Enrolment

If life was an English class
I’d enroll again for high school,
concentrate on the editing,
hope to gain something
the second time through

I’d excel at the assignments –
experience adds so much maturity
to the written word – and teachers
would deliberate and decide
that I don’t belong, and where

would that leave me?
Both the rigidity of self-judgment
and my softer, creative side
lecture me on the futility
of repeating past success or failure,

but; what else is there in life
to desire; what options lie ahead
for this diseased self: imposed
rest feeds my reflective side,
my mind regresses unwittingly.

I could study psychology, finish
a program once started, then
abandoned (a pattern I loathe),
but what merit lies there –
another backwards movement.

And what is this damnable urge
to perfect what has been, rewrite
the past, excel in the literature
of my own story?  I am destined
play a secondary role, foibles

contributing to the charm of
my character – maybe I should
enroll in a course on acceptance
learn to embrace the folly of
my youth, point myself forward.

(Image: www.bbc.co.uk)

 

Resort

If only life were a resort –
catered to meals, bed maids
who shuffle out of sight so as
to not disturb the illusion

that life is magical, comfort
a finger snap away; I’d refrain
from interaction, recognizing
celebrity amidst the guests –

imagine the surprise if one
should notice me: this fragile
ego pressured by the praise
would gush volumes, convince

me of genuine interest, ignore
glazed eyes, fail to appreciate
the bombs of emotion spewing
from my war-tattered mouth –

insights always come too late
to save me: my words, like drugs,
an excessive expense; my soul,
undervalued, strewn across

computer screens; I am Paris Hilton
regretting the exposure, trying to
keep afloat in a sea of superstitious
idiosyncrasies – an artist’s bane –

an acrobat, needing to balance
performance with observation,
resorting to bouts of self-
deprivation – no vacation here.

(Image: www.extravaganzi.com)

Now, A Little About Me

Poetry, the words penned on this blog, have emerged as a gift from the darkness of a debilitating disease.

Three years ago, I was a special education teacher, loving my career, volunteering with the junior girls’ basketball team, and making plans with my husband for our next trip.  I had been diagnosed with Fibromyalgia in 2010, but a change in diet and weekly trips for acupuncture seemed to keep that at bay.  True, I could no longer participate in the acting group I’d so loved, or play tennis quite as actively as before, but that was compensated for by the arrival of grandchildren in our lives.

Then, in the middle of summer, 2013, I came down with pneumonia, and although my lungs seemed to clear with the prescribed medication, I continued to have breathing problems, accelerated heart rate, and bouts of severe dizziness.  I saw specialist after specialist, all with differing opinions, and then, thankfully, my respiratory doctor diagnosed Chronic Fatigue Syndrome.

“Myalgic Encephalomyelitis” is the formal term, my family doctor explained, although most recently she told me it’s been renamed Central Sensitivity Syndrome in an attempt to explain the varying complex symptoms.

By May of the next year, I could no longer drive without falling asleep at the wheel; had lost my ability to do math; was losing recognition of words; and could not climb a flight of stairs.  Sitting and standing became incredibly taxing, and at my very worst, I could not tolerate food – ugly sores would break out in my mouth and face, and my stomach would swell painfully.

Social interaction was exhausting, and watching television overly stimulating.  I spent hours on end lying in a darkened room in silence.  Scents were enough to send my nervous system into overload, and sudden noises made me startle like a baby.  I could not concentrate enough to read .

Words were my saviour.  Ideas floated around in my consciousness, forming images that I would cling to until I was able to find the words to release them.  Poems, like shining beacons of hope, emerged, and I felt brief interludes of accomplishment, as if my life still mattered, as if I still had purpose.

This past year, there has been improvement.  I am able to be out of bed longer, and with the help of a homemaker, can even prepare a few meals, and best of all, get out of the house to visit with friends, or have a meal out.

I came across this Ted Talk this morning, posted on Facebook, in which the speaker reveals her journey with ME.   An articulate speaker, Jen Brea has become an active voice in the crusade to bring this disease to the forefront of medical awareness.

I invite you to watch Jen Brea.

 

 

 

 

 

 

 

Mermaid Dreams

Descending
into the mythical,
entranced,
supported by
the severity of
this current difficulty

call it fantasy,
but attempting
movement is
destroying my
passage

I am pulling,
shattering
this barricade
of a life; blue
progressing:
ocean bound.

(Image: nauticalcottageblog.com)

To see how I created this poem visit: Composing Poetry

 

 

Blogging Confidential

Find comfort amongst bloggers,
witness the birth of writers,
misplace my own purpose, fallen

gather ideas, maintain my shame;
I am a fictional character, having
miscarried my own story, declined

into dirt – dangerous; energy limited,
no stores to drive me, never really
known a home where peace dwells,

where brilliance is nurtured, worn
down with beatings, ascribed to
independence too young, immature

chose boisterousness over gentleness,
became a second/third-hand wife,
parent, place last behind responsibility.

beat myself up now over my stupidity,
lack of credibility, an obligatory failure –
any wisdom preserved redundant.

