Blessings

My mother’s feet scream with the agony
of her miserable condition,
underlying the disease that eats at her.
My feet, uncallused paddles,
slightly bent and fallen,
carry on with forgiving kindness.

My husband’s knees are red-hot pokers
shooting knife-sharp volts
with every rickety step he takes.
Mine like knots in the spindly
trunks that bear them
graciously allot me flexibility.

My father’s back grew weak with time
faltering in the end – unreliable –
as if he’d borne the weight of the world.
My back, not without its moaning,
carries me proudly, erect –
like the spring sapling, winter endured.

My uncle’s heart beats erratically,
ceasing despite its mechanical support;
his life a testimony to modern science.
My heart flutters with expectancy,
aches with disappointment,
and soars with each new birdsong.

My sister’s tension rises,
the stiffness in her neck suffocating,
headaches blinding her vision.
My neck, slung now like a rooster,
puffs around my face like an old friend,
allowing me the comfort of perspective.

My brother’s mind has seized,
lost somewhere between today
and yesteryear – never certain of either.
Mine, a constant churning cog,
gathers information, spews ideas
and bends in the face of creativity.

My eyes have seen the suffering of others;
my hands throbbed with a desire to help;
yet each bears their cross stoically,
and so I watch with compassion and gratitude
for a life I might have lived,
had my own vessel not been so blessed.

 

 

 

 

Day 261 Birth

It’s been almost a year since I received the diagnosis of ME/CFS; two years since the visits to the emergency room escalated and I knew something was very wrong; four years since I suspected my system wasn’t working right.  Step by step along the way I have died in little pieces:  watching my dreams (some shared, some personal) slip away.

While waiting for the results of Thor’s biopsy we made out a bucket list:  places we wanted to travel, activities to pursue, risks to take – all requiring energy – all beyond my capabilities right now.

I am told that people recover from this disease – thirty percent completely – and others learn to adapt to the eventual return of some functioning – and so I keep hoping.

I am not one to believe that life is a haphazard set of events and then we die.  I believe that there is purpose and opportunity around every corner and that the trials we are given are invitations to delve deeper into the mysteries of the universe and the wonders within.

With this mindset, I await the first dawning of new light:  the birth of something new.

Every day I am letting go and surrendering -accepting – this process with an open heart and mind, anxious for the labour pains to begin.

Life remains pregnant with possibilities.

Day 259 “Tao vs The World”

Everywhere I look: collisions.
Ambition struck down by mindless consumerism
defeating progress;
social networking defying purpose,
mutilating communication,
disrupting movement;
victims splayed, traumatized, numb,
flaying, bloody.
Consciousness obliterated
by blind compliance;
intrinsic motivation / instinct extinct.

Values – not possessions- endure;
understanding eliminates dominance;
integrity ensures power for all.
Mindfulness calms chaos
quenches grasping urgency
restores hope;
direction and purpose
harmonized with communal focus
realizes potential
creates greatness.

Ostracized

Disturbances alarm me
an intentional bystander
burying my head,
avoiding conflict.

Strife spills over
butting up against
personal limitations
forgetting myself
I engage
finding unforeseen strength,
defying odds
then remembering
letting go,
deflated.

I feel targeted
displaced rage
threatens me, stalks
and I am helpless
vulnerable.
My pleas for help
unheard, unanswered.

My life is at stake here people!
Pay attention!

Expectations are high
uplifted by progress;
promising road ahead-
I am out of sync
missing opportunities,
losing my place
forgotten

disability
limits me
I have no strength
but I have needs

Life taunts me
within arms reach
yet inaccessible –
rights diminished.

I crave life,
sustenance,
connection,

in isolation.

Day 253 Power

Hope glides
on the wings
of the early morning
dawn; awakening.

Whispered
promises:
new beginnings
bright possibilities.

Hope smiles
electric blue,
sunshine yellow
darkness receded.

