Emotional Pain Dance

A singular activity
suffices not to distract
from underlying pain –
multi-task.

Robotic attentiveness
fails to allay
constant buzzing –
re-focus.

Sidestepping issues
elicits no solace,
unravelling inevitable –
shutdown.

I am trapped
in solitary confinement,
sensory deprivation –
unleashed

momentous force
raging within
boring outwards –
scream

silently, alone,
unheard, unseen,
unburdening –
repent.

Self-pity dead ends,
breathe in life,
suppress negativity –
re-align.

Multi-tasking
ignites purpose,
smacks of productivity –
conceals.

Open To Healing

Open to healing –
delve into the subconscious
create a space for inspiration.

Ignore limited capabilities –
no offerings are meager –
enter with pure intentions.

Embrace new starts
have faith in ability
be spurred into action.

The Self holds the answers,
creative expression is the key.
No expertise required.

Life Changes

Over time and with repeated negative experiences, one becomes conditioned to expect the worst.  I think this is what happened to Thor and I.  Since 2007 we have had between us: 10 surgeries, two (very different) battles with cancer, bankruptcy, a debilitating illness, and most recently another cancer scare.

We braced ourselves for the worst.
It didn’t happen.
We are on a wait and watch cycle now.
Hope, that ever-persistence ray that keeps us going, has peeked her head out again.

Could it be that our Wheel of Fortune is turning?

The Queen is Missing

She’s not in the kitchen –
presiding over the preparations,
thriving amidst the chatter,
tutting away thieving hands.

She’s not in the classroom –
mastering subjects,
upholding order,
ruling with a charitable hand.

Nor is she at social affairs –
smiling regally,
head bent in rapt attention,
compassion oozing forth.

The Queen is missing –
the poise and grace
that marked her carriage
has vanished without a trace.

Don’t ask the old woman –
tottering down the lane
stooped and stumbling –
she’s not all there.

Her mind’s a trickster,
her ego a petulant child
unwilling to concede wrong –
she’s merely the court jester.

 

Oh, To Dream

I dream of waking before the dawn,
preparing for my day with proficiency,
professionally preened and on the go.

In reality, I see the early light of day
through an insomnia-induced haze,
or miss it altogether, unable to rise.

I will carelessly tie my hair back,
and moan at my image, forgoing cosmetics –
no one will see me, after all.

If I dress, it will be for comfort,
elasticized waistline compensating for swelling,
soft fabrics to soothe the burning aches.

In my dream it is the first day of school,
and I am excited and anxious,
caught up in the camaraderie of the moment.

I awake to the resounding silence of solitude,
no schedules await me, no colleagues
exchanging pleasantries, communal conspiracy absent.

I will pace myself, shuffling
between bed and simple tasks,
a cup of tea, maybe some writing.

I drive in my dream, a shiny red car
in which I glide through the streets
and park with the pride of knowing it awaits.

Its been years since I’ve felt the freedom
and independence of self-chauffeuring,
reliant on the more able-bodied, sharply cognizant.

It’s a rare occasion that rouses me from
this compelled complacency, enough
to venture into the hyper-stimulating world.

Disability has closed around me,
limiting experience, restricting imagination,
until I dream – and am whole again.

My Spirit Stands Strong

Progress – seldom linear –
tosses me into unexpected decline –
stranded and incapacitated.

My son – with labour-hardened strength
leaps to my side, steadying me
and I feel the fear in his caring grip.

My daughter, ever compassionate,
reaches out for me with horror-filled eyes
as my body crumples onto the bed.

My husband, my oak, seeks to comfort
his voice betraying the helplessness
this futile predicament imposes.

Beloveds, I know that you see me
this dis-abled, non-functioning shell
weakened and sickly, lying on this bed.

Do not be deceived – that is not me –
it is only an illusion –
a vessel – temporarily fettered.

I am, in essence, beside you –
ambitions and desires intact.
Feel me there, tall and proud.

Sense the wholeness of my being
remember me for the woman I am yet to be –
My spirit stands strong.

A Mountain of Grief

I exist in the spaces –
crushed and flattened –
between the rocks that form
this mountain of grief.

Each sorrowful fragment
petrified,  polished –
a collection of coldness
hardened and maintained.
I’ve never known how to grieve.

How do I shed the weightiness –
crawl out from the crevices –
breathe new life into myself?

