Self-Sufficient

Isolated and incapacitated
I am prohibited from partaking
of the influx of information incessantly presented

consequently cut off
from prescribed expectations
dictating costuming and culture

external expressions of acceptance
are sorely missing, suggesting
an overall lack of self-worth.

Interestingly inverse to such conclusions
is the sudden contentment that arises
from escaping the mayhem

Internal relief overrides dictated performance
surrendering willingly to intrinsic motivation
and renewed self-acceptance.

(Originally written in 2014. Image my own)

Fortress

Illness has built
the bricks that bind
has birthed this wall

I am postnataly withdrawn.

If I emerge
it will be armed –
sharp comebacks

I am curious
about the caring
my rage running deep

Can you see it’s outlines –
zones broken out
of the practical

Quieting the hurt?

(Image AI generated)

Nested

Nestled in with childhood truths –
secondhand
perspective missing

Nursing a creeping creativity –
insignificant lucidity expanding
measurably hurried

Once social, now retreating
papered over failure
have fallen
frigid waves infiltrating
chronically pained
over and over
contemplating flight
freedom

Voiceless
expressionless
flat
even revelation muted
unmoving

protective boundaries
discussed
now crumbling
underestimated the struggle
the pervasiveness

Consider a militant approach
strident restrictions
nullifying passions
but I am a weaver

open to uncovering
blessings in failure,
compensated by soaring –
grounded yet questing
unsettled

disease is not a repellent for the mind
conjures movement in the sedentary
creatures born of defensiveness

I am motivated to find renewal
dank, moist, lacking flame
in this explosive personal nest.

(Written during my bedbound days, 2017. Edited for this edition. Image my own)


Could It Be?

Walking away –
the only solution
I’ve ever excelled at…

…and yet, absence
does not obliterate
that which dwells within

I can pretend that I have nothing
to offer, but life and circumstance
require more of me…

…a challenge to exhume
the remains of my potential…
Will I be up to the task?

There is flattery in being looked up to –
the feeling that someone needs me –
but that is akin to temptation – an ego play

Could it be that acquired knowledge
has merit only when shared;
that we are all here to offer our piece;
that in releasing what I’ve learned,
I will find flow, feel in sync again,
restore my abilities and reignite
a passion for teaching?

Dare I hope?

( I first wrote this poem in 2017, three years after being bedridden with ME. Interesting to go back now and acknowledge that life still did have purpose for me. So grateful.

Image my own)

What Remains?

Should I escape these shackles –
manage to re-surface, swim
despite this weakened condition
against the currents of disability,
find myself once again on the
solid grounds of civilization –
will I be embraced with cheers
of victory, or slotted into some
back room, reserved for the fallen,
spoken to in hushed tones,
forever handled at arms length,
an object to be feared?

And, if I manage to fight these
bonds that for so long have
threatened to annihilate,
will I have the bravery to face
the calling that once defined me,
shake off the cobwebs of
disorientation, defy the
certainty of unpreparedness,
draw from the well of past
experiences and rise to
a new battle, proving the
validity of my return?

Or, with freedom, do I look
to opportunity, clear the slate
of former ambitions, rewrite
the pages of my destiny,
embrace an attitude of
rebirth, decide to relinquish
the sword, cut my losses
and redefine a new, gentler
way of being in the world,
less dependent on a system
which undoubtedly propelled
this descent in the first place?

(My art, entitled Abandoned Forest, acrylic. This poem first appeared in 2016, when after two years bedridden with Myalgic Encephalomyelitis, I pondered what would become of me. As part of a support group now, I recognize this same struggle in others plagued by chronic illness. Personally, I eventually found my answer in the third stanza.)

We Are Mermaids

Severity of disease
defines degree of marginalization

Who will enter the darkness;
rub shoulders with despair?

Disability is entrancing
but doesn’t invite engagement

We are mythical creatures,
those of us whom fate has chosen

Passage aborted, movement
encumbered, we fantasize

about normalcy –
to be forgiven, just a day

That we might shatter
our barricades, and bound

carefree into the ocean waves –
like the mermaids that we are.

(Image my own, aided by AI)

Blues

Unshakeable blue
I am ocean drawn
willing movement
suspended…

Fears meet me here
at the blackened shore
I want to believe
trust the light…

But legs no longer carry me
and heaven forbid the tide
should bring unruly waves –
drowning would be inevitable

So, I hug the shore
hold my breath
and dream of
a more forgiving blue.

(Inspired by Sadje’s challenge: What do you see? based on featured image.)

Harmonics

6:30 a.m. alarm sounds.
“Time to wake up!” Compliance commands.
“Just a little longer,” Sensibility suggests.
Guilt, like an incessantly annoying child
tugs on Conscience:
“Come on; there’s lots to do!”
Body does not respond.

Sleep wins
and dreams come:
homeless,
relying on friends,
no food,
backed up toilet,
children’s wide eyes
fearfully imploring:
When is this all going to end?

Guild propels a return to consciousness.

8:25 a.m.
“Up and at ’em! There’s a good soldier!”
Compliance attempts to be chipper.
“There’s really nothing more important than rest,”Sensibility suggests.
“Can’t lie in bed all day!” Guilt counters.
But body is MIA.

Dreams resurface:
Setting up house in a thoroughfare
people coming and going, oblivious to intrusion
co-workers indifferent,
eyes scolding – convicting…

Guilt mutates to rage,
Body chokes, gasps,
reaches for inhaler
sucking in desperate air.

11:11 a.m.
“That’s it! Up you get!”
“No! No! Rest is needed!”
“The day is wasted! There’s no getting it back!”

“Silence!”
A new voice emerges.

A collective intake of breath.

“Breathe,” comes the message. “Just breathe.”

A unified sigh.

“And breathe again.”

Tempers cool, and emotions begin to settle.

“What’s going on?” Guilt wonders.
“Just trying to stick to routine,” Compliance defends.
“It’s always been this way.”
“But she’s ill now,” Sensibility adds, “and there needs to be concessions.”

“Breathe,” the voice reasserts, and all sigh again.
“Just be in the stillness of the moment.”

Stillness has no voice.
Its language is compassion and infinite,
infinite wisdom.

“…and surrender.”

Compliance sobs with the release of such enormous obligation.
Sensibility gratefully gives over the burden of responsibility,
and Guilt…well Guilt is little,
and happily snuggles up to Unconditional Love.

“There, there,” Voice soothes. “Isn’t harmony so much better?”

Body concurs and rises out of bed.

(Harmonics first appeared here September 2014, five months after illness left me bedridden. Image my own)