Stop already!  This is but a one-sided
tale coloured by shame – change the
lens, multiple stories await birthing

find comfort amongst bloggers,
witness the growth of writers,
recognize the shared experience.

Toppled Anger

(A little light-hearted word play.  Hope you enjoy.)

Anger, invested in former foibles –
an underground agent for disaster –
makes recommendations, promotes
aggressive agenda, takes the lead,
direction (or lack of it) exploding,
repurposes itself, expectations
that its self-serving cause is
perfectly understandable.

Understand perfectly
that self-serving causes
are expectations, repurposed
explosions of misdirections,
leading takes agenda,
aggressive promotion
recommendations make
disastrous agents for
underground foibles,
formerly invested in anger.

(Image: teddyray.com)

Arachnophobia

Creativity –
eight-legged predator –
invades the decks
of my listing mind,
reproducing rapidly.

Her generous,
bejewelled appendages
skittering beneath
my plastic-boned
Caucasian frailty.

I hesitate –
friend or foe?
Should I trample
crush this invasion,
or surrender…
risk madness?

We are ocean –
bound, shoreless
prefer interior spaces
wary of open vistas
equally vulnerable
collapsible

Skittish
evaders
intent on
escape
future
uncertain…

I flee
creativity’s
lair – enter
into darker
passages

Destiny –
creativity’s cousin –
awaits, tail raised
in venomous arc –
dances a warning
does not
strike

body
glowing
phosphorus
green,
melts into
swirling,
flourescent
particles of
Kundalini
rising.

(Image: fineartamerica.com)

 

Reticent Poet

Find me in the audience,
three rows back, amidst
enthusiasts, humbled by
your expertise, perched,

questions burning tongue,
too reticent to find a voice,
afraid of being discovered,
ridiculed, or misconstrued,

as if you found my poetry,
see only the images formed
there, miss the raw emotion.
I’d want to scream “Stop!”

Too many polished writers
whose words, in black and
white, float through the web
while mine are immobilized

Yet, I return, hungry to feast
from the same banquet, miss
what is being served up, as I
have no plate ready to receive.

Poet’s Quandary

If
I were
to write
every day
for one
hundred days,
would my soul
be purged of
this malaise;
is it a thing
to be dredged,
dragged up –
twisted
and tied
like tattered
bed sheets
knotted
together;
is there
a remedy
for this
scourge;
or is this
an inherent
restlessness,
a fiery blue
spark of eternal
angst igniting
passion – a call
to write?

Creative Process

Routine, I find, is both a comfort and a discomfort.  Stripped of all routine when I first became ill, I floundered about looking for some order to the resulting chaos.  I longed for a routine, like a navigational device, to help me define exactly where I was in all the madness.  (Still compass-less I’m afraid.)

At the same time, I fear a numbing sameness – a morose monotony of nonsensical repetition.  I remember doing anything to break the boredom – taking a different route home from work, turning my lessons upside down, or rearranging the classroom – anything to invite new energy.

I feel the same about writing.  It is seductive to find a comfort zone and stay there – convincing myself that this is perfecting my craft, however; I suspect a trap.  Ego, I’ve noted, likes to sabotage.  Exploration is the only way to expand creativity and ignite revelation.

Let me illustrate.  Take a simple thought:

I cried because I was alone
then opening my eyes
discovered another
also alone
my image in the mirror.

Possibly interesting concept, dull delivery.  The image craves development.  One thing I have been experimenting with (wherever possible) is removing pronouns, or any references that personalize my poetry.

loneliness cried
opening eyes
discovered another
also alone
mirror image

Well, this is better, but sounds like a flowery way of saying misery loves company and that’s not the essence I wanted to capture.  What if I do some word/concept association?  Will this help me expand my ideas?

loneliness – feeling of rejection, abandonment, not belonging, desire unrequited, left out
crying – tears, release, unable to contain, unrestrained emotion, grief
open-eyed – awakening, willing to see, open to possibility, searchingdiscovery – new appreciation, renewed hope, joy, alternatives, perspective
other – outsider, relationship, communion, community, connection
alone – isolated, cut-off, solitude, retreat, respite
mirror image – reflection, reversal, commonality, empathy/sympathy, not alone

Not sure this helped, but I’ll try putting it back together using the associations.  Maybe I’ll play up the personification.

Loneliness,
abandoned and rejected,
grieved unrestrained,
then willingly,
hesitatingly,
opening to possibility,
discovered hope,
connection,
in solitude –
not alone.

I like this better – the message is more satisfying.  What happens if I turn the whole thing upside (taking liberties, of course)?


In solitude,
connection
discovers –
hope, and
possibility –
opening.

Hesitatingly,
willingly,
unrestrained grief
abandons,
rejects,
loneliness.

Wow – I like this even more.  I feel as if it is an invitation from the soul to grieve.

I challenge you to explore and expand your own writing.  What hidden messages await your discovery?