Should I try to scale the mound?
Conquer my emotions?
Raise a flag to victory
and ultimate denial?

Or, one by one,
should I examine
and relive the losses
counting them till my head spins
and my heart beats no more?

Lacking the strength to do either
I sit and feel the hollow agony –
the overwhelming numbness
that precedes movement.

I live in the cracks
of this precariously constructed
shroud of stones –
a self-imposed prison –
and pray for resurrection.

Day 266 “Return To The One”

Lethargic limbs
immobilize
while swarms
of thoughts
like predatory
insects
buzz
about
threatening
to invade
crevices
of the mind.

Imaginary nets
fail to repel
escape eludes
breathe
breathe
visualize peace
dissolve chaos
surrender
to source
return
to the one.

Confessions From The Sick Bed

Before I was sick,
I counted the days and hours,
not because of drudgery –
I loved my job –
because I had stretched myself
beyond normal limitations.

Before I was sick,
I wore responsibility
like a superhero,
and defined by work,
prioritized tasks
above well-being.

Before I was sick,
I joked with others
about the disabled
lounging around,
living the life of leisure,
usurping the system.

Before I was sick,
I prided myself on saying “yes”,
being dependable,
loyal to a fault,
a friend to all.
I thought I was invincible.

When I started to get sick
I trudged from doctor to doctor,
underwent tests,
and humiliation,
learned to doubt myself,
and turned the blame inward.

When I started to get sick,
I chastised myself
for being overweight
and not exercising enough,
and stopped eating carbs,
and pushed harder.

When I started to get sick,
I ignored my body,
failed to set boundaries,
continued to eat on the run,
and felt ashamed
that I had let myself go.

When I started to get sick,
I was wracked with guilt
for the compromises
I had to make,
failing to juggle
so many obligations.

Now that I am sick,
I value more than ever
the importance of priorities,
recognizing that well-being
always proceeds well-doing,
and appreciate my body’s voice.

Now that I am sick,
I understand that work
does not define me,
and disappointing others
is a reality in life.
I am not invincible.

Now that I am sick,
I’ve learned that richness
is a quality of living
and not a figure
in a bank balance.
Happiness, the same.

Now that I am sick,
discernment defines
the relationships I desire,
no longer willing
to negate self
for the love of others.

Now that I am sick,
I no longer pretend,
or reach to meet standards
that fail to sustain me;
I have a new set of expectations
and am learning to be.

Now that I am sick,
I see with compassion
how insecurity
and a longing for approval
drove me to demise,
always failing in my mind.

Now that I am sick,
I pray that wisdom,
and humility
will guide my recovery,
and that life will await
this metamorphosis in me.

Life Challenges Continued

I started this blog four years ago while awaiting the results of a lumpectomy, facing the possibility of cancer and questioning life.   I ducked the bullet, but a year later my husband was not so lucky – he started treatment for Stage III prostate cancer.  Then, to complicate matters, he ruptured his quad tendon and needed reparative surgery, which had to be repeated ten weeks later when he re-injured.  The second surgery became infected and after a nightmare six months and five more operations, he was finally on the mend.  We thought the worse was behind us until I was struck down by a life altering debilitating illness that has confined me to home.  Roles in our house reversed and after a year of caring for my husband, he now has to look after me.  It is a reality that we have learned to accept, believing that the worst is behind us.

We have been naive.

A recent visit to the doctor for a routine physical has resulted in a barrage of further tests and Thor finds himself back in the care of the specialist who originally delivered the cancer diagnosis.  “There’s only a fifteen percent chance that this is cancer,” the doctor has told him, but we’ve both heard that before, and somehow, we are not as confident this time.

We are too familiar with all the signs.

So, as I write this, we are back to that awful place of waiting:  waiting for the tests that will confirm or allay our fears; waiting to know if life will be put on hold yet again; waiting to know when it is safe to plan again.

Are we being tested?  Is there opportunity in the midst of all this anguish, or is life just a random draw, and we have pulled the short straw?

In the end, we really have no control over what happens to us, and while we would not have chosen this path, there is not much we can do to change it.

We will put in our time these next few weeks, immersing ourselves in trivial distractions,
desperately trying to think about anything but the worse that can happen.  “One step at a time,” we tell ourselves.

Forgive us if we falter in our obligations, or if we appear distant or disinterested.  We have a lot on our minds.