Invitation Anxiety

Social invitations sing
of acceptance, delightful
opportunity to intermingle

for the hale, the rehearsed,
practiced in the choreography
of wardrobe appropriateness

disability cringes – NO!
contrived behaviour suitable
for enacting a script too stressing

compromised memory can’t learn
lines – intellect impaired, not
improv-friendly – RETREAT!

isolation a recurring sentence,
illness the jailor; except anxiety
has replaced physical challenge

only Will holds option’s key –
attire no excuse: tossed together
clothing apt gear for gatherings

pretense overcomes stage fright
a worthwhile role for any story,
especially one notably improved.

(Image: bestfriendsforfrosting.com)

 

 

Whale Dreams

(Note:  Messages from the dreamtime inspire much of my poetry, and as an experiment, I decided to revisit an old dream, from May 2013, and see what new insights it might deliver.  The original posting, entitled “Whale Dreaming”, can be viewed here. )

Exposed we are, voyageurs,
crossing a great expanse –
one tiny vessel bearing
the weight of our lives,
two oars to navigate

Unknown depths below
and shadows, murky –
we push on. Row. Row.
sights set on new land
uncharted possibilities

a shape emerges –
great hulking mass
of being, parting waters
rising and transforming
a caricature of our fear

I am mesmerized, read
divinity’s presence, he
shrugs, pragmatically
notes the St. Lawrence
is home to such mammals

I dream of whales, crave
communion, project
mystical wisdom, equate
size with spirit, marvel
at potential connections

Just as I wait for a sign
from the departed, inviting
a simpler life, inspiring hope –
a shore life from which
I can observe the numinous.

The Same, But Broken (Take 2)

(Note:  I am revisiting old posts, trashing the unimpressive, and where possible, editing.  This is an edited version of an earlier poem.  Visit the original here.)

Pervasive fragility
blindsides – reduced
to stretched and torn
fibers – I teeter, mind

obsessed, overwhelmed
I am weeping…and not,
frustrated by impossibility
unwilling to face loss –

cannot let go – life passes
regards me with disgust/
indifference/ repulsion,
I am dispensable, invalid

raw, enraged, strength
obliterated, courage gone,
just a soul, stripped of life
craving meaningful existence.

Bureaucratic Dystopia

Bureaucratic automatons
privy to personal dilemmas
fuss over delegated tasks –
vessels sans initiative –

policy makers overriding
common sense,
common decency
paper pushers passing
verdicts condemning

downtrodden, unable to fight
whose day-to-day living –
questionable at best –
lacks the necessary survival

guide – procedural forms
dehumanize suffering,
cubby-holed egos void
support, icily authoritative

dystopia is no future construct
no fantastical presupposing
for those trapped in the maniacal
system of disability claims.

(Image: threatquality.com)

Nested

Nestled in with childhood truths –
second-hand, missing perspective –
nursing a creeping creativity:
insignificant clarity expanding
measurably, hurried.

Once social, now retreating
papered over failure, have fallen
frigid waves infiltrating, overtaking
chronically pained, over and over
contemplating flight, freedom

voiceless, expressionless, flat
even revelation muted, unmoving
boundaries, discussed, protective
currently crumbling…underestimated
the struggle, the pervasiveness

have considered a military approach
strident restrictions to nullify passions
but I am a weaver, open to uncovering
blessings in failure, employed in soaring,
grounded, yet questing, unsettled

disease is not a repellent for the mind,
objects conjure movement, creatures
undoubtedly defensive, renewal motivated
I am dank, moist, lacking burning passion
in this explosive personal nest.

Missing Lessons

No point hanging onto past –
education is not preparation
when illness decides to drop in

neither Algebra, nor Social Science
offers clues for solving the equation:
Life minus ability equals:  what?

Curriculum based on harsh realities
would instruct how to tie up loose ends,
gather what’s important, remain calm

while filling prescriptions and countless
paperwork; and how to fight for validation
when funding is fraud adverse and society

would as soon forget than support; and
how to continue to battle when good times
are confined to snapshots:  other people’s

hopeful beginnings and celebrations; and
how to push on when in the lotto of life
disability is the winning card – no certainty

of aging, vacation days no longer apply;
and how does one grieve appropriately
when no one wants to hear, project fear

and misunderstanding; cannot fathom
the depth of the daily battle – need a
curriculum of their own in compassion.

