Day 261 Birth

It’s been almost a year since I received the diagnosis of ME/CFS; two years since the visits to the emergency room escalated and I knew something was very wrong; four years since I suspected my system wasn’t working right.  Step by step along the way I have died in little pieces:  watching my dreams (some shared, some personal) slip away.

While waiting for the results of Thor’s biopsy we made out a bucket list:  places we wanted to travel, activities to pursue, risks to take – all requiring energy – all beyond my capabilities right now.

I am told that people recover from this disease – thirty percent completely – and others learn to adapt to the eventual return of some functioning – and so I keep hoping.

I am not one to believe that life is a haphazard set of events and then we die.  I believe that there is purpose and opportunity around every corner and that the trials we are given are invitations to delve deeper into the mysteries of the universe and the wonders within.

With this mindset, I await the first dawning of new light:  the birth of something new.

Every day I am letting go and surrendering -accepting – this process with an open heart and mind, anxious for the labour pains to begin.

Life remains pregnant with possibilities.

Knightmare Shattered

I had a dream once, and along the way
my fairytale destination was thwarted,
upside-downed by malicious intentions,
external influences, and scheming manipulators.

Unconditional love beckoned with promises of protection,
A golden haloed knight, stirring my hopeful heart.

Revelation freed me, renewed potential
bolstered lost aspirations, and I coupled,
surrendering soul selflessly, sealing it
with heated arousal; passionate commitment.

Unconditional love beckoned with promises of protection,
A golden haloed knight, stirring my hopeful heart.

Perseverance brought union, and resigning myself
whole-heartedly participated in companionship,
receiving confessions, uncovering delusions,
sporting reminders of my naivete.

Unconditional love beckoned with promises of protection,
A golden haloed knight, stirring my hopeful heart.

Re-examination of personal duplicity,
reveals wounded obsessions and disguised strategizing.
Taking the initiative, I question at last,the authenticity of my life story.

Unconditional love beckons with false promises
No golden haired knight will fulfill my heart.

Pleas(e)

If you see me,
rapt up in battle,
wrestling a would-be assassin,
my life precariously hanging in limbo,
no professionals in sight,
please don’t walk away.

I am alone and tiring,
and my assailant is intense –
forcefully focused on bringing me down,
and I am fighting with a strength
I didn’t know I possessed,
and cannot depend on.

Am I shadow boxing?
Fighting a foe no other than myself?
Is this an act of futility
and I a fool for trying?
Should I lie down and play dead
and take my chances?

My spirit says “No!”
I’m not ready to die!
So I fight, and I fight
straining to restrain
my grip tightening
I dare not let go.

And I would not mind if you’d step in
and give me a hand
and take up the struggle with me
offering enough support
that I might call for help
now, when it’s really needed.

‘Cause, strong as I seem
my control is clumsy at best,
and it is only by some strange miracle
that I am winning at all.
So please, before I am lost,
If you see me, struggling with life,
don’t walk away.

Day 260 “The Laughing Buddha”

At seventeen, my mother married an airman, hopped on the back of his motorcycle and travelled across Canada to northern B.C. to begin a new life. When they returned, after the war, it was to a tiny rural home with no running water or electricity, where she gave birth to twins. Two more babies would follow, as would the realization that her husband was a womanizer and sadist, taunting her with his conquests and beating her when she complained. When he finally left her, destitute with four children, she met and married my father, who brought with him a whole new series of challenges, and they had two more children together.

Illness followed her throughout her life, as lung failure in childhood, a broken back when we babies where young, and three rounds of cancer. Now in her late eighties, she lives out her days, cared for in a nursing home. She is frail, and constantly in pain, and yet, her essence remains.

Forever smiling and laughing, my mother embraces the good and bad in life without judgment. She finds delight in the smallest thing, and in every person she meets. I have rarely seen her feeling sorry for herself, and if she does, it is with a “this too shall pass” attitude.

As a teenager, I would cringe when she would engage total strangers in conversation in an elevator, stating the obvious “Let’s all stare at the buttons now so as to not look at one another,” eliciting smiles and chuckles all around. A trip to the mall would involve multiple asides, as she’d say “hello” to this one, or “buck up” to another, likely all strangers, and definitely all warmed by her open warmth.

Her days were spent hovering over the stove or kitchen sink, a tea towel over her shoulder and a song bellowing from her lips, punctuated here and there by a tap dance.

Everything about my mother exudes joy.

