Day 266 “Return To The One”

Lethargic limbs
immobilize
while swarms
of thoughts
like predatory
insects
buzz
about
threatening
to invade
crevices
of the mind.

Imaginary nets
fail to repel
escape eludes
breathe
breathe
visualize peace
dissolve chaos
surrender
to source
return
to the one.

Confessions From The Sick Bed

Before I was sick,
I counted the days and hours,
not because of drudgery –
I loved my job –
because I had stretched myself
beyond normal limitations.

Before I was sick,
I wore responsibility
like a superhero,
and defined by work,
prioritized tasks
above well-being.

Before I was sick,
I joked with others
about the disabled
lounging around,
living the life of leisure,
usurping the system.

Before I was sick,
I prided myself on saying “yes”,
being dependable,
loyal to a fault,
a friend to all.
I thought I was invincible.

When I started to get sick
I trudged from doctor to doctor,
underwent tests,
and humiliation,
learned to doubt myself,
and turned the blame inward.

When I started to get sick,
I chastised myself
for being overweight
and not exercising enough,
and stopped eating carbs,
and pushed harder.

When I started to get sick,
I ignored my body,
failed to set boundaries,
continued to eat on the run,
and felt ashamed
that I had let myself go.

When I started to get sick,
I was wracked with guilt
for the compromises
I had to make,
failing to juggle
so many obligations.

Now that I am sick,
I value more than ever
the importance of priorities,
recognizing that well-being
always proceeds well-doing,
and appreciate my body’s voice.

Now that I am sick,
I understand that work
does not define me,
and disappointing others
is a reality in life.
I am not invincible.

Now that I am sick,
I’ve learned that richness
is a quality of living
and not a figure
in a bank balance.
Happiness, the same.

Now that I am sick,
discernment defines
the relationships I desire,
no longer willing
to negate self
for the love of others.

Now that I am sick,
I no longer pretend,
or reach to meet standards
that fail to sustain me;
I have a new set of expectations
and am learning to be.

Now that I am sick,
I see with compassion
how insecurity
and a longing for approval
drove me to demise,
always failing in my mind.

Now that I am sick,
I pray that wisdom,
and humility
will guide my recovery,
and that life will await
this metamorphosis in me.

Life Challenges Continued

I started this blog four years ago while awaiting the results of a lumpectomy, facing the possibility of cancer and questioning life.   I ducked the bullet, but a year later my husband was not so lucky – he started treatment for Stage III prostate cancer.  Then, to complicate matters, he ruptured his quad tendon and needed reparative surgery, which had to be repeated ten weeks later when he re-injured.  The second surgery became infected and after a nightmare six months and five more operations, he was finally on the mend.  We thought the worse was behind us until I was struck down by a life altering debilitating illness that has confined me to home.  Roles in our house reversed and after a year of caring for my husband, he now has to look after me.  It is a reality that we have learned to accept, believing that the worst is behind us.

We have been naive.

A recent visit to the doctor for a routine physical has resulted in a barrage of further tests and Thor finds himself back in the care of the specialist who originally delivered the cancer diagnosis.  “There’s only a fifteen percent chance that this is cancer,” the doctor has told him, but we’ve both heard that before, and somehow, we are not as confident this time.

We are too familiar with all the signs.

So, as I write this, we are back to that awful place of waiting:  waiting for the tests that will confirm or allay our fears; waiting to know if life will be put on hold yet again; waiting to know when it is safe to plan again.

Are we being tested?  Is there opportunity in the midst of all this anguish, or is life just a random draw, and we have pulled the short straw?

In the end, we really have no control over what happens to us, and while we would not have chosen this path, there is not much we can do to change it.

We will put in our time these next few weeks, immersing ourselves in trivial distractions,
desperately trying to think about anything but the worse that can happen.  “One step at a time,” we tell ourselves.

Forgive us if we falter in our obligations, or if we appear distant or disinterested.  We have a lot on our minds.

Death Threat

“Viewers are cautioned that this next report contains images that may be disturbing to some.”

Naturally, I turn toward the television to see what all the fuss is about.  Photos of a crime scene where two women have been brutally stabbed to death are plastered across the screen along with images of the hotel they had been staying in and the victims themselves.

“Uh, Ric,” I manage to utter before sheer terror takes over me.  Not only are we staying in the same hotel, but the two women are occupying the same room we had originally been assigned.  When we’d arrived, just days before, and found there had been a double booking, we gracefully offered to move rooms.  What if we hadn’t?  Suddenly, I feel deadly cold.