(Image: www.everydayfamily.com)

Bit Player

Have landed –
actually, volunteered for –
a supporting role

intended fun, but
comedy eluded,
am fighting for a life

fearful choreography
exacting a cathartic script
haywire admission of fault

my memory fails
positions me, in brief
spurts, faltering

co-performers push
encourage, emanate
loving commitment

buy into mania
my cause: avoidance
beyond distraction

I miss crucial lines
am unlatched
trailing off

self-punish
repeated regression
amends scripted

such a production
ignoring undefined
hunger,  knowledge

contracted,
blossoming role
forgettable

like Shakespeare
manufacturing
good-hearted bits

staging a performance
detailing elements
turning points

obligated to a
co-dependent audience
willing to settle

no acts define scenes
no exit for escape
stage door revolves

and I’ve landed –
no, volunteered for
a secondary role.

(Image from pinterest.com)

 

 

A Body in the Bathtub

There’s a dead body in my bathtub –
metaphorically speaking, of course,
but the shock of it is real

I’ve seen her before, this woman,
young, stylish – like a rising star –
her nakedness is blinding

How long has she been here, and
is she not cold: stark white skin
tinged with blue – appalling

I’d be more sympathetic, except
I’ve enough to contend with
given the plans we are making

the revolving door of visitors
and obligations and responsibility;
she’s more than I can deal with

but wait… did I detect movement,
could there be life in her yet,
I cannot tear myself away

there’s something eerily familiar
about her youthfulness – a naiveté
that I’ve long since buried

reminds me of dreams I once had –
fantasies of theater, and Shakespeare –
wanted to be the next Maggie Smith

I see it all now – the gradual sapping
of life, slashed by choices – a more
conventional route, an achingly painful

death – oh, I’ve tried to keep her alive,
dabbled in sidelines, never a priority;
you see worth is tied up in tradition

and to pursue one’s dreams…well,
that’s just self-centered folly and
I let her whither, I admit, but

I hadn’t meant to let her die
just could not bear the burden
of one more disappointment

Anger rises and I want to shake her
this embodiment of failure – how
was I supposed to keep you alive

You were an escape, that’s all
a vessel for hope and aspirations
the musings of a misguided youth

what kind of devilry is this –
you showing up now, when illness
has claimed me, and potential

wanes – are you taunting me?
Is this a threat?  don’t just lie there
mired in your own drama

face me, woman – and so she rises
like a second coming, and I see
that she is only a mirror

a reflection of myself, not disabled,
but polished, refined, accomplished
challenging me to never give up

be found dead in a pool of regrets –
a certainty at the rate I am going –
obstacles, she tells me, are illusory

success requires goals, and progress
is not defined by limitations, and if
you pace yourself, value yourself

believe in yourself, in us, then there
is time – and for a brief moment,
her image fades and I see my father

blue eyes exuding warmth, and
confidence, encouraging me on
and I understand: I am still alive…

( Image by Elena del Palacio, Untitled)

Dear Charlotte Perkins Gilman

(This is a repost of one of my personal favourites.  Check out a live performance of this poem.)

VJ's avatarOne Woman's Quest

I have examined your wallpaper,
discussed the scholarly attributes
of shades of yellow, traced the edges
of your unravelling with my mind,
argued the merits of Gothic horror;

marvelled at the brilliance of wording,
the courage to define the nature of
feminine madness, the boldness to
highlight inequalities long before the
establishment of a Person’s Act.

Forgive me, but I need to set aside
this keyboard for a moment, for I tire
easily, am suffering from an exhaustion
that is systemic and calls for elimination
of all stimulus in favour of rest, you see

I share your sentence of confinement,
isolated to a room with windows, my
mind wandering to ancestral gardens,
contemplating shadows and movement
cognizant of underlying forces, creeping.

My husband has just left, dear man, having
checked on me, taking on my burden,
concerned that I am not sleeping at night
thinks that by reading and rereading…

View original post 195 more words

Tired

so tired…

the heaviness of slumber
settles on me like a straight jacket –
no point resisting…

was it a poisoned apple
that struck me so –
or is this exhaustion
emblematic…

of what….
a soul aspiring to flight
weighted down by sensitivity…

an ego tied to ideals
no more salient than balloons
whose once inflated bodies
now pollute the landscape…

I am withered…

lifeless…

breath shallow…

pulse irregular…

cursing the elusiveness of sleep…

suspended in a tortuous limbo,
mocked by vitality,
scorned by ambition,
loathed by the hale…

is there purpose
to this perpetual cycle…
a message
carved within the walls
of this fleshy tomb…
cryptic whispers
buried deep beneath
the hardening layers of fog…

no strength here
to decipher riddles…
encumbered by lassitude,
like an iron blanket
smothering desire…

even weeds will push
through concrete barriers
follow the sun’s rays
to find life…

why then can’t I…

…so tired….

(Image from personal collection)