Oh, To Dream

I dream of waking before the dawn,
preparing for my day with proficiency,
professionally preened and on the go.

In reality, I see the early light of day
through an insomnia-induced haze,
or miss it altogether, unable to rise.

I will carelessly tie my hair back,
and moan at my image, forgoing cosmetics –
no one will see me, after all.

If I dress, it will be for comfort,
elasticized waistline compensating for swelling,
soft fabrics to soothe the burning aches.

In my dream it is the first day of school,
and I am excited and anxious,
caught up in the camaraderie of the moment.

I awake to the resounding silence of solitude,
no schedules await me, no colleagues
exchanging pleasantries, communal conspiracy absent.

I will pace myself, shuffling
between bed and simple tasks,
a cup of tea, maybe some writing.

I drive in my dream, a shiny red car
in which I glide through the streets
and park with the pride of knowing it awaits.

Its been years since I’ve felt the freedom
and independence of self-chauffeuring,
reliant on the more able-bodied, sharply cognizant.

It’s a rare occasion that rouses me from
this compelled complacency, enough
to venture into the hyper-stimulating world.

Disability has closed around me,
limiting experience, restricting imagination,
until I dream – and am whole again.

My Spirit Stands Strong

Progress – seldom linear –
tosses me into unexpected decline –
stranded and incapacitated.

My son – with labour-hardened strength
leaps to my side, steadying me
and I feel the fear in his caring grip.

My daughter, ever compassionate,
reaches out for me with horror-filled eyes
as my body crumples onto the bed.

My husband, my oak, seeks to comfort
his voice betraying the helplessness
this futile predicament imposes.

Beloveds, I know that you see me
this dis-abled, non-functioning shell
weakened and sickly, lying on this bed.

Do not be deceived – that is not me –
it is only an illusion –
a vessel – temporarily fettered.

I am, in essence, beside you –
ambitions and desires intact.
Feel me there, tall and proud.

Sense the wholeness of my being
remember me for the woman I am yet to be –
My spirit stands strong.

A Mountain of Grief

I exist in the spaces –
crushed and flattened –
between the rocks that form
this mountain of grief.

Each sorrowful fragment
petrified,  polished –
a collection of coldness
hardened and maintained.
I’ve never known how to grieve.

How do I shed the weightiness –
crawl out from the crevices –
breathe new life into myself?

Should I try to scale the mound?
Conquer my emotions?
Raise a flag to victory
and ultimate denial?

Or, one by one,
should I examine
and relive the losses
counting them till my head spins
and my heart beats no more?

Lacking the strength to do either
I sit and feel the hollow agony –
the overwhelming numbness
that precedes movement.

I live in the cracks
of this precariously constructed
shroud of stones –
a self-imposed prison –
and pray for resurrection.

A Room of My Own

” I have a recurring image in my dreams of a house with two floors that I have either forgotten about or abandoned. Both have separate staircases, and while others are aware of the one set of stairs, the other is only known by me,” I tell my therapist. “I get the irony of having two stories hovering over me,” I add. “But haven’t really worked with it. The one floor has many bedrooms and bathrooms and feels overwhelming.”

“What’s on the other floor?”

“A single room, like an attic, that sits at the front of the house. A room with a view,” I joke.

“What’s in the room?”

“A lot of cobwebs, as if I haven’t been there for a long time, and only two pieces of furniture. I think that it represents my spiritual connection – a kind of sacred sanctuary that I have neglected.”

“I think that should be your homework,” she advises me. “Decide what you want to do with that room – create a visual of a room that brings you peace or whatever else you need to maintain equilibrium. I think its’ especially important at this time.”

It’s not that I disagree with her, but I find this exercise difficult. Born fifth of six children, I have seldom experienced a room of my own. Even after I left home, I had roommates, or husbands, then children, and the focus has been on compromise or pleasing others. What would a room of my own look like?

I picture myself back in the dream, in the room with many cobwebs, and in my mind’s eye that’s where I begin: cleaning away the cobwebs. I would paint the walls lavender, I decide: a soft, comforting colour, reminding me to be tender with myself. And I’d have three windows – one facing forward and two on the sides to create a cross breeze, so the wind would always blow and the thoughts that normally crowd my mind could follow the wind. And I’d have crisp, white lace curtains, to add a touch of delicacy to the room. There would be no window looking back.

One of the pieces of furniture is an old cedar chest that once belonged to my mother – her original hope chest. Battered on the outside from years of use and being moved frequently, the chest’s cedar interior remains pristine – aromatic and well-constructed. It reminds me of a time when I believed in magic and mystery – childhood fantasies of what the chest contained; although my mother always reassured it held nothing fancy, I liked to imagine otherwise.