Reality slams
the door closed
harsh recollection
shatters illusion.

Colours fade
to gray –
nothing
has changed.

Hope trails:
a gossamer thread;
a faint flutter;
refusing to die.

The soul
shuns reality’s
heavy-handed
dictation,
relying instead
on the wistful
subtleties:
a butterfly
in the wind.

Who wins
in this struggle
for absolute reign?

Do I surrender,
resign myself
to what is?

Or heed, what?
An impulse,
a glimpse?

Hope has
deceived me
before,

Reality has
proven equally
as unreliable.

Uncertainty.

Uncertainty
is the only power
that speaks the truth.

Day 252 “Discomfort”

I exist
somewhere betweeen
here and the Netherworlds.
a ghost woman,
wanderer
lost soul.

I exist
on the periphery
semi-conscious
semi-paralyzed
inept at
communicating

I exist
reliant on help
and courtesy
and goodwill
and willingness
to do for me.

I exist
disoriented
frustrated with inabilty
afraid
yearning for
home

unable to remember
where home is
or how to get there
or who to call

vague memories:
reasurrances
loving acceptance
strength and
forgiveness

I am cold
body tired
energy spent
trapped in
some-other-verse

trying to send
out a signal
rescue me
find me
I exist.

Day 246 The Pilgrimage

A soft-sided, well-worn briefcase sits slouched in a corner closet,
one side agape, a red lanyard hastily stuffed inside –
occupational identification.
A row of black, brown and gray pumps line up beside it,
a thin layer of dust betraying their idleness.
Silent, unblinking a television set recedes into the wall,
flanked on either side by images of smiling faces,
shadows of nostalgia.
Stacks of books and journals rumour
a once scholarly mind.

The woman, to whom all these trivialities once
had relevance is no longer here.

She has been called to another purpose.

No Words

I have no words
that will change your plight.

I cannot undo the past
nor change the course of your life.

I am powerless to rescue,
fix, or uplift you in your time of need.

Please know that I see you,
know that in my heart I weep.

Know that while I empathize
I can never fully understand your pain.

There is no judgment here,
only heartfelt compassion.

When I reach out a hand to you,
wordlessly, it is out of respect.

I believe in you.
I believe in your strength and your courage.

In my silence, know that I bear witness
to the potential that lies within and before you.

I believe in the power of your own love to overcome.
There are no words to define what is possible in life.

(Image: imgarcade.com)

Day 243 Violence and Peace

The rage within my father was tangible and made him larger than life, the potential for violence ever-present.

My mother’s attempts at peace-making were fueled by trepidation – always on the lookout, hoping against hope to maintain calm.

Both adopted the facade that ‘all was well’ and deeply denied the reality.

The result – an unnameable terror that gripped us children.  No logic explained the tension that surrounded us, however; we understood without doubt that a threat hovered over us in every living moment.

Mother’s attempts at peace were merely misguided acts of enablement; empowering, not disarming my Father.

Uncontested he reigned tyrannically; yet, what he really longed for was peace.

Peace, not peace-making.

Father longed for a sense of acceptance and acknowledgement that was beyond his grasp.  He was society’s outcast:  unwittingly born into an era where gender definitions were polarized – male or female.  He did not know – we did not know – about genetics and the sliding scale that defines gender identification and sexual orientation.  He was forced to conform and, therefore; denied basic human rights.

My mother, whose understanding of all things sexual came from watching the animals rut on the farm where she grew up, and pushing away unwanted advances from her father and siblings, was not equipped to understand the enigma presented to her by her husband.  She only knew that this tortured soul of a man was the provider for herself and her role was to be submissive and nurturing.  She found herself trapped between his ‘awful’ secret and trying to maintain an outer appearance of normalcy.

It was dysfunction at its finest.  Unable to resolve their own issues they looked outward, finding causes within their children’s lives to replace their compulsive need to fix.  There was never any shortage of broken, needy, helpless occurrences to satisfy their lust.