“Maybe you should stay at the farm tonight instead,” Thor suggests.  The ‘farm’ is a small rural property we have purchased for our retirement.  As the house needs repairs, we decided to take a vacation at this nearby resort in the meantime.  Ric has to return home on business overnight, which means I will be on my own.

“No, the report says the police have a suspect in mind – a drifter who has been seen loitering in the nearby town.  The farm is too isolated.  I’ll be safer here with people around.”

Somehow, in the deep middle of the night, isolation feels more pronounced.  From where I lie I can see the outline of the door to our room and try to reassure myself that the deadbolt will hold.  I pray the double sliding doors in the adjacent room are secured enough to prevent an intruder.  I must fall asleep at some point, because when I awaken it is morning.

Relief floods me.  Daylight brings a return to normalcy, sanity.  All is well.

I have a quick wash and throw on some clothes, deciding to catch breakfast in the restaurant.  This suite we are staying in has two rooms – the bedroom, which is accessed from the outside, and a living/dining/kitchenette area, which is accessed by the pool area of the resort.  A short hallway with a bathroom separates the two living spaces.  It isn’t until I pass through into the kitchen area that I notice the intruder and I stop short.

Standing well over six feet tall, he is a giant of a man, with a disfigured face and scarred hands.  Like a rabbit, I freeze, assessing the situation.  In my mind, I picture the exits, both locked as far as I know.  How long has he been here?  Do I have time to unbolt the door before he’d catch me?

As if reading my mind, he flashes a pass key.  He works here, I realize.  Remain calm, I counsel myself.

“Am I going to die?”  I ask willing my voice to remain steady.  “Because if I am, do you mind if I have one more cup of tea.  Tea is my favourite thing?  Could you allow me that?” An element of surprise is my only hope of defense.  It worked for me once during an attempted mugging.  The would-be assailant stepped in front of me and demanded money and cigarettes.  In my nervousness, I laughed and said: “Do I look a smoker?”  The ruse worked long enough to let me dart away from the mugger and yell for help.

He doesn’t answer, just glares at me with that menacing expression, reminding me who’s in charge here.

“If it’s about sex, I’ll do anything you want, no need to get violent.”

“It might get rough.”  Do I detect a hint of bemusement in his voice.

“That’s okay, but I’d still really appreciate that cup of tea.  Can I make you one?”

“No, I don’t want any damn tea!”  but he doesn’t move to stop me and he’s dropped down onto the couch now, stretched across it, his legs splayed out over the end, his massive belly displaying one long scar carved into his side, and I realize he’s removed his shirt.

Cautiously, I make for the sink, feeling like I’m moving in slow motion.  His voice stops me.

“Why’d you have to put lanolin on the food tray?”  His voice is mournful, gravelly, and if I didn’t know that my life is in danger, I might l have laughed out loud.  My mind races:  He must work in food services.

“I didn’t,”  I stammer.  “I mean…I don’t use lanolin…don’t even have any.”  Then, sensing the opportunity:   “Somebody would do that?” I play the sympathy card.

“Makes my job damned near impossible,” he mumbles.  “Makes me angry enough kill!”

So we’re back to that.  Is that what happened to the two young women?  They greased the dinner tray?

“Hurry up with the tea already; I don’t have all day.”

He closes his eyes for a moment and I examine his face.  An unfortunate soul, really, I think.  Large, beefy jowls, and a bulbous nose that likely indicates years of alcohol abuse.  A scar covers one eye socket, and his lipless mouth seems to hang open unaware of itself.

Just as I turn again towards the kitchen, a light tapping on the door precedes the entrance of an entourage of people.

“Housekeeping, Miss.” A woman bustles in carrying freshly pressed and hung laundry.  “Where would like these?”  Behind her comes another housekeeper bearing clean towels, and a team poised to clean.  “Is this a good time?”

“A very good time!”  I turn to see that the hulk has gone.  Did he slide away?  I wonder.  Did anyone see him?  I direct the clothes to be hung in the bedroom closet and smile with genuine gratitude for the disruption, but keep my council.  He may still be hiding in the suite.

Two young teens then barge through the now open door and buzz around delighting at everything in the room.

“Excuse me,” I say to them.  “What are you doing?”

“This is our room!  We just checked in!”

