Life Currently on Pause

Yesterday, I decided to pretend that the disease I suffer is not present.  Just for one night I wanted to take a break, be normal, live life. I am not talking big risks here people!  I am just talking a night of t.v. watching like in the old days, before I got sick.

“I’m still lying down, right?”  I convinced myself, hunkering in under the sheets.  “What can it hurt?”  That was 7:00 p.m.  At 11:00, I turned off the noise and distraction and retreated into sleep.

3:00 am the first repercussion hit me – constricted airways, choking for breath.  I staggered to the bathroom and my inhaler, then tried to go back to sleep.

No deal.  My overstimulated brain was locked on wired – replaying the details of the shows I’d watched over and over, like an ongoing, unsolvable debate.

I got up and made myself tea, and noticing a pronounced weakness, allowed my walker to support me.  I had overdone it.

I eventually fell back to sleep just after dawn, and now just coming up to noon, I have managed to get myself dressed.

Why is it so hard for me to learn this lesson?  My body/ mind/ emotions/ spirit have, through the vessel of this disorder (ME/CFS), sent me a clear and profound message:

P..A..U..S..E..!

So life, forgive me for opting out of participation right now – I am taking a sabbatical.

Day 233 “The Tao of Giving”

My sister, Mae, is obsessed with yard sales and thrift shops, always looking for the buried treasure amongst other people’s discards.

“I found a beautiful bracelet for Mom,”  she’ll tell me.  “Really, you should see it! Would one of your girls like a purse.  I bet they could use it.  It’s really stylish and only fifty cents!”

Mae is sixty-three years-old and further removed from what is “stylish” than I am, but I don’t tell her so.  Instead, I graciously suggest that they likely have more purses than they know what to do with, being working girls and all.

Mae’s generosity is never without a catch, so recipient beware.  She is so persistent that caught in a weak moment I will relent and accept a gift on behalf of myself or others.  This immediately triggers a flurry of phone calls as to when I will come pick up the illustrious item – as many as six a day.   Once retrieved, she will never ever let you forget the gesture.

“Remember that owl plaque I gave you once?”  you said recently.  “Do you still have that?”

The object in question was a small wooden plaque with an owl engraved into it and some words of “wisdom”.  “I hung it in my first classroom,”  I tell her.  “I thought the message was appropriate there.

“Oh yeah, what did it say?”

I really can’t remember.

“I don’t have room for anything else,”  my Mom will complain, “but I can’t throw anything out because  she looks for it when she visits.”

Perhaps this is a good place to interject that my sister Mae is mentally ill, suffering from schizophrenia.  Giving is her way of connecting to the world.  I have never understood this relentless need of hers, and am equally stymied by the fact that she outright refuses to receive anything from anyone.

“Why would you give me that?  It’s too expensive,” she might say.  Birthday, Christmas, or just because gifts are handed back belligerently or quickly passed on to someone else.  She will not have the stain of taking on her hands.

What has caused this imbalance in Mae? I often wonder.  Yet, if I am honest, I too have never been totally comfortable with the whole giving and receiving concept.   Social etiquette is somehow lost in our family.

Children learn from the example set.   In our family, there was always something sinister lurking behind the act of giving.  Our father, for example, would lavish my mother with new, expensive clothing, but the fact that it usually occurred when she was at the end of her rope and threatening to leave him, was never lost on us.  I clearly remember questioning how he could afford it all at a time when Mom didn’t have enough household money to pay for the basics.  Father’s gifts were clearly a ploy to control her.  I swore never to fall into that trap.

Gifts from my mother similarly conveyed a message.  She would favour one child over another, and excuse it by saying that the child in question had greater need than the others.  Her logic was confusing, if not outright cruel.

Mae’s inability to escape the cycle of unhealthy giving is a symptom of the dysfunction we lived.  She cannot escape.

Escaping and experiencing something different is what I strive for.  Yet, years of guilt for not having given enough to my children, or embarrassment for having missed an opportunity to give to another when everyone else has risen to the occasion, continue to plague me.

“Unattached giving” is the lesson to learn according to today’s reflection in The Tao of Joy Every Day, by Derek Lin (my inspiration for this blog).  To give only what you can spare, and without expectation of return.

“Give a small amount every day…” Lin advises.

Now confined to home with illness, this challenge requires a real shift in perspective on my part.  What is giving?  What does it involve?  If I begin with the assumption that anyone, despite their present circumstances, is capable of giving, then I have to redefine what that means.

I cannot offer to take someone out for lunch, or even get out to buy them a card, so how can I still fulfill this task? What do I have to offer?

Gifts, I decide, come in many forms, and are defined as much by the joy that they bring, as they are by the value they hold for the person giving.  So what do I value right now?  Well, I value my energy (as it is limited), and I value my writing.   I am a good listener, and I will share whatever I can to brighten someone’s day, but I am constantly learning the importance of boundaries, so to give more than I have, energy-wise, has  immediate and devastating repercussions on my health.   Reaching out, if that is the gift I can give, has to be sparing, and I somehow have to learn that this is good enough.