The answer to violence, and the threat of violence, at least in our home, was not peace-making.  In hindsight, it was a need for individualized peace – an understanding of differences, motivations, desires, and a stated acceptance that allowed us to come together in respect and honour for our diversity.

An atmosphere of open-mindedness would have allowed father to reveal his truth.

Assertiveness, on the part of my mother, would have allowed her to set healthy boundaries and limits defining her participation (or not) in my father’s reveal.

Trust in the basic nature of our love for one another might have prevented the constant need for self-preservation, which only turned us away, one from the other.

Inner peace offers a strength that fortifies against fear and outrageousness.  It believes in a wisdom that transcends time and space; offering the possibility of order and compassion in the midst of chaos.

The concept of peace – real peace- was not part of my growing up.

Without peace, violence – physical, mental, psychological, emotional or spiritual – reigns.

Day 185 “The Desire to Control”

In the bedroom, my mother is trying to settle the baby.  I am in the kitchen trying to clean up when a gust of wind, followed by a wall of water hits me.  The floor around me is quickly filling up with this flood of elements and I push my way through to find the source:  the sliding glass window on my third story balcony is bent and off the track, unwilling to close. 

“Grab me duct tape,” I yell, but no one hears me, so I rush to find it, trying desperately to minimize the damage. 

Duct tape is no match for the storm brewing outside.  There is no way to fix this problem.

This dream has unsettled me.  I can’t shake the image and the feeling of hopelessness.  Too many responsibilities.  Too many things in need of repair.  How did everything get so out of control?

I know it is a dream, but the need for my inhaler coming out of it is real.  I have been struggling for weeks, no months, to get my breathing stabilized, and it is weighing on me.  I am the same age my father was when he was diagnosed with emphysema; is this to be my fate also?

I try to go back to sleep, but can’t shake the image and the feeling that there is no solution.  This is the end, my dream self realizes.  When I do slide back, the images are no different:  my baby daughter drowning in a pool and no one reacting but me, and I am too late; trying to take a shortcut home through the woods, only to find it is a dead end, blocked by police who turn me around, then realizing I have lost everyone, including myself. 

Deep despair.

The dream is flooded with images from my life.

The setting is reminiscent of the apartment I rented after my first divorce.  Marriage was to have been my salvation, but instead, here I was, more broken than before thrown back into the turmoil.  Just released from the hospital, my sister Mai came to live with me.  She was too fragile to live with my other sister, but the two were often present, adding to the chaos in my home.

The kitchen was how I defined myself at the time.  I could cook – had cooked at home for the family – and I became the mother figure for all lost and single souls looking for a home cooked meal and a warm place to land.  No one seemed to mind that my schizophrenic sister sat rocking endlessly in a chair in the corner, nor that my ailing (mentally as well as physically) older sister would drop in unexpectedly, bringing with her a constant storm of drama.   Maybe it was dinner theater for those whose lives were comparatively tame.

The baby is my middle daughter, who traumatized by illness during pregnancy, struggled in the first years of her life, unable to sleep and constantly screaming in pain.  For three years we dragged her from one specialist to the next desperately looking for an answer and eventually found one, but I remember the daily heart wrenching  feeling of inadequacy as a mother who couldn’t meet her child’s needs.

The path into the woods was the one I took so many days as a child to find solace.  Deep in the shelter of trees, there was peace and tranquility and it filled my soul many days and gave me the courage to carry on. The path is long gone and many have been lost in my life, myself included.

All my life, I have fought to overcome.  Overcome failure, dis-ease, dis-order, and in-sanity.

Bottom line, as the dream so eloquently points out, is that there never is a way to fix all that.  There is no sudden solution or ending.  The storms of life rage on, ready to unleash their power at any time, and the only hope – the only answer – is to hold ground through it and humbly pick up the pieces afterwards, knowing that this is the best anyone can do; the best anyone can be.

Control is an illusion.