“This is my room,”  I can feel the anger rising up in me.  I have had enough disruptions this morning already.  Things are beginning to feel surreal, and I just want some peace to recollect myself.  “There has been a mistake.  Leave!”

The doorway fills with what must be the rest of the family:  a man and woman and four more children.

“Check-in,” I tell them, ” is not until four o’clock.  The room is still mine.”  I had forgotten that today was check-out and the realization brings me new hope – I might get out of this alive yet.  I have work to do.

The family and housekeepers all leave with the exception of one little straggler.  I start to give him directions to the lobby, then realize he is too little to understand, so I walk him down the hall instead.  As we approach the reunion with his parents, I see that Ric has returned and is approaching the building.  The nightmare is finally coming to an end.

I turn back towards the room, anxious to get packed up.  I see him in my peripheral vision as he steps out of the shadows.  I stop.  Surely he won’t accost me here in the hallway, with people around.

“Did you see my scars?” he asks, eyes turned away.

“I did,” I respond unemotionally.  What can he possibly want me to say?  Like the wounds you left on those poor young women, I think.

I hear Ric’s approach and see the killer step away.  Should I tell my husband? I decide not.  Ric would react protectively, and could end up getting killed as well.  I greet my husband warmly, and turn our attention to the task at hand.

Car loaded, Ric pulls toward the exit just as a police vehicle drives in.

“Stop here.” I command, rolling down the window and catching the driver’s attention.  “The man you’re looking for works in the kitchen,” I tell him.

Then I signal for Ric to drive away and wake up.

It’s all been a dream.

A Trip to the ER

I have just returned from a record-breaking (in my history) trip to the emergency room and back, and as with all adventures in life, I learned something.

I experienced first hand the ignorance of the medical world concerning ME/CFS.  No wonder it took years to get a diagnosis.

Please understand that making the choice to go to the hospital is a big one for me – with an intolerance for sitting or standing, I could not bear the thought of sitting and waiting for hours on end – as is typical for our emergency rooms.  Imagine then, my surprise (and relief) when they took me right in and from the triage examination, rushed me into a bed.

A resident saw me within minutes, and before an hour had passed, I was hooked up to an IV and receiving fluids for dehydration and nausea.  Once vitals were confirmed stabilized, they had me on my way – all in under four hours.

The staff was charming, attentive, and I felt, really made an effort to understand what was going on with me, but they just did not know anything about ME, asking me to repeat what it stood for several times and even asking how I got such a diagnosis.  They didn’t appear skeptical, just genuinely interested, but considering this disease is more prevalent than breast cancer, it does beg the question:  How is it that no one knows?

Living with ME/CFS is an extreme act of faith.  The symptoms come and go, fluctuating between mild and severe and seldom amount to anything tangible in medical tests, creating frustration for everyone involved – especially my loved ones who wish so desperately for an end to this disease.

I saw four different cardiologists, for example, when I was trying to find the cause of my rapid heart rate.  The first told me I had a rare arrhythmia that I could treat with diet and exercise, the second told me that I did not have a heart problem and basically wasted his time, and the third that I am likely over-sensitive.  The fourth decided it was an intolerance for pain medication that was causing the problem, and to some extent, he was correct.  I now know that the increase in heart rate is related to orthostatic intolerance.  My pulse rate lying down is typically between 84-94 bpm, but increases to 116 or so when sitting, and 137 when standing.

I had a similar experience with continued respiratory problems.  In 2006,  I seemed to have a cold that would not go away.  It was the year I had returned to school, so I wrote it off as a side effect of working with children.  Then one day in March, I just could not catch a breath no matter what I did.  As I’d had casual bouts of asthma in the past, I was referred to the Asthma Clinic at a local hospital.  Testing reconfirmed a number of allergies, both environmental and food related and four years of visits to adjust medication followed.  On every visit, my doctor – a lovely man with a warm wit- would wonder aloud if this was really just asthma.  Now, I know it was a combination of asthma and ME.  Taking medications is not enough to ensure ease in breathing – pacing myself and avoiding over-exertion is key.