Boy, this “Tao of giving” stuff is not as easy as it sounds, and I surely, have lots left to learn.

 

Day 232 “Levels of Virtue”

“Good, better, best.  Never let them rest.  Until your good is better and your better best,” my father would make me recite often; a constant reminder that I was never good enough.

“Patience is a virtue…, ” my mother would wag her finger at me implying that I was somehow sinful.

I gave up being virtuous long ago.

I don’t know about you, but I’ve always been leery of “good” people.

I knew a woman once who was touted by others as a guru – saintly sweet, full of love and light – you know the kind.  She often rented space in the same office building where I was working at the time, and for some reason, I kept my distance.

Call it instinct.

Or maybe, it was because I didn’t want her judging my lack of virtue.

One day, as I approached the building, I heard a distinctly female voice raised in anger, coming from inside the lobby.  I hesitated, not wanting to walk into the middle of a fracas, and listened for distinguishable voices.  I caught the low, gruff tone of one of the landlords, and the higher, more nasal,  and still calm voice of his partner.  Whoever they were trying to discuss matters with was having none of it – her voice like piercing shards of glass was bouncing off the walls, and as it did not seem like it was going to subside, I had no choice but to push open the door and disturb the scene.

Red in the face, foaming from the mouth, was the “guru”.  Unforgiving of my untimely entrance, she turned her wrath on me:  “Could you not have waited?!  Does no one have any sense of boundaries around here?”  Then she stormed out the door, leaving three brow-beaten people in her wake.

“What was that?”  I asked looking at my befuddled landlords.

“Woke up on the wrong side of the bed, I think.”  chuckled one.

“Apparently we did something to disturb her,” stated the other.   “Nothing that would provoke that amount of anger, I should think, but there was no talking about it with her.”

I had no reasoned response.  After all, she was the purported paragon of virtue, certainly not me.

 

 

Intuition

The body has a voice –
not silent, nor harsh –
it is a knowing.

When ego drives hard –
Screaming ambition,
demanding to be heard

Block it out!

Let your body speak –
waves of understanding,
gut feelings; truth.

Logic has no place here –
book learning seldom serves
the needs of the soul.

Set it aside.

Listen to your body –
that pounding in the chest,
that sudden surge of vertigo.

Reason is cellular –
ancient, ancestral instinct.
Trust the wisdom within.

(Image: www.huffingtonpost.com)

Embrace your intuition.

Sufficiency

My living room has beautiful big picture windows facing two directions, allotting me a full view of the neighbour’s front gardens to the north, and the constant comings and goings  on the  street in front of the house.  Lying on the couch with my morning cup of tea is how I like to greet the day.

On Sunday mornings, the rush of traffic is replaced by clusters of runners, with their long, sleek bodies, puffed out reddened faces, and self-satisfied grimaces.

“My wife had CFS,”  a man once told me, “but now she runs marathons.”

It is hard for me to believe.  The distance between my own physical capabilities and these weekend athletes far exceeds any race they might run, the copper-coloured legs of my sidekick walker remind me.

Maybe wheelchair races, I chuckle to myself.

Now that my life is confined to the four tiny rooms on the main floor of our home, I have new perspective.

I cannot remember a time when I did not feel lacking in my life – not enough hours in the day, not enough help, not enough money – but the truth is, in retrospect, I always had exactly what I needed.

Today, I do not have the legs to carry me swiftly on my way, nor do I have the energy to aspire to such feats, but I do have a home that I can easily navigate, surrounded by the endless beauty of Nature, and friends and family that truly care.

Abundance, I am discovering, is an attitude, not a state of material wealth.  It comes with the recognition that life is sufficiency, not lack.

 

The River

There’s a river runs between us,
you and I.
Our thoughts, like tears, are liquid
carried effortlessly by the current.

But you and I,
we stand on the banks, oblivious;
ignoring the connection,
proudly touting our individualism.

Still the river flows,
and all you’ve suffered,
and all I’ve suffered,
or dreamed, or imagined, or hoped,
flows with it.

Step into the water with me,
feel our connection,
do not be afraid.
for it is sacred.

Wade deeper and know
you are not alone
for I am here
in this river
that runs between us.

( Image:  ldsmag.com)

War is Hell

The battlefield still smolders,
oppressive gray smog hovering
The landscape is scarred,
ravaged reminders of war.

Origins borne of uncertainty,
fear spurred by righteousness
and a disgust of imperfection,
prolong the futile fight.

Subtly, imperceptibly,
defenses strengthen,
confidence renews
but the opposition
will not be silenced.

War is hell.
Unfair, biased,
blinded, deceitful.
Sacrificing the innocent,
destroying potential.