Even today, when I call her at the Home, there will be a flurry of activity in the background – staff and peers drawn to her light. “They call me Mom!” she giggles.

As I lie here in my bed, fighting off the demons of depression, I think of my mom, and all that she has endured and take a page from her book.

“We can’t do anything about the things that happen to us,” she might say. “But we can choose the attitude with which we face them. Why cry when laughter is so much better?”

So today, I dedicate this page to my mother: my Laughing Buddha.

Who is the inspiration for joy in your life?

Day 259 “Tao vs The World”

Everywhere I look: collisions.
Ambition struck down by mindless consumerism
defeating progress;
social networking defying purpose,
mutilating communication,
disrupting movement;
victims splayed, traumatized, numb,
flaying, bloody.
Consciousness obliterated
by blind compliance;
intrinsic motivation / instinct extinct.

Values – not possessions- endure;
understanding eliminates dominance;
integrity ensures power for all.
Mindfulness calms chaos
quenches grasping urgency
restores hope;
direction and purpose
harmonized with communal focus
realizes potential
creates greatness.

Day 258 “Empires”

Scaly slate wings entomb;
morbid fear rank;
visions blurred by despair-
my father’s empire.

Manacled, powerless
an involuntary accomplice;
Mother’s words attempt to assuage
Her eyes scream: “Run!”

Rigidly erect the Emperor
regards us condescendingly:
sneering, denying culpability
while the dragon’s tail tightens its grip.

Prisoner of this desolate reality
I shrivel, and decline
withdrawing inward
my flame an imperceptible smouldering.

Until a whispering of possibility
planted deep within the rubble
pushes upwards, grows silently
constructing, perfecting armour.

Life or death uncertain
I face the tyrant
Call him out and hold steady
Against the roaring of the beast.

Time and perseverance
Slay the ungodly
reducing omnipotence,
to pitiful pleading for mercy.

Welcoming the sunshine
embracing peace
and personal freedom,
I grant him forgiveness

and pray from my place
of solitude and healing
that  my perceived oppressor
will, one day, forgive me.

retracting

shrivelled at my feet
begging for forgiveness

pining for kindness
disbelieving heart.

Day 257 “Watercourse”

You’d think that sleep would be my friend.
Like a lover she would seduce me,
lulling me into her black oblivion,
coaxing me into her ocean of darkness
a current of ever-changing images
gently rocking and soothing:
restoration.

You’d think that sleep would be my friend,
But she is a multi-armed demon
tossing me from shore to shore
taunting me with her liquid blackness
abandoning me, exhausted and spent
the last laps of receding tide washing over me,
as dawn’s first rays ignite.

If sleep is an ocean,
then I am the castaway,
capsized,
stranded,
hopeless.

How did this shipwreck occur?
What sin did I perpetuate,
To set me on this tumultuous course.
What sacrifice must my soul make
For sleep to once again be my friend?

Day 256 “Letters and Words”

Letters jostle for position
back-up
attempt to regroup
get detoured.

Frustration builds
and obstacles
pop-up –
cognition faltering.

Circuits are jumbled
pathways rerouting
patience exploding
expression lost.

Word recall
out of order
Word recognition
under construction.

Is there an exit
from this nightmare?

Day 255 “Take a Step Back”

I am living in my father’s house
with a man who said ‘I do”
then didn’t – at least not with me.

These walls, built with lies,
deception whispering in each corner-
betrayal bouncing off my lover’s soul.

No comfort is found here,
Expectations are beyond me
I am over my head.  Stop!

Take a step back.
The house is vacant,
past inhabitants now ghosts.

I have a voice.

I have a voice.

Here is not the place to use it.

Take a step back.
Walk away.
Victory is not the goal.

Take a step back.
Let it go.
These are but hollow, old walls.

A Final Mystery

Is death a gentle reprieve,
a final release of suffering
a promised resting place?

Or is it contemplation
coloured by memories
demanding retribution?

Will death bring reunion
unleash forgiveness
shine with revelation?

Will one final earthly breath
call forth all the fragments of the soul
and restore wholeness?

I have witnessed death –
both embraced and unwanted –
snatch the spirit from its nest

felt the whoosh of escape
and a swirl of celebration,
known the peace that follows

witnessed the body, open-eyed
and open-mouthed
become a vacuum –

discarded membranes;
an impotent shell.

The spirit does not dwell there;
it lives on borrowed time.

Where it goes when all is done
remains life’s poignant mystery.