Today’s visit was for ongoing abdominal problems.  IBS was suggested after a colonoscopy four years ago, but the continued bloating and ongoing pain has become concerning.  A blocked bile duct was detected in another test, and an antacid prescribed.  Food sensitivities have been noted and I have adjusted my diet accordingly, but the difficulties persist.  “It’s likely just a virus,” they told me yesterday.  And, in part, they are probably right, but there is such a persistent, underlying wrongness to how my abdomen functions that I am not satisfied we have gotten to the bottom of this problem.  Apart from two forkfuls of rice and a couple of gluten-free crackers, I have had no solid  (or liquid) food in five days – the pain that follows is too intense.  There is no quality of life when the pleasure of a decent meal cannot even be savoured.

Living with chronic illness is discovering that much of medicine is still in the formative stages – uncertainty punctuated with educated guesses – so much yet to be learned.  And, if you’ll indulge this me this moment of feeling sorry for myself, I am a discontented guinea pig.

Dump Truck

Cumbersome and heavyweight,
determination driving,
I roll with a shudder,
ignoring limitations,
promising caution,
pretending control.

Road blocks, detours,
and bustle –
everywhere bustle!
Unavoidable confusion.

(Control, it seems, is illusory.
How had I not anticipated this?)

Rattled intentions-
delayed reactions –
slowed starts.
I am an abomination.

Children dart about,
heightening my angst.
Go-getters impatient,
rev at my sluggishness.

(Get out of the way!)

Compliance compels, but
the girth of my metal
inevitably obstructs –
Misfits are not welcome here.

My load is heavy –
grievances topped with
personal dramas, blended
with ingested toxins.

(Warning: compassion is low!)

My apologetic countenance
masks underlying menace –
Do not misread hesitation.
A beast is poised to strike.

(Control, remember, is illusory.)

Labyrinth

I am a tourist in this life.
Expectations of enlightenment,
education and entertainment,
spur me forward with excited anticipation.
Feed me discovery in ordered exhibits,
carefully construed facades of control,
garner me with a sense of security:
I am an eager explorer, readily engaged.

By the time wariness enter my consciousness,
I am too far in, committed to the direction,
unable to turn back – the folly of my naiveté
taking hold.  I feel the panic set in – forge ahead –
now driven by fear, not wonder – I see a light.
Relief! Temporarily. All is not as it seems.
Security is not solid. Boundaries are blurred.
I have ventured too deep into this maze of horror.

Injustice and lawlessness surround me –
relentless battery, unbridled savagery,
mummified memories claw at my soul.
I am not willing to die this way-
my screams powerless against a
raging reality, willing my demise.
Is there no sympathy to be had?
The nightmare continues.

I am a student of life,
reluctantly enrolled in a program
that I should have already mastered,
seeking enlightenment in the tucked
away crevices of existence,
crowding in with other lost souls –
expectant, dubious, involuntary –
arrogance and superiority my walls.

I sit amongst the delinquents.
Cynicism blocks flowery attempts
to win me over, nor am I swayed
by blatant appeals to primitive appetites.
I have grown callous, and calculated
hardened by my journey – and when
the lesson comes, delivered in an
unfamiliar tongue – I deflect.

But wait. Despite my hard-heartedness –
hard-headedness – truth seeps
into the corners of my mind and
with coinciding dismay and delight
I realize the folly of my ignorance:
In the struggle between survival
and striving, so much has been overlooked.
I am finding my way out of the maze.

Power and Virtue

Politicians are a breed of characters that I fail to understand – they have to be willing, on one hand, to ward off nonstop critical attack, and on the other, to subject themselves to constant pandering for favour.  If they are not driven by ideals, or even if they are, they will undoubtedly fall prey to persuasion by one power or another.  I am cynical to say the least, and disillusioned by the process for many reasons which I won’t discuss here.  In fact, politics is not usually a topic about which I am inclined to write.

Until my husband received an envelope in the mail bearing this quotation in place of the return address:

“Violent jihadism is not just a danger somewhere else.  It seeks to harm us here in Canada…. through horrific acts.  It is an act of war, and our government’s new legislation fully understands that difference.”

– Prime Minister Stephen Harper
January 30, 2015

“What is this?”

“The Conservative Party is looking for funding.”  Thor shrugged dismissively.

“Did you read this?  This is blatant fear-mongering!”

He took the envelope from me and perused it.  “Yes, it is,”  he replied dismissively as if to say:  And you’re surprised how?

I am more than surprised; I am gobsmacked!  The government’s tactic for raising money is to send out a war-tinged message?  Forgive me, but I always thought I lived in a peace based society, not a shoot-first-ask-questions-later regime.  This approach to fundraising is recklessly irresponsible on many levels, and as I am writing this while my mind and emotions are reeling, I fear I will not do them all justice.

