Attack

Compromised,
scaling a steep
dangerous
cliff wall

desiring relief,
a sign to indicate
a turning point
an exit

nothing worldly
can calm anxiety
uncertainty
life on hold

kindness
warms, reassures,
cannot counter
looming reality

stifled, begging
willing to deal
response absent
pleas hollow

surrendering
to fear is not an option
strength called for
and courage

love and compassion
the only sword
of significance
battling disease.

(May 12th is Myalgic Encephalomyelitis Awareness Day.  M.E. is a debilitating disease that attacks all systems in body leaving 25% of its victims permanently bed bound.  To date, due to lack of research, there is no effective treatment or cure, even though this disease effects over 1/2 million Canadians and many more worldwide.)

Tribulations

A look back to two years ago. Sometimes we need the perspective of the rear-view image to put the present in better focus. How far we have come. (Photo from our earlier, healthier days.)

VJ's avatarOne Woman's Quest II

Preoccupation with my own woes blinded me to my husband’s suffering, which culminated in a heart attack on Saturday night.  We are shell-shocked.th-2

“That’s what happens to caregivers,” a callous nurse commented.  Am I supposed to feel guilty?

Unable to either drive myself, or push my own wheelchair, I am reliant on the goodwill of others to get me to the hospital, although even then, my body’s limits scream:  Halt!

I trust that my husband is in good hands, and getting the help he needs.  Meanwhile, I am home, alone, processing a gamut of emotions and what if’s.

thThis is not his first heart attack.  The first was silent, and according to the specialists, all but fatal.  It caused sufficient damage to have us all on edge.  Thank God I saw the signs and called 9-1-1 this time around.  The hospital said they will not release him until either medications…

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Investment Talk

It’s all about investment, really
life, I mean – make a deposit,
withdraw – hope that in the end
the gain is worth more than
the cost – a healthy balance.

Have been running deficits,
too focused on serving others,
practicing the art of giveaways –
incentives to capture attention
(affection too, if I’m honest.)

I’m every marketer’s dream –
impulsive, in the moment,
disbelieve that time is money –
illness having dumped time
on my lap in massive dollops

I’d say energy equates with
income, begets funds – all
redundant now, overdrawn
as I am, no safety deposit
securing balanced health.

Dear Legs

May have been remiss
in expressing appreciation
how you carried me
all these years – stride
confident, pace swift,
head turning grace –

we wobble now, you and I,
uncertainty in our strength
stilted soldiers forging against
a tide of contrary currents
tentative, yet determined

visions of better days amuse
memories of nights spent dancing
getting down with disco, and
days spent swimming laps
prepping for provincial meets

we were champions, you and I
beauties taking on the world
by leaps, participants in a race
against an indefinable foe
believers in a destiny that
was not defined by limitations

I may have been remiss
in expressing my appreciation
hope you now know that
each step to me is precious,
that every time you hold me
upright my gratitude is sincere

there is world yet to discover
and time at hand, and you and I,
dreams intact, still burn with a passion,
hear the beating of an inner drum
rhythms calling us to dance –
should life give us another chance.

(Image:  bareuk.co.uk)

 

What Future?

Uplifted by invitations,
cherish the extended
kindness – crushed by
the inevitable no that
follows – limitations
a sad reality – energy
restricted to one or
two tasks, no more;
just thinking about it
exhausting enough.

What road lies ahead
for those of us cut down
too early – abandoned by
our bodies, left out of
life – while others veer
towards celebration,
vitality, shall we just
drift aimlessly, blood
and flesh dissolving
into the cosmic river
of being, imperceptible,
undefinable, forgotten?

(image: hdblackwallpaper.com)

Irony

Used to be a teacher –
socially respectable –
graded papers, set
lesson plans, passed.

Now, locked out, I am
tossed like dirty laundry
heaped atop the sullied
citizen pile – a dirty,

tangled mess in need
of cleansing – those
indistinguishably ill
usurpers of public money.

Once, knew definitively
the standards set by
ministry guidelines,
curriculum based goals

now, am dispossessed,
mind lost, unable to focus
on details, angered by
trivialities, a nonentity.

How I miss the certainty
of rubrics, daily routines
set by hours of sweat –
sweet organization.

I am the student now,
submerged in this disarray
of emotional churning
unsolicited learning

environment in which
achievement is seldom
honored – no A’s awarded
for surviving life tests.

(Image: nutleywatch.com)

Call It Wisdom

Get back to work! Bravado punches,
but my pick up is shelved – would love
to wheel out of here and take flight –
and interview skills are ungrounded,
fear I will let fly unfiltered gibberish.

Go for it! Boisterousness cajoles –
but boldness is dangerous, and pushy
only puts up walls; shifting gears might
be an option, but the road ahead’s a steep
decline, and I have to carefully find footing.

You have to try! Good-heartedness offers,
but the path and I are both handicapped,
movement needs support, and my focus
is failing – am more tortoise than hare –
regressing into this pedestrian existence.

You can’t just give up! Impatience scowls,
but not only is the party of energetics with
its social antics out of my reach – nuances
included – but to be honest, I am no longer
interested in being a part. Call it wisdom.

(Image: http://www.astrolog.org)

Disability’s Wintry Grasp

Disability, a bitter wintry storm,
constricts movement, freezes
intentions; intervals of icy peril.

I push against the onslaught,
will exert myself for promises
of toddler-sized embraces, live

for the sunny exuberance of
a grandchild’s laughter – am
momentarily revived; warmth

cut short by the tangled web
of instability defined by this
chaos – am learning to choose

battles; even the most mundane
tasks crippled by complications;
I live short-term, close to home;

bed, the only sanctuary I know,
awaits beyond the banks of
accumulated debris, pushed

aside in my haste for progress;
I am like a baby,  startle easy,
sleep lightly, comfort elusive;

I am smothered by protective
measures overstated; sealed
in a plastic bubble, suffocating.

Difficult not to be snowbound
when disability’s frigid tempest
unleashes it heartless blast.

(Image: www.alabamawx.com)

Me Want Cookie!

Cravings, no better than a
tower-sized Cookie Monster,
prowl, growl, stampede –
threatening my very core.

Give me sugar!
Me want cookie!

I flee, take shelter in forests
of broccoli, stalks of celery,
hope this infantile impulse
will pass by, forgotten; then –

Give me sugar!
Me want cookie!

I will drown the inclination
in a shower of water, cleanse
my mind of such sinful desire,
nourish myself with liquid –

Give me sugar!
Me want cookie!

No amount of rationality
appeases the ravenous
creature, fists balled tight
in a childish fit of conviction

Give me sugar!
Me want cookie!

I am losing ground, tension
building – raise the alarm –
run for shelter – the key is
to remain inconspicuous –

Give me sugar!
Me want cookie!

Close the door! Do it quickly,
if no one sees, it doesn’t count –
just one will do it, maybe two –
try not to leave any crumbs.

Me got sugar!
Me had cookie!

I collapse into a puddle of guilt,
self-loathing, disappointment,
while the inner muppet smiles
tummy momentarily satisfied.

th-2