First Glimpse Of ME/CFS

Hesitantly, I turned the key in the lock and pushed the door ajar.  A waft of warm, stale air accosted me.

“Hello?”  I’d been told there might not be a response.

Something was resting against the door, so I pushed harder to let myself in.  The beam from the light of the open doorway was thick with dust and it took a moment for my eyes to adjust to the darkness.  I was walking into a little foyer, with stairs ascending to the main level.  The walls on either side of the entrance were stacked high with boxes, and laundry baskets full of stuff.  Something lay on the floor at my feet – a coat, or a blanket, I couldn’t tell – the object of resistance.  I stepped over it and closed the door behind me.  The smell of the place accosted me then, a smothering aroma of dust, and cigarettes, and cat fur.  I wondered what I had gotten myself into.

“Hello?”  I called again, more desperate for a response.  None came.

She’ll be in the bedroom, at the end of the hallway, her mother had told me.  She likely won’t awaken.

It was the middle of the day, but dark blankets covered the windows, allowing for minimal light.  I waited for my eyes to adjust before climbing the steps to the kitchen.  The rows of boxes and debris continued and flowed into the kitchen, where dirty dishes and takeout containers littered the counters and floors.  Who could live like this?

I felt my way along the hall, carefully stepping through the hordes of items stashed there, until I reached the last bedroom.

Politeness made me knock again.  Again no response.

The situation was worse than I thought, and I seriously doubted my ability to be of help.  It all started when she was seventeen, her mother told me.  She had a terrible case of the flu, followed by encephalitis, and then one thing after the other.  She rarely gets up, and has trouble putting a sentence together.  The doctor’s have given up on her.  She hasn’t been out of the house for ten years, and we can’t get anyone to go in.  We’d really appreciate if you’d go see her.

Two tabby cats greeted me as I opened the bedroom door, as did the fetid odour of a litter box.  Shooing them aside, I approached the bed.  Rumpled bedding was tangled up in the middle of full size bed, but no sign of any thirty-three year-old woman.  Now what?

I decided she had to be somewhere within the mess of sheets and bedding, so centering myself, I began.  I ran my hands just above the bed, hoping for some sense of heat, or thickness, that might indicate there was a body inside.  Instead, I just felt foolish.  So, I stood at the foot of the bed and took some deep breaths, re-centering in hopes of some divine inspiration.

“Well?”  A thin, croaky voice emerged from under the covers.

“Hello,”  I said again, beginning to feel like a parrot.

A thin, waif-like hand appeared, followed by a matted head of hair.  She was tiny.  “Any hope?”  her voice sounded as if it was coming from under water: slurred and thick.

I was at a loss for words.  Here was this wisp of a woman, holed up this house with no daylight, and no fresh air, locked away from humanity, and all I could think of was how could she possibly survive.  I would have committed suicide long ago if it had been me.  What could I tell her about hope?

Then I remembered something both Joan Borysenko and Bernie Seigel had said during their workshops:  There is something to love about everyone.  Find it and you can help them. 

“Yes,”  I said.  “I believe there is.”

“Really?”   The word came out stretched and squeaky.

She had survived this long.  She had beaten odds, and continued to live.  It wasn’t much of an existence, but something kept her going.

“You have an incredible will.  Now, you just have to learn to channel that to get better.”

* * * * *

Patty’s story is for another day.  Meeting her taught me the importance of an idea that works.  There is something to love about everyone.  I use it everyday in my teaching practice.

(Image: www.experiencewellness.co.uk)

Plateaus

“I don’t know, Lynn;  I just feel flat, as if I’m stuck.”

“You’ve probably just reached a plateau.”

“What do you mean?”  Lynn, fifteen years my senior, was a beloved cousin and mentor.  When I was young, I knew her as a famous singer who traveled and performed with celebrities.  Poor health forced her off the road, and a failed marriage stripped her of all material wealth.  Yet, Lynn never lost her quiet dignity, and I found in her a gentle friend, who was always willing to listen.