First of all, there are a number of issues that plague Canadians today which deserve government attention:  justice for the missing (Aboriginal) women, under-serviced and impoverished communities, human trafficking, unemployment, aging population, threats to education, and so on, and so on.  Terrorism is one among many problems that need addressing.

Secondly, as I alluded to earlier, when did we become a warring country?   Historically, we have proven ourselves to be worthy allies and participants in war when called for, but I was raised to believe that peaceful resolution and humanitarian involvement was the Canadian way.    Has this changed?  Is the government hoping to sway opinion and spur war?  What possible positive motive can underlie the delivery of such a message?  Is this creating precedent for a new influx of money into our military resources?

Terrorism is not a new problem, by any means, and certainly a threat, but I do not think it is an issue that has been thoroughly examined and responsibly considered.  We just do not understands its mechanics.  Evidently, it is the product of hate and fanatical obsessions, and if viewed from that perspective, is not just the property of jihadism – it lurks beneath every so-called civilization.  Just yesterday, a young man sat amongst a group of parishioners in communal worship before turning his weapons on them.  This was an act of terrorism.

My eldest sister always told me I was naive, and perhaps I am, but I thought that we as a society were smarter than tactics like these.  Receiving this letter has just furthered my disappointment with a system that is severely flawed.

So, what might the Conservatives have offered instead?  How about something that demonstrates virtue, instead of appealing to our dark sides?  What about a message that reminds us how great our country is, and how important it is for us to continue to pursue avenues that support and build on our valued legacy?  Appeal to my sense of pride and my interest might be peaked, but threaten my intelligence and I am only incensed.

Having just read this to Thor, who is no longer affiliated with the Party, he asked if I read the letter enclosed.  I had not.  As expected, it includes more of the same propaganda, and a “Pledge of Commitment” asking a signed personal agreement, along with the requested $200 to help the Conservatives win the war on terrorism (my words).

Rant over, my conclusion is very clear – the mission has been successful.  I am now very afraid – not of ISIS and their “real threat to Canada” (quoted from the Pledge of Commitment).  I cannot even think about them at the moment.  No, this newly blossomed terror is for a menace much closer to home – the CPC (The Conservative Party of Canada).  If I doubted them before, I really fear them now!

(Image: wondergressive.com)

Accepting Self

Desiring reconnection with life,
a longing for purposeful normalcy,
I push forward, intentionally ignoring
advice to the contrary.

Original intention well-meaning
(but not thought through)
minimal exertion is what’s called for,
but I feel inspired to do more.

Former strength now lost,
new awareness on the periphery,
hindered only by this cloudy head-
executive functioning currently disabled.

Bottom line is I must come clean,
stop overstating my capacity,
accept the unpredictable,
and recognize my limitations.

Embrace the lesson of constraints
and stop sabotaging the journey.
I am what I am, not a former definition
based on a life now redundant.

Naked, I fear that someone will see me –
I fear that they will not see me –
desire for acknowledgment,
a very human condition.

I need to ignore the obstacles,
wholeheartedly, without compromise,
reveal myself – no longer hidden.
I am, after all, what I am.

Changing Direction

This path I walk is not my own;
it’s paved with genetic markers,
familial dysfunction, and ancestral angst.
Can you see them walking with me?
Those whose lives were cut too short –
the addicts, the tortured, the diseased-
none of us free- ensconced in blame.

If you walk with me,
I’ll help you carry your burden
and you can support me with mine.

I stand at the intersection
of broken dreams and hope for tomorrow
and in my altered state of awareness
see the commonality of our striving,
understand the patterns that divide,
and grasp the illusion of injustice
that denigrates our interconnectedness.

If you walk with me,
I’ll help you carry your burden
and you can support me with mine.

I stop and wait for an opening
to share this revelation
of underlying harmonious intent,
but the whir of societal traffic
complicates communication,
and I can find no voice to cut
through the din of the dead.

If you walk with me,
I’ll help you carry your burden
and you can support me with mine.

I turn the corner on my old life,
detach with loving sorrow
from a road that never served me,
a direction wrought only with pain.
Tiny arms await me on this open road,
eyes wide with wonder and possibility.
There is joy to be found along the way.

If you walk with me,
I’ll share this new adventure
and together, we’ll have much to gain.