Category: ME/ CFS

Sufficiency

Disability corners me
twixt two directions –
the hurried rush
of ambition’s call
and the gentle nudge
of wisdom settling

Confined to four rooms
I am distanced from –
invisible to –
the weekend warriors
whose self-satisfied grimaces
race by my window

I remember that push –
not enough hours to the day
not enough money to succeed
never thin enough, fit enough
always grasping for more…

Legless and exhausted,
I am disqualified
from competing,
immersed in retrospection,
luxuriating in perspective –

I’ve always had, indeed,
continue to have
everything I need:
a home I can navigate,
the endless beauty of nature
and the care of loved ones.

Abundance, I’ve discovered, is attitude:
recognition and acceptance
that life is sufficiency

(I’ve derived this poem from a post by the same name, dated October 2014.
At the time, I was five months into the losses that were Myalgic Encephalomyelitis.
Image my own)

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Good Afternoon

Dawn breathes an invitation and Rumi’s words taunt me: Do not go back to sleep. I am loathe to greet the day – not that I despise its arrival, rather that waking has become laborious since the onset of chronic illness. Daughter of a military man, I am conditioned to rise before the sun, have a lifetime of such anecdotes to my credit, however; while the brain is still willing, the body groans, and aches wail with renewed emphasis as the numbing cocoon of sleep loosens. Hours dwindle from the first inkling of consciousness until muscles comply with movement, and I am lucky if I’m actually able to utter “Good Morning.”

Rays, like razors, slice,
invade sleep’s cocoon – absent
winged emergence.

(Good Afternoon first appeared here Sept 2018. Edited for this edition. The poetry form is haibun. I am pleased to report that waking has become easier, and most days I am able to greet the morning.)

The Other Side

Wind carries Autumn’s song
and I am crawling out of a nightmare

Insides churning widdershins
thoughts grasping for a forward pull

Have been to the edge,
touched the volatile

Birdsong breaks solemnity
I catch a ray of light.

(Tuesdays, I borrow from Twitter @Vjknutson
Last September, I was in hospital fighting
through a life threatening condition.
I penned this there. Image my own.)

Another Chapter Closes

House creaks
ferocious
decries starkness
of bare walls
absence of furniture
finality of boxes
stacked and sealed

Sleep eludes me
mind recalling
passages –
his cancer
my fear
twist of fate
that left me housebound

We could not stay here
this place chosen for healing
turned prison

“You’ve been good to us”
I whisper, “Now
you’ll favour someone else”

She grumbles in response
this old house, sharing
my trepidation
of unknowns, change
always precarious

Another groan
and I concur
we grand dams
need extra TLC

but I have faith –
an injection of
new life
will do us both good.

(This is a found poem, excerpted from a post of the same name which appeared on my second blog in July of 2017. Image my own.)

Even Ghosts Yearn

Natural light preferable
to artificial – not the harsh
fullness of noonday sun
but softly filtered rays –
luxurious…
inviting

Love too, should be subdued,
gentle as a zephyr –
not mythical, but yielding…
mindful
not worshipful nor boastful
but comforting…
warm

I am waning light
the mistral wind wafting
no longer a force of nature
but smoke, spiralling
vanishing into non-existence

And yet,
even as shadows spread
I yearn – heart
beating true
not lost,
not forgotten,
but withdrawn…
humbled

passion mellowed
by years of constructing walls –
grit and tar –
scar’s long buried
save the limping gait
of a ghost.

(Even Ghosts Yearn first appeared here in July, 2018. Image my own.)

Pain

Pain.

I push against it
challenge it

A warrior intent
on proving
I am…

indestructible
unwilling
to flinch

Convinced
that denial
equals power

Except, it gnaws
at my edges
tears me down
bit by bit

Just as I prepare
to succumb…
clarity

…this is invitation

…surrender is a gift

…pain is passage

I let go
absolve myself
of the need….

(Pain first appeared on One Woman’s Quest II in June of 2016.
It has been edited here. Art my own.)

Mermaid Dreams

Descending
into the mythical
entranced
spurred by
severity of
current challenge

Call it fantasy
but attempting
movement is
destroying
my passage

I am pulling,
shattering
this barricade
of a life; blue
progressing:
ocean bound.

(Mermaid Dreams was originally written in December of 2016, two years bedridden. Only in the dreamtime was I whole and capable of overcoming. Dreams are one thing I can talk about for thirty minutes without preparation: my challenge this week. Image my own.)