“The spiritual journey has been compared to climbing a mountain:  sometimes the going is easy and exhilarating; sometimes it is steep and difficult; and sometimes you reach a plateau.”

“That feels about right.”

“Have patience, and when the time is right, you will move again.”

I always pictured Lynn as a pillar in my life.  Her strength and presence often held me up.  Since she died fifteen years ago, no one else has taken her place.

* * * * *

My quest for spiritual enlightenment started as a little girl.  I distinctly remember being five and having a strong sense of purpose, as if God put me here on this earth to do something.  I felt it was important to keep the door open for God, so that I would be ready when the time came.  My faith was pure, innocent, and wholehearted.

Fifteen was when I started to have doubts and  turned my back on God.  I also fell into a depression that would not break for many years.

At twenty-eight, I felt like I suddenly woke up from a deep sleep, and the quest was on again.  These were the years when Lynn and I bonded, and I tackled that mountain with fervour.  I had never felt so alive.  Even through hardship and pain, I never felt alone.  I knew that God was with me.

Then I turned my back again.  It was nine years ago, but now I’m backing, asking questions again; wondering.

I guess I just hit another plateau, Lynn.

 

Gift of Communication

It was a Friday afternoon and I was picking up my three children from school.  Within five minutes of climbing on board, the oldest had her younger brother in tears.  I felt my ire rising.

By the time we got home, she was lacing into me.  My first instinct was to let her know who was boss, but I was the adult, so I walked out of the room, and took a deep breath, willing myself to gain some perspective.

Calmly, I rejoined my daughter, gently placing my hand on her shoulder.  “What’s wrong?” I asked.  “Your brother and I weren’t around you long enough to get you this upset.  What’s bothering you?”

My eleven year-old daughter’s anger melted into tears.  “The kids at school are pressuring me to smoke,”  she sobbed.  “I told them I don’t want to, but they keep bugging me.”

I sighed with relief.  Thank goodness I had not met her aggression with more aggression, shutting down any communication between us.  This child needed someone to confide in, and I was so grateful I could be there for her.

That was the day my daughter taught me never to take another person’s moods personally, because when you do, you miss the possibility of greater intimacy.

(Image: www.nhs.uk)

Calming Breath

Imagine being able to clear the clutter of your mind; to set aside all your thoughts, worries, obsessions, and just breathe.  Imagine letting go of all the tension in your body; setting aside pain, and discomfort in favour of just being.  Imagine the noise and distractions of everyday life just floating through you without sticking; your awareness not blocked, but heightened.

Through the practice of meditation, I have experienced this feeling of being suspended, at peace, in a state of harmony.  It is calming, reassuring, refreshing.  Reaching this place offers renewal, and at times, a sensation of bliss.  It is amazing how, no matter how stressed, this state of being offers such relaxation, that it shifts perception.

Breathe deeply, slowly, and let your exhale carry the tension out of your body and mind.  Take your time.  Let thoughts flow in and out.  Perceive them, and let them go.  Everything that is important will be there later.  Affirm it.  It’s safe to set all thoughts aside.

Let your in breath fill you with clear, calming energy, washing over you, helping the out breath carry away the tension.  Give your self permission to relax.  Empty yourself, body, mind, and spirit.  Surrender to the nothingness.  Suspend your grasp on reality.

Just be.

Hints for success:  Practice the same time each day.  Create the opening.  It doesn’t take long, it takes discipline.  Practice in the same place, establishing a routine.  One of my teachers suggested taking 2-3 minute intervals throughout the day where you stop and breath consciously.  She said she would find a tree, and focus on that tree, imagining what it would be like to have roots that run deep into the earth, and branches that reach high into the sky, and bend with the breezes.  She described it as strong, but calm, centered in peace.

Aside:  I learned to meditate when my children were babies, which meant that the only place I could get any alone time was the bathroom.  Meditating in the bathroom established a correlation that still exists today.  Some of my best inspirations happen when I visit the bathroom.

(Image:  quotesgram.com)