No point hanging onto past –
education is not preparation
when illness decides to drop in
neither Algebra, nor Social Science
offers clues for solving the equation:
Life minus ability equals: what?
Curriculum based on harsh realities
would instruct how to tie up loose ends,
gather what’s important, remain calm
while filling prescriptions and countless
paperwork; and how to fight for validation
when funding is fraud adverse and society
would as soon forget than support; and
how to continue to battle when good times
are confined to snapshots: other people’s
hopeful beginnings and celebrations; and
how to push on when in the lotto of life
disability is the winning card – no certainty
of aging, vacation days no longer apply;
and how does one grieve appropriately
when no one wants to hear, project fear
and misunderstanding; cannot fathom
the depth of the daily battle – need a
curriculum of their own in compassion.
(Image: www.everydayfamily.com)
Sounds very difficult. Sending empathy to you~
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Thanks Cindy – have to vent at times – it’s a survival mechanism.
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Illness takes away so much. This is right on point and I can relate 100% to these words
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I am sure you can – unfortunately,those who have not experienced it, usually cannot. That’s why we keep writing. Hope you are well as can be.
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That is the truth!
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