Day 257 “Watercourse”

You’d think that sleep would be my friend.
Like a lover she would seduce me,
lulling me into her black oblivion,
coaxing me into her ocean of darkness
a current of ever-changing images
gently rocking and soothing:
restoration.

You’d think that sleep would be my friend,
But she is a multi-armed demon
tossing me from shore to shore
taunting me with her liquid blackness
abandoning me, exhausted and spent
the last laps of receding tide washing over me,
as dawn’s first rays ignite.

If sleep is an ocean,
then I am the castaway,
capsized,
stranded,
hopeless.

How did this shipwreck occur?
What sin did I perpetuate,
To set me on this tumultuous course.
What sacrifice must my soul make
For sleep to once again be my friend?

Day 256 “Letters and Words”

Letters jostle for position
back-up
attempt to regroup
get detoured.

Frustration builds
and obstacles
pop-up –
cognition faltering.

Circuits are jumbled
pathways rerouting
patience exploding
expression lost.

Word recall
out of order
Word recognition
under construction.

Is there an exit
from this nightmare?

Day 255 “Take a Step Back”

I am living in my father’s house
with a man who said ‘I do”
then didn’t – at least not with me.

These walls, built with lies,
deception whispering in each corner-
betrayal bouncing off my lover’s soul.

No comfort is found here,
Expectations are beyond me
I am over my head.  Stop!

Take a step back.
The house is vacant,
past inhabitants now ghosts.

I have a voice.

I have a voice.

Here is not the place to use it.

Take a step back.
Walk away.
Victory is not the goal.

Take a step back.
Let it go.
These are but hollow, old walls.

Ostracized

Disturbances alarm me
an intentional bystander
burying my head,
avoiding conflict.

Strife spills over
butting up against
personal limitations
forgetting myself
I engage
finding unforeseen strength,
defying odds
then remembering
letting go,
deflated.

I feel targeted
displaced rage
threatens me, stalks
and I am helpless
vulnerable.
My pleas for help
unheard, unanswered.

My life is at stake here people!
Pay attention!

Expectations are high
uplifted by progress;
promising road ahead-
I am out of sync
missing opportunities,
losing my place
forgotten

disability
limits me
I have no strength
but I have needs

Life taunts me
within arms reach
yet inaccessible –
rights diminished.

I crave life,
sustenance,
connection,

in isolation.

Day 253 Power

Hope glides
on the wings
of the early morning
dawn; awakening.

Whispered
promises:
new beginnings
bright possibilities.

Hope smiles
electric blue,
sunshine yellow
darkness receded.

Reality slams
the door closed
harsh recollection
shatters illusion.

Colours fade
to gray –
nothing
has changed.

Hope trails:
a gossamer thread;
a faint flutter;
refusing to die.

The soul
shuns reality’s
heavy-handed
dictation,
relying instead
on the wistful
subtleties:
a butterfly
in the wind.

Who wins
in this struggle
for absolute reign?

Do I surrender,
resign myself
to what is?

Or heed, what?
An impulse,
a glimpse?

Hope has
deceived me
before,

Reality has
proven equally
as unreliable.

Uncertainty.

Uncertainty
is the only power
that speaks the truth.

Day 252 “Discomfort”

I exist
somewhere betweeen
here and the Netherworlds.
a ghost woman,
wanderer
lost soul.

I exist
on the periphery
semi-conscious
semi-paralyzed
inept at
communicating

I exist
reliant on help
and courtesy
and goodwill
and willingness
to do for me.

I exist
disoriented
frustrated with inabilty
afraid
yearning for
home

unable to remember
where home is
or how to get there
or who to call

vague memories:
reasurrances
loving acceptance
strength and
forgiveness

I am cold
body tired
energy spent
trapped in
some-other-verse

trying to send
out a signal
rescue me
find me
I exist.

Day 251 Careful and Carefree

Dreams have provided a source of personal revelation for me since I started recording, and subsequently learning about them, in 1986.  The poem “The Shadow of Shame” was based on the dreams of several nights, all bearing a similar theme – my ability (or rather inability) to form relationships.   By weaving together the images from those dreams and writing the poem I was able to recognize the underlying culprit.

Shame is insidious, silently spreading its menace, growing like a weed rooted in the soul.  It began for me the year I turned nine, when my teenage sister got pregnant.  While no one directly spoke to me about what was happening, I knew by the raised voices and frantically whispered arguments that something was dreadfully wrong.   A wedding was hastily arranged despite my father’s protests and my sister’s life was changed drastically.  That fall, when I started a new school, the shadow was already casting its pall over me – I felt myself on the outside of the circle looking in.  None of these kids, I was sure, was already an aunt or uncle.

Then, the summer of my eleventh birthday, my parents sat me down to tell me about my mother’s previous marriage and divorce.  Imagine my shock to learn that my sisters were half-sisters, and that two of my male ‘cousins’ were actually brothers.  “Divorce is a sin,” my mother told me, “So we don’t talk about it.  People would not approve.”  Marked by this new secret, I knew my hopes of belonging were shattered.

When we moved, mid semester, in the eighth grade, I was taken out of my gifted classroom and thrust into the mainstream.  Where previously being an oddball was celebrated, my new peers scoffed at my quirky abilities further fueling my growing awareness that I was fatally flawed.  When a boy I had latched onto and actually crushed on, publicly called me a dog, I learned how deep humiliation can run, as I then became the target of relentless bullying – everyone in our school took to barking at me at school and anywhere else I happened to be.

