it out loud.
Said it in front of everyone.
Said it with spite and meant it.
Said it, only days before the fire.

I know they know.
I can tell by the way they all hold each other,
and cry into their handkerchiefs
and don’t look at me.
I can tell they know it is my fault.
I know it is my fault.
I didn’t really mean it, Billy.
I didn’t really mean it, God.
We were just playing around.
Billy and me, it’s how we are.
We were just fooling.
Billy’d always make me mad,
then we’d make up – everytime
I swear.
Please God, make it not so.
I won’t fight with him anymore, I promise.
I only fight with him ’cause I like him.
You know how it is with boys and girls.
Billy’s my cousin.  I love him.
Please send him back God.
I’ll be good and learn to tame my temper –
Mommy always tells me to watch my temper –
I’ll be good, you’ll see.
I didn’t mean for you to kill all of them –
well…I didn’t really mean for any of them –
it’s just something you say –
when you’re ten and don’t know any better.

The Same, But Broken

It is the state of fragility that blindsides me.
I am a strong woman.
Someone once told me I was courageous, but I cannot see it –
I have not chosen pain, grief,
illness.

The fragility is pervasive –
My body feels reduced to miniscule fibers:
stretched and torn, on the brink of brokenness.
Mind, overwhelmed, obsesses, but will not organize
or let go.
if only I could let go.
If you could see me I am weeping and not –
weeping from the frustration of the immediate impossibility
and unwilling to weep for the total loss.
It is beyond me.

Outside these walls life continues
and regards me with disgust/ indifference/ repulsion.
There is no equality for the ill and disabled.

And, yet….

In this state of rawness, stripped of “life”,
or rather, busy-ness,
I am as any other –

Just a soul trying to having a meaningful existence.

Maybe illness is the great equalizer.

(Image: background-pictures.picphotos.net)

 

 

 

 

 

 

Adjusting to Life with ME/CFS

(Originally published October, 2014)

The news from the doctor was not so good today, or maybe it is that this news was no different from past visits, but my mind can only absorb the hard stuff in stages.

“I seem to be getting worse, not better.” I told her.

“That’s how it is often how it is with this disease,” she consoled. “Sometimes you have to hit bottom before you start climbing back up.”

th.jpgI read my growing list of concerns: sleep remains a problem; eating is often accompanied by pain and abdominal swelling; I have painful swelling in my groin; breathing continues to be difficult; and my legs are unreliable.  Headaches, heart palpitations, sweating when upright, dizziness and flu-like symptoms.  I shake if I try to do anything standing, such as chopping vegetables.  I feel like I’m not getting anywhere.

She nods with each item, recording it in her files, and occasionally asking for clarification. “All typical symptoms,” she attempts to reassure me.  “Set a timer for standing:  try seven minutes.”

“Barely time to prep food,” I mutter.

“Buy food already prepared,”  she suggests.  “And make sure you are sitting with your feet up for meals.”

“Not the table?”  Eating at the table with my husband was the one bit of normalcy I was trying to hold onto.

“Do you have a lazy boy?  Try using it for meals.”  I do not have a lazy boy upstairs.  I will have to eat in bed.

“Set a timer for phone conversations and visits; they are also exhausting.”  I have noticed.

I have been tracking my daily activities, symptoms, and energy levels.  She scans my past four weeks:  nothing but chaos when I examine it.

“I see T.V. quite a bit.”  she shakes her head.  “T.V. is too draining.  Limit it to one hour per day.  Preferably commercial-free.  I’d rather see you writing than spending time on T.V.”

“It is a lot of noise,”  I agree.

In answer to my unasked question, she continues:

“Lying flat with your eyes closed is the best.  Listening to soft music is okay, and maybe books on tape if reading is difficult.  I also think it is time you consider using a walker.  Definitely a wheelchair when you go out anywhere.”

“Will I get better?”

th-1.jpg“In a year you might see a return of energy, but not likely more than twenty-five per cent – hardly enough to consider working.  It takes time.”

The crushing in my chest when I leave is emotional.  You will have to grieve the life you have lost, I remember my therapist saying.  Today, I understand her warning.

Home again, I crawl into bed and try to breath through the heaviness that bears down on me.  Sobs release some of the oppressiveness, but I know it will linger for a while.

Healing is a shift in perspective, I always used to say.  Where is the new perspective here?

Well, I tell myself, Look at the bright side:  I won’t have to worry about wearing make up for a while, so my skin will get a break.  And I’ll have time to let my grey grow in without anyone noticing.  Think of the money I’ll save on clothes.

My twisted sense of humour always comes out at the worst of times.

If talking tires me, then maybe I’m going to learn to be a good listener.  That can’t hurt, right?

And wait!  Didn’t she say she would actually prefer it if I wrote instead of watching television!  You mean, maybe for the first time in my life, writing can become a routine and not an ocassional self-indulgence?  th-2

Could it be that in the very moment I lose my legs, I gain wings?!

Ah, life!