Tag: chronic illness

Spooning

I have measured out my life with coffee spoons.”

Source: “The Love Song of J. Alfred Prufrock” by T.S. Eliot

I line my spoons on the counter –
measures of the day’s reserves

one spoon for morning tea
with a side of emails read

a shower requires two or three
with a guarantee of needed rest

I’ll linger horizontal – added care
when an outing is in the plans

the thrill of venturing, and delight
of conversation shared wipes

the counter clean – I’ll crash
and crave for one spoon more

enough to get me into bed
pray tomorrow’s count the same.

(For Reena’s Exploration challenge, in which she challenges us to use one of the given lines of poetry.  Spooning is the term used for those of us with chronic illness who have limited energy.  Myalgic Encephalomyelitis is characterized by exhaustion after exertions.  My day starts with depleted energy, and I work from there.)

 

 

 

 

 

 

Spirit Stands Strong

Progress – seldom linear –
tosses me into unexpected decline –
stranded and incapacitated.

My son – with labour-hardened strength
leaps to my side, steadying me
and I feel the fear in his caring grip.

My daughter, ever compassionate,
reaches out for me with horror-filled eyes
as my body crumples onto the bed.

My husband, my oak, seeks to comfort
his voice betraying the helplessness
this futile predicament imposes.

Beloveds, I know that you see me
this dis-abled, non-functioning shell
weakened and sickly, lying on this bed.

Do not be deceived – that is not me –
it is only an illusion –
a vessel – temporarily fettered.

I am, in essence, beside you –
ambitions and desires intact.
Feel me there, tall and proud.

Sense the wholeness of my being
remember me for the woman I am yet to be –
My spirit stands strong.

(I first wrote this poem in August of 2015, when efforts to sit up and visit with friends caused a collapse.  I wrote it as reassurance for my family that the woman they knew was still strong.  I post here now as a reminder to myself – of how far I have come, and how strong my spirit remains.)

Chronic Companion

She sits with me at breakfast,
follows me to the park,
hovers on the drive home,
celebrates when I lie down,
snuggles in with warming pad,
and moans…

Not a companion
I would have chosen,
preferred the active,
athletic life, and yet

She complains with me
in the afternoon, invites
excuses during dinner,
grounds me in the evenings
and tosses me at bedtime

Not a companion
I would have chosen,
but at least I’ll grant her this –
she’s chronically devoted.

 

 

Losing Ground

In corners, I scrounge –
resilience fading;
hope, it seems, is sleeping.

Living a quarter life,
even ascents depressed;
dubious that alternatives
are worthwhile.

Walls would suffice –
once dreamt of co-habitating
with abundance,
now housed with constraints.

Age losing preferences,
counting worries either way.

Dare I Hope?

Hope glitters
like rays of golden
sunlight piercing
the thick overgrowth
of this life.

Dare I respond,
or is this merely
the sharp deflection
of light on tinfoil
meant to keep
scavengers away?

(Dare I Hope? first appeared three years ago, when the four walls of my bedroom and the mattress I laid upon defined my life.  I have polished it a bit here for my weekly challenge which is “anniversary”.  Looking back to those times, I am able to acknowledge progress and affirm that the hope I was feeling had validity. Featured image is from personal collection.)

What Scars Remain?

Should I escape these shackles,
manage to re-surface, swim
despite this weakened condition
against the currents of disability,
find myself once again on the
solid grounds of civilization;
will I be embraced with cheers
of victory, or slotted into some
backroom, reserved for the fallen,
spoken to in hushed tones,
forever handled at arms length,
an object to be feared?

And if I manage to fight these
bonds that for so long have
threatened to annihilate,
will I have the bravery to face
the calling that once defined me,
shake off the cobwebs of
disorientation, defy the
certainty of unpreparedness,
draw from the well of past
experiences and rise to
a new battle, proving the
validity of my return?

Or, with freedom, do I look
to opportunity, clear the slate
of former ambitions, rewrite
the pages of my destiny,
embrace an attitude of
rebirth, decide to relinquish
the sword, cut my losses
and redefine a new, gentler
way of being in the world,
less dependent on a system
which undoubtedly propelled
this descent in the first place?

(For Reena’s Exploration Challenge.  Reena gives us a choice of prompts.  I have chosen  ‘disorientation’.  What Scars Remain was first written in August 2016.