Memories escape me…
You’d think I’m older than I am…
Autonomic nervous system misfiring…
Lucky I have a sense of humour –
Grief would otherwise be smothering –
I remain optimistic
Counsel myself to find the lesson
Every day is a question mark
Needs ever changing
Can I walk without aids?
Endure a drive in the car?
Past my time without overexerting?
Healing requires restorative sleep
Although, it’s been years since I woke up refreshed –
Letting go of such expectations part of the learning –
Occasionally energy comes in bursts,
Mostly, it’s a trick…
Yesterday’s self no longer exists
Energy a quagmire…
Longing does not equal capability
Initiative encounters brick walls
Too often I overdo it
Insensitive to my own reality
Stubbornly unwilling to learn.
(Myalgic Encephalomyelitis is the disease I’ve lived with for 10 years now. I’ve collected a few more to keep it company along the way, and, of course, had one or two issues to start with. Anyway, I was recently inspired to write an acrostic poem. I’m sure there is more left to learn about living with these challenges. Image my own, as usual.)
A sense of humor is definitely a saving grace ❤️
LikeLiked by 1 person
Yes! 🤗
LikeLiked by 1 person
I am often amazed at how you keep up your WP site here with such quality poetry and art. You inspire me, VJ. I love the line, “Every day is a question mark”. Yes, it is! 🙂
LikeLiked by 1 person
Thanks LuAnne. It gives me a purpose and an opportunity to connect with others. If I had more of a life, I wouldn’t be able to do it, lol.
LikeLike
I am grateful for the rich life you share with us.
LikeLiked by 1 person
That is sweet. Thank you
LikeLike
Your well-written poems always inspire me – thank you!
LikeLiked by 1 person
thank you!
LikeLike
Your poem is beautiful and vulnerable, VJ. Sometimes sharing our challenges can help others who are in similar circumstances. Thank you for sharing. ❤️
LikeLiked by 1 person
I hope it does help others, Lauren. Thank you.
LikeLike
I was moved by your acrostic poem. You’re carrying such a heavy load.
LikeLiked by 1 person
If it wasn’t this, it would be something else, right?! Appreciate your thoughts.
LikeLiked by 1 person
Good point.
LikeLiked by 1 person
Well done on constructing the acrostic and keeping it all real. Tough place to be, I’m sure, but look at the art and poetry you make! So impressive. Keep on keeping on.
LikeLiked by 1 person
There is a gift in everything, Eilene. Some days easier to find than others. Thank you.
LikeLiked by 1 person
Letting go of expectations is key. I feel like you make more than the most of the cards you’ve been dealt. (K)
LikeLiked by 1 person
Thank you K. Your comment encourages me.
LikeLiked by 1 person
What to say to someone who has (and is) enduring and processing that many physical health challenges? I’m at a loss, although I can really relate to your frustrations because I am a huge “doer” and my body is breaking down faster and in more ways than I expected at my age. (We are very close in age.) Its new limitations hold me back sometimes. Anyway, I’m sending you a big hug, and the poem is very creative!
LikeLiked by 1 person
Thank you. I appreciate that people read and acknowledge. Sooner or later all of us will face loss of energy and have to make choices.
LikeLiked by 1 person
Me resulta muy familiar y sin duda lo que queda es el humor. Qué hacer si el tiempo te falló y demolido , ahora te sobra?
LikeLiked by 1 person
Sí. El sentido del humor lo es todo. Gracias.
LikeLike
Take care of yourself and I love your poem. Anita
LikeLiked by 1 person
Thanks Anita.
LikeLiked by 1 person
Such a great job on this acrostic poem and sharing your challenges in your poem, so well done VJ. I love your honest sharing and inspiring writing always facing this head on. ❣️
LikeLiked by 1 person
Write about what you know – isn’t that what we’re told. Thanks Cindy
LikeLike
Whew!
LikeLiked by 1 person
😊
LikeLiked by 1 person
Acrostic poems are hard to write. You’ve done an excellent job giving us insight into what it is like to be living with a chronic illness.
LikeLiked by 1 person
Thanks Heather. It has been 10 years and I think the disease owes me an explanation, lol. The poem needed writing.
LikeLiked by 1 person
Not having answers must be extremely frustrating.
LikeLiked by 1 person
Yes…
LikeLike
VJ, I am sorry you have to deal with this condition, making life much more challenging, sending hugs your way!
LikeLike
Thanks so much. It seems we are all given something we must deal with.
LikeLike
Sending hugs, VJ. Great acrostic poem. Be well.
LikeLiked by 1 person
Thanks Selma
LikeLiked by 1 person
This is so painfully real and relatable, VJ. Sending a hug your way. ❤️
LikeLiked by 1 person
Thank you so much
LikeLiked by 1 person
Very well constructed
LikeLiked by 1 person
Thanks,Derrick
LikeLiked by 1 person
Awesome delivery, VJ. Thanks for share.
LikeLiked by 2 people
Thank you, Ron
LikeLike
🩶
LikeLike