The other item in the room is a Bentwood rocking chair. “Rocking is a comforting motion,” my therapist reminded me, “something mothers do with their babies.” “I still like to rock,” I agree. Why a Bentwood, I wonder?

Like my mother’s hope chest, my Bentwood rocker was the first thing I brought into a marital home. It symbolized my wishes for a cozy home life, and the children that would follow – a woman’s hopes and dreams. Why are they in this room? Is the dream telling me that it is important to hang on to one’s dreams – or at least one’s values? So much has happened throughout the years that I wonder if that’s possible. How many times does a woman get knocked down before she stops believing that family, harmony, and peace can exist?

I’ll trust my dream source and keep these two pieces of furniture. What else does this room need? Music, I instantly think, I need a source of music, and not just my cellphone playlist – I will not have a cellphone here – that’s for certain. No wi-fi either. I’ll need a word processor, and if I need to look something up, well I can go return to the life of electronics by leaving my room.

If I’m going to write here, I’ll need a desk, or one of those lounging sofas so that I can sit comfortably while I compose. Shelves for books, too, so I can surround myself with inspiration.

An easel. I’d like an easel. Not that I’ve painted in a very long time, but maybe I could dabble – it’s something I always wanted to learn to do. Sketch books, of course, and art supplies. I wouldn’t restrain myself. This is my room, after all.
I would need art on the walls – water colours of beautiful landscapes, or seascapes – or maybe works of my own creation – making sure the view out my
window is always a beautiful one.

A view. Whose heart doesn’t yearn for a view? I’d have a big old willow tree, constantly reminding me of long ago summers, whiling away lazy days in on the uppermost branches. And water too – although my cravings fluctuate from the laughing chorus of a trickling stream, to the lulling waves of the ocean – water is a must. No roads, or buildings. Just green as far as the eye can see, or fields of wildflowers – nature at its best.

I’m enjoying this exercise. Even as I write this, I can feel the tension in my mind easing, and the possibilities singing inside me. A place of peace, of sanity, and restoration. A safe place where I can explore my creativity or just sit and soak in the beauty and tranquility. A place where time stands still and there are no disruptions. A kind of heaven.

Next step: Who would invite in this room with me? Hmm, more contemplation needed.

What would your room look like?

Day 266 “Return To The One”

Lethargic limbs
immobilize
while swarms
of thoughts
like predatory
insects
buzz
about
threatening
to invade
crevices
of the mind.

Imaginary nets
fail to repel
escape eludes
breathe
breathe
visualize peace
dissolve chaos
surrender
to source
return
to the one.

Confessions From The Sick Bed

Before I was sick,
I counted the days and hours,
not because of drudgery –
I loved my job –
because I had stretched myself
beyond normal limitations.

Before I was sick,
I wore responsibility
like a superhero,
and defined by work,
prioritized tasks
above well-being.

Before I was sick,
I joked with others
about the disabled
lounging around,
living the life of leisure,
usurping the system.

Before I was sick,
I prided myself on saying “yes”,
being dependable,
loyal to a fault,
a friend to all.
I thought I was invincible.

When I started to get sick
I trudged from doctor to doctor,
underwent tests,
and humiliation,
learned to doubt myself,
and turned the blame inward.

When I started to get sick,
I chastised myself
for being overweight
and not exercising enough,
and stopped eating carbs,
and pushed harder.

When I started to get sick,
I ignored my body,
failed to set boundaries,
continued to eat on the run,
and felt ashamed
that I had let myself go.

When I started to get sick,
I was wracked with guilt
for the compromises
I had to make,
failing to juggle
so many obligations.

Now that I am sick,
I value more than ever
the importance of priorities,
recognizing that well-being
always proceeds well-doing,
and appreciate my body’s voice.

Now that I am sick,
I understand that work
does not define me,
and disappointing others
is a reality in life.
I am not invincible.

Now that I am sick,
I’ve learned that richness
is a quality of living
and not a figure
in a bank balance.
Happiness, the same.

Now that I am sick,
discernment defines
the relationships I desire,
no longer willing
to negate self
for the love of others.

Now that I am sick,
I no longer pretend,
or reach to meet standards
that fail to sustain me;
I have a new set of expectations
and am learning to be.

Now that I am sick,
I see with compassion
how insecurity
and a longing for approval
drove me to demise,
always failing in my mind.

Now that I am sick,
I pray that wisdom,
and humility
will guide my recovery,
and that life will await
this metamorphosis in me.

Dump Truck

Cumbersome and heavyweight,
determination driving,
I roll with a shudder,
ignoring limitations,
promising caution,
pretending control.

Road blocks, detours,
and bustle –
everywhere bustle!
Unavoidable confusion.

(Control, it seems, is illusory.
How had I not anticipated this?)

Rattled intentions-
delayed reactions –
slowed starts.
I am an abomination.

Children dart about,
heightening my angst.
Go-getters impatient,
rev at my sluggishness.

(Get out of the way!)

Compliance compels, but
the girth of my metal
inevitably obstructs –
Misfits are not welcome here.

My load is heavy –
grievances topped with
personal dramas, blended
with ingested toxins.

(Warning: compassion is low!)

My apologetic countenance
masks underlying menace –
Do not misread hesitation.
A beast is poised to strike.

(Control, remember, is illusory.)

Labyrinth

I am a tourist in this life.
Expectations of enlightenment,
education and entertainment,
spur me forward with excited anticipation.
Feed me discovery in ordered exhibits,
carefully construed facades of control,
garner me with a sense of security:
I am an eager explorer, readily engaged.

By the time wariness enter my consciousness,
I am too far in, committed to the direction,
unable to turn back – the folly of my naiveté
taking hold.  I feel the panic set in – forge ahead –
now driven by fear, not wonder – I see a light.
Relief! Temporarily. All is not as it seems.
Security is not solid. Boundaries are blurred.
I have ventured too deep into this maze of horror.

Injustice and lawlessness surround me –
relentless battery, unbridled savagery,
mummified memories claw at my soul.
I am not willing to die this way-
my screams powerless against a
raging reality, willing my demise.
Is there no sympathy to be had?
The nightmare continues.

I am a student of life,
reluctantly enrolled in a program
that I should have already mastered,
seeking enlightenment in the tucked
away crevices of existence,
crowding in with other lost souls –
expectant, dubious, involuntary –
arrogance and superiority my walls.

I sit amongst the delinquents.
Cynicism blocks flowery attempts
to win me over, nor am I swayed
by blatant appeals to primitive appetites.
I have grown callous, and calculated
hardened by my journey – and when
the lesson comes, delivered in an
unfamiliar tongue – I deflect.

But wait. Despite my hard-heartedness –
hard-headedness – truth seeps
into the corners of my mind and
with coinciding dismay and delight
I realize the folly of my ignorance:
In the struggle between survival
and striving, so much has been overlooked.
I am finding my way out of the maze.

Accepting Self

Desiring reconnection with life,
a longing for purposeful normalcy,
I push forward, intentionally ignoring
advice to the contrary.

Original intention well-meaning
(but not thought through)
minimal exertion is what’s called for,
but I feel inspired to do more.

Former strength now lost,
new awareness on the periphery,
hindered only by this cloudy head-
executive functioning currently disabled.

Bottom line is I must come clean,
stop overstating my capacity,
accept the unpredictable,
and recognize my limitations.

Embrace the lesson of constraints
and stop sabotaging the journey.
I am what I am, not a former definition
based on a life now redundant.

Naked, I fear that someone will see me –
I fear that they will not see me –
desire for acknowledgment,
a very human condition.

I need to ignore the obstacles,
wholeheartedly, without compromise,
reveal myself – no longer hidden.
I am, after all, what I am.

Changing Direction

This path I walk is not my own;
it’s paved with genetic markers,
familial dysfunction, and ancestral angst.
Can you see them walking with me?
Those whose lives were cut too short –
the addicts, the tortured, the diseased-
none of us free- ensconced in blame.

If you walk with me,
I’ll help you carry your burden
and you can support me with mine.

I stand at the intersection
of broken dreams and hope for tomorrow
and in my altered state of awareness
see the commonality of our striving,
understand the patterns that divide,
and grasp the illusion of injustice
that denigrates our interconnectedness.

If you walk with me,
I’ll help you carry your burden
and you can support me with mine.

I stop and wait for an opening
to share this revelation
of underlying harmonious intent,
but the whir of societal traffic
complicates communication,
and I can find no voice to cut
through the din of the dead.

If you walk with me,
I’ll help you carry your burden
and you can support me with mine.

I turn the corner on my old life,
detach with loving sorrow
from a road that never served me,
a direction wrought only with pain.
Tiny arms await me on this open road,
eyes wide with wonder and possibility.
There is joy to be found along the way.

If you walk with me,
I’ll share this new adventure
and together, we’ll have much to gain.