Category: disability

Harmonics

6:30 a.m. alarm sounds.
“Time to wake up!” Compliance commands.
“Just a little longer,” Sensibility suggests.
Guilt, like an incessantly annoying child
tugs on Conscience:
“Come on; there’s lots to do!”
Body does not respond.

Sleep wins
and dreams come:
homeless,
relying on friends,
no food,
backed up toilet,
children’s wide eyes
fearfully imploring:
When is this all going to end?
Guild propels a return to consciousness.

8:25 a.m.
“Up and at ’em! There’s a good soldier!”
Compliance attempts to be chipper.
“There’s really nothing more important than rest,”Sensibility suggests.
“Can’t lie in bed all day!” Guilt counters.
But body is MIA.

Dreams resurface:
Setting up house in a thoroughfare
people coming and going, oblivious to intrusion
co-workers indifferent,
eyes scolding – convicting…
Guilt mutates to rage,
Body chokes, gasps,
reaches for inhaler
sucking in desperate air.

11:11 a.m.
“That’s it! Up you get!”
“No! No! Rest is needed!”
“The day is wasted! There’s no getting it back!”

“Silence!”
A new voice emerges.

A collective intake of breath.

“Breathe,” comes the message. “Just breathe.”

A unified sigh.

“And breathe again.”

Tempers cool, and emotions begin to settle.

“What’s going on?” Guilt wonders.
“Just trying to stick to routine,” Compliance defends.
“It’s always been this way.”
“But she’s ill now,” Sensibility adds, “and there needs to be concessions.”

“Breathe,” the voice reasserts, and all sigh again.
“Just be in the stillness of the moment.”

Stillness has no voice.
Its language is compassion and infinite,
infinite wisdom.

“…and surrender.”

Compliance sobs with the release of such enormous obligation.
Sensibility gratefully gives over the burden of responsibility,
and Guilt…well Guilt is little,
and happily snuggles up to Unconditional Love.

“There, there,” Voice soothes. “Isn’t harmony so much better?”

Body concurs and rises out of bed.

(Harmonics first appeared here September 2014, five months after illness left me bedridden. Image my own)

Empty Surges

Measured in spoonfuls
progress imperceptible

Still feel the angst of
no-time-to-breathe lifestyle

pressured from within
to get-it-done

spend unavailable resources
ruminating solutions

push against the walls
with little to show

surrender to impotency
and wait for the next surge.

Distance

Even in togetherness there is distance.

I am alone.

A central figure, distracted,
aiming for contact –
unable to eviscerate control –
repeatedly producing a singular confusion.

Define success
Is it the one on the top,
the know-it-all,
or are these the mechanisms
of estrangement?

I am unable to discern-
stability never more than a dalliance.

The pavement ahead whispers
promises of a sense of belonging…
Can I tolerate the quest?

Unfulfilled, I am protective
fear off-shoots of depression,
shield tender inner places…

Bring on change, there are others
watching, looking to me
as an example.

I can strive
on their behalf

Never alone.

Always distances to cross.

(Distance first appeared here February, 2017. Image my own)

What Dreams Reveal

Two decades before the fall
I dreamt of that white house
with black shutters,
entered the dimness
and saw myself –
withered, a straw body

Could I have altered the course
gathered that mummified self
in my arms, breathed new passion
into old bones, stopped
the onslaught of night
of cells freezing
passionless

No.
I walked in oblivion
seduced by false trickery
dim-witted in the fading light
cold, aloof, unresponsive
warnings be damned

Two decades later,
body inert, mind bereft
of hope – I dreamt
of a younger self
so intent on life
that she passed me by.

Some Days

Why am I courting judgment
like an old friend,
popping in unexpectedly?

She overlooks my needs,
barges in reeking
of stale perfume, and
energy-sucking shoulds

I crave the subtle tones of compassion –
quiet whispers over tea –
a gentle pat, words of encouragement

But, truth be told,
I squirm at even this –
hate vulnerability,
hate this weakness on display,
this chronic, fucking disability

Seems I have dressed myself
in judgment’s cloaks,
walk in the pinched shoes
of expectations too tight

No wonder I’m exhausted,
am dying…numbed
to my own drama.

(Image my own)

Chasms

Old friend, I would visit you
but this compulsive state of
martyrdom delays our reunion;
then you slip my mind.

You wouldn’t recognize me –
this mask I wear, a product
of the toxicity that I play host to,
puts a life on my kind-heartedness

I want to be helpful
but carry a burden of failures –
ghosts from childhood home
that plug my memory

I have hurt so many,
neglected, now lost; family –
these useless ties are shadows
lurking, directing me –

I am sensitive, wanting
to exile the negativity, have been
taught to be considerate, but
cannot erase the inconsistencies

Spend too much time
browsing, delivering a fragment
of the torment that lies within;
am over-involved with self

Really want to be my best
in search of something greater
but today the frustration
is too raw, am at a loss

Old friend, I have reverted back
to dependence, manipulating,
am mentally unstable,
cannot find closure

in all the scattered pieces –
all I have to offer are bit,
disappointing, really – stored
memories that menace

Believe me when I say
I am working hard; want to start
fresh, have a goal in mind,
have not forgotten you

but am running out of
options, frustrated, can’t catch
a break, as the distance
between us widens.

(Chasms first appeared here October, 2106. Image my own)

Most Saturdays I include an audio recording, but this week my voice is not cooperating.

Too Old?

She is young,
this artist-self
celebrating discovery

He chastises enthusiasm,
this intellect-self, favours
logic over emotions

I use disability as an excuse
Accept intellect’s restraints
Ignore encouragement
Refrain from submitting
Halter progress

Youth has ambition
her paint spattered hands
grasp at opportunity –
her tender heart
emits a joyful tune..

…but age,
having abandoned ambition,
is hard of hearing.

(Art mine)

My Spirit Stands Strong

Progress, seldom linear,
tosses me into unexpected decline,
stranded and incapacitated.

My son with labour-hardened arms
leaps to my side, steadying me
and I feel the fear in his caring grip

My daughter, ever compassionate,
reaches out, eyes filled with horror
as my body crumples onto the bed.

My husband, my oak, seeks to comfort
his voice betraying the helplessness
this futile predicament imposes.

Beloveds, I know that you see me
this dis-abled, non-functioning shell
weakened and sickly, lying on this bed

Do not be deceived-
it is only an illusion –
vessel temporarily fettered

I am in essence, as before
ambitions and desires intact
hold this version of me

Sense the wholeness of my being
the woman I am yet to be –
my spirit stands strong.

(My Spirit Stands Strong first appeared here August, 2015; edited for this version.
Image my own)