When we moved from that community, I had already learned the importance of caution around others.  I knew that making friends required careful observation and consideration, and demanded that I not reveal my true self.  There was little provision for letting one’s guard down, or being carefree.

And then my father dropped his bombshell – revealing to me the duplicity of his life – and any shame I might have felt before was now multiplied a thousand fold.  I was certain that others could tell by looking at me that my family was a total wreck, and furthermore, I knew they were justified in their judgments of me.  I shrank into myself, seeking dark corners, avoiding eye contact, or skipping school all together.  I tried running away, cutting, drinking, but nothing numbed the emotional pain, nor brought me closer to others.

When, at fifteen, I was abducted and raped, my family unwilling and unable to deal with the fact, just didn’t talk about it.  Called a whore by my father, I pushed the memory to the back of my consciousness and fixated instead on ways to end my life.

I thought I had put all that behind me.  I believed that through therapy, and just as a side effect of maturation, I had eluded the black cloud of my youth – and yet here it is -rearing it’s ugly head again, reminding me that I still struggle with getting close to anyone, certain that they will despise me if the truth comes out.

Ridiculous, isn’t it?  Yet, I bet that we are all, in some degree, affected by this plague.  Shame builds walls where there are none, creates distorted images of superiority and inferiority, and takes personal blame where there is no fault to be had.

In the final dream, I am befriended by a troubled youth ( something that occurs regularly in my chosen occupation).  It is at the moment in which we both realize that we have shameful pasts that we are able to let down our guards and freely be with one another – just two humans being.

Maybe it is the very things that shame us that make us human, and the willingness to share our shadows that brings us connection.

I know that this heart longs to step out of the restrictions of careful interaction to experience carefree intimacy with another.

In the meantime, I will keep dreaming.

The Shadow of Shame

Head down, absorbed with your mundane task,
you diligently work with pregnant anticipation.
Hesitantly, I approach,
offering commendation.
Straightening, you stare through me
and turn your back
your silence a concrete wall
between us.

Embarrassed, I retreat
across the frozen landscape
of your inhospitality,
stinging with rejection,
stumbling in my own
awkwardness.

Lounging, you revel
in upcoming adventures
Confident and capable
Shining with radiance.

Overshadowed by your beauty
and superior wit
I am silent,
floundering in my incapability,
not wishing to appear the fool.

I catch you searching,
seeking a place to land
and call your name,
hurrying to catch you,
but you ignore me,
intent on finding your own answer.
Feeling inadequate I shrink back
and hope no one has seen.

I never measure up.
Something about me
elicits shunning.
I am nondescript
invisible.

A young man,
tortured and in trouble
invites me in.
We share a lot in common,
he too knows loss
and condemnation.
He too has made mistakes
and suffered consequences.
He is a willing companion,
and I have found acceptance.

Believe in Yourself

Brightly clad and bristling,
Ego scrambles to organize,
persuade, and manipulate
while Greatness watches calmly,
a knowing smile on her face.

Knowledge trembles with anticipation,
eager, yet hesitant,
confident in her training,
doubting her ability to perform.
Greatness nods encouragingly.

Judgment resists Ego’s wants,
sets up roadblocks, spews criticism.
Ego reeling at the blows,
views herself anew with disgust.
Greatness is nowhere in sight.

Plans thwarted, Ego recoils
back to the source of her dreams.
Greatness waits at the center
Graciously open to listening.
Embarrassed and disheveled, Ego sits.

“I’ve been a fool!” she blurts,
“I wanted so much, thought I could do it all,
but I was wrong. So wrong!”
Greatness does not comply with this ranting,
Offering only silent reassurance.

Ego calms herself, considering her companion.
“You must have struggled in your time,” she observes.
“Known heartache and disapproval.”
“Oh yes!” Greatness nods,
a humourous twinkle in her eye.

“But you never gave up?”
“No. I did not,” comes the kind reply.
“I do look a bit foolish,” Ego persists
“Just overzealous, perhaps.”
Ego pauses to reflect.

“Knowledge stumbled with self-doubt,
yet you knew that she’d succeed,
is that why you supported her?”
Greatness smiles generously,
her nod implying more.

So focused on perfection,
Ego now sees the fault.
Potential, she realizes
doesn’t not come ready-polished
but with willingness to try.

“I need to make some changes,”
she confesses to Greatness and herself.
“To tone down my outer professes,
and tune up my inner strengths.”
“Believe in yourself,” comes the response.

Day 250 “Sensory Stimulation”

When I was first diagnosed with ME/CFS, my doctor strongly advised against shopping in big box stores. “For at least a year,” she cautioned. Not one to comply, and still in a state of denial about the severity of my illness, I talked my husband into to taking me to a store that offered motorized carts for disabled shoppers. Half way through my adventure, I knew I was in trouble. It was not the distances one had to walk that presented the challenge (as I had naively thought), but the overwhelming sensory stimulation.

ME/CFS affects, among other things, the central nervous system. As I understand it, the nerves are not able to cope with any additional stress, and this includes the sensory input. My therapist defines it for my consideration as the amount of sensory load that my body can handle at any given time. By determining this, I can better manage my progress and avoid crashes.

Consequently, I exist in a bubble – fragrance-free, controlled lighting, minimal noise input, and reduced visual stimulus. I avoid either hot or cold foods, and am overly sensitive to touch. Minimal sensory stimulation has become my norm.

What frightens me is the thought of integrating back into modern life, where the senses are constantly accosted without thought for consequence. From my perspective, it takes a finely tuned nervous system to cope in our over-mechanized, image-popping, aurally-bombarded, scent-driven society. I marvel at those who can manage it, and my heart goes out to all who cannot.