War is hell –
especially when….
the battleground
is the Self.

(Image: www.smithsonianmag.com)

Day 227 “Life is Love”

It is nap time and I am lying on the bed with my three-year-old granddaughter who pushes her rosebud lips up against my face, squishing my cheeks with her chubby baby hands.  She snuggles so close and with such intensity, it is as if she wants to merge her little body with mine.

I adjust her position so that she is now cradled in my arm, her head resting on my shoulder.  Taking slow, deep breaths, I close my eyes.  I can feel her intense blue eyes staring at me, and then she too starts to breathe deeply and I peek to see she has succumbed to sleep.

We will lie like this for two hours, her baby hair matting as she sweats in her slumber, and I marvelling at this little soul who has brought so much love into my life.

Earlier, she and her two-year-old cousin collected fallen leaves in the backyard and I pressed them so we could make Thanksgiving collages.  The world, through their eyes, is wondrous and new, and all the leaves are beautiful no matter how torn or blemished.  The enthusiasm is contagious.

After nap, we will all sit down to a traditional meal and the babies will chatter non-stop, and giggle at their own nonsensical language.

Then both granddaughters will scramble to sit on Grandma’s lap whilst I read a book and we discuss its content as if its the most important thing in the world.  (Really, I will do anything to prolong the scent of their baby hair and the feel of their sloppy kisses.)

Hours after they leave, I will lie in the dark and replay each delectable moment over and over in my head, and Grandpa and I will talk about all the little developments and beam with pride.

There is no mistaking the fullness in my heart after time spent with my “babies”:  life is love!

 

Day 226 “Resistance to Change”

The magician rehearses and I, alone, observe from the front row of the theater. 

Assisted by two women, he plans his piece de resistance:   the illusion of transformation, one woman appearing to give birth to another.  Dark, terrifying, and magnificent.

In the final run through, one woman walks away, and because of my proximity, I am drawn in.  The part is now mine.

“No!” I protest to no one listening.  “I don’t know what to do.  I’m not prepared!”

Everything around me turns to chaos:  the stage manager suddenly falls ill, as does the stage hand.  I am alone and the curtain is about to rise, and I have no choice but to play the role.

“Improvise”, I tell myself.  “You can do it!” 

Concealed beneath the cloak of mystery, my partner and I merge and appear as one   entering the stage.  Strobe lights cut through the dim atmosphere and the magician begins his spell, gesturing and waving cloths, and just at the right moment lifts the cloak and I’m pulled off stage, out of sight, and the new woman emerges: transformation has occurred – suddenly, magically, efficiently – and only those behind the scenes know the fear that led to this moment.

*  *  *  *

The dream repeats itself again and again, and I toss and turn trying to shake it loose.

It makes no sense to me at first consideration, but then I see it:  “All the world’s a stage,” Shakespeare penned, “And all the men and women merely players.”  Reluctant players at times, as I am in the dream.  Improvisational players.

No matter how much we prefer to sit in the audience and watch others perform, time comes when we are called to play our part – or as, in this case, the part chooses us.

Is this what this illness is about?  Am I being called to transform myself, give “birth” to a new woman?  Is this an opportunity?  Or am I just participating in a grand illusion?

Change is never easy.  I have certainly been dragged against my will into my current state, and I know I fear that my self is lost.

I do feel as if I am playing someone else’s role; this is not supposed to be happening to me.  And yet it is.  And why not me?

The woman who walked away – whose role I filled – she did so because she felt too vulnerable and didn’t want to be exposed.  I didn’t have that choice.  I had no rehearsal.  I get one shot at getting it right.  What pressure I am putting on myself to succeed at this illusion of transformation.

Thank goodness for the magician’s skills.  I couldn’t do it without him.

Wonder who this magician is that makes change appear as easy as 1, 2, 3.  I could use some of his magic.

 

Day 225 “The Way of Life”

The sky is a cornflower blue, the sun bright, biting, as if in competition with the mustard gold, tangerine orange, and chartreuse leaves shimmering in the breeze.  This is the view from my window, and I close my eyes again, the scene too vivid for my newly awakened eyes.

I contemplate what I have witnessed and think life is like this:  too beautiful at times for words; glorious perfection.

I want to capture it, but when I open my eyes again, white clouds form the backdrop and the autumn wind is tossing the tree about. Branches dip and pull and the harmony of the past moment is gone.

And, I think, life is like this too:  it can turn in a moment, and what was once balance is suddenly lost, and we are left spinning.

I hear it now:  the wind rushing against the windowpane, taunting me:  Change!  Change! it leers.  Change is coming!

And I know what it speaks is true, for life is like this:  ever-fluctuating, never the same.

And the reminder is bittersweet.  I want it to be summer forever, but in my heart, I know it’s okay.  Change is okay.

It